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Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
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Lorna: Undiagnosed Scleroderma?

Scotland.

Silver Shoes Hi, my name is Lorna. I am thirty-three years old and have just gotten a computer.

When I was twenty-one, I was rushed to the hospital. I could not breath properly. At that time I was living in London and working in a pub. I woke up one morning and could not get a good breath.

I had always suffered from sore hands and feet. Anyway, when I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma. I did not know what he was talking about. After a lot of different tests they put me on pills I had never heard of. I took them but did not feel any better.

It has been twelve years since then and I still do not know what kind of scleroderma I have. I have had a pain in my side for two years. The doctors do not know what it is so what am I to do? Is it all in my head? With the pain I live with, I do not think so.

I have two beautiful daughters and they keep me going. Well, I could go on and on, but what is the point if no one really listens.

To Contact the Author
Lorna
Email: lorna.gallagher@btinternet.com
Story edited12-16-04 JTD
Story posted 1-3-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Difficult Diagnosis
Raynaud's
Scleroderma
PDF Brochure: What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
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Go to Lorrie: Limited Scleroderma/CREST
 
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