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Liliana: Morphea

Argentina

Magnolia for Liliana by Sherrill Knaggs, ISN Artist Hello, my name is Liliana and I was diagnosed with morphea scleroderma seven years ago. At first the illness was completely unknown to me. They performed several biopsies until they finally told me it was scleroderma. I have spots in my legs, hips, back and some in my arms.

In these years I have been living with the illness, I have learned the worst one can do is stay still, without doing any exercise. I have tried several routines but the one that works best for me is pilates which are exercises in flexibility, that really helped me a lot.

I would like to know more about my illness, whether there is a special diet I should follow, or if there's a new treatment. I hope someone can get in touch with me to chat, share advice and so on.

To Contact the Author
Liliana
New email address needed 12-20-06 SLE
Old Email Prefix: liliana_peralta67
Story translated 02-04-06 AL
Story prepared 02-04-06 JTD
Story posted 02-25-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba Leon
Story Editor: Judith Thompson Devlin
LINKS
(English) Morphea Scleroderma
(English) What is Scleroderma?

(Español) Liliana: Morphea

(Español) Esclerodermia
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Lina: Morphea Scleroderma
 
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