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Laura W: Scleroderma, Raynaud's, Sjögren's, and Irritable Bowel Syndrome (IBS)
I am glad to finally have an answer after years of tests with no results.

Flowers I am fifty-three years old, a wife, mother, grandmother, and a real estate broker in Nebraska. I was recently diagnosed with scleroderma, perhaps diffuse scleroderma, as the pigmentation is symmetrical on both arms.

I am glad to finally have an answer after years of tests with no results. I am interested in knowing more about the first indications of bowel, heart, and lung involvement.

I am presently on several antirheumatic medications, a sleep aid, and a drug to treat neuropathy (burning sensations.)

For the last three years, I have had positive RH factors; they are now negative. What has helped me most with the irritable bowel syndrome (IBS), believe it or not, is to have an instant breakfast shake every day.

I have a good attitude, a great husband, and a supportive and loving family. The hardest part of this was telling my family, as we knew someone my age who recently passed away from complications of systemic scleroderma.

To Contact the Author
Laura W.
New email address needed.
Old Email Prefix: nlpartners
New email address needed 07-18-06 SLE
Story posted 10-28-01
Story Edited 7-28-03 JTD/V1

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
Raynaud's
Irritable Bowel Syndrome
Sjögren's Syndrome
Types of Scleroderma
This Story is Featured in Voices of Scleroderma Volume 1
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Laurie (Bioteach): CREST Syndrome
 
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