Everything started from the fact that she has a finger that is always cold and pale. She was taken to Modena and underwent an intervention. I do not remember the technical term, but it consists practically in unblocking the blood vessels. On this occasion she was diagnosed with scleroderma.
I wonder now what is the relationship between the intervention she went through and the diagnosed disease?
Medical Editor's Note : Blood vessel injury resulting in Raynaud's phenomenon is an intrinsic feature of systemic sclerosis and is NOT a feature of morphea. Patients with localized scleroderma (this means skin involvement only) including morphea and linear scleroderma do not risk internal organ problems or blood vessel features of systemic disease. There are occasional patients with systemic disease who in addition to involvement of the skin of the fingers and hands will have morphea lesions in more central areas of the body. Thus while morphea does not become systemic disease - some people with systemic disease may sometimes have lesions of morphea.
Email: [email protected]
Story posted 01-26-04 SS
Story translated from Italian to English by Luis Fran Ydler
Story Artist: Judy Tarro
Story Editor: Judith Devlin
Judy Tarro, ISN Artist, created the digital photo to illustrate the story on this page.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team or Volunteer.
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Ask for our Welcoming Email!
Email [email protected]
Toll Free US/Canada Scleroderma Hotline
*5-13-2015: This is a temporary number while our usual 1-800-564-7099 is being ported to a new provider.