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Laura W: Scleroderma, Raynaud's, Sjögren's,
and Irritable Bowel Syndrome (IBS)
I am glad to finally have an answer after years of tests with no results.

Flowers I am fifty-three years old, a wife, mother, grandmother, and a real estate broker in Nebraska. I was recently diagnosed with scleroderma, perhaps diffuse scleroderma, as the pigmentation is symmetrical on both arms.

I am glad to finally have an answer after years of tests with no results. I am interested in knowing more about the first indications of bowel, heart, and lung involvement.

I am presently on several antirheumatic medications, a sleep aid, and a drug to treat neuropathy (burning sensations.)

For the last three years, I have had positive RH factors; they are now negative. What has helped me most with the irritable bowel syndrome (IBS), believe it or not, is to have an instant breakfast shake every day.

I have a good attitude, a great husband, and a supportive and loving family. The hardest part of this was telling my family, as we knew someone my age who recently passed away from complications of systemic scleroderma.

To Contact the Author
Laura W.
Old Email: nlpartners@alltel.net
New email needed 07-18-06 SLE
Story posted 10-28-01
Story Edited 7-28-03 JTD/V1

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
Raynaud's
Irritable Bowel Syndrome
Sjögren's Syndrome
Types of Scleroderma
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
(Update) Raymond: Surviving Son of Scleroderma Patient On October 19th, the Herbert family lost another member of the family to scleroderma. My uncle Edmond has passed on...
Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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