Visit Sclero Forums, Chats and Blogs!
 
Search sclero.org:
 
The most important thing in the world to know about
scleroderma is sclero.org with 5,000+ pages in 23 languages!
 
Donate in MemoryIn loving memory of Tom Regensburger, and Vera Kortan . (Donate)
Home   Medical   News   *Sclero Forums*   Support   Languages/Countries
Earn $150 on July 30th in Boston Marketing Research Study if you have scleroderma or CTD and have been screened for pulmonary hypertension!
Frog jumping for joy by Shelley EnszPDF Flyer: Boston Marketing Research Study. Schlesinger Associates-Boston, a national marketing research company, is currently looking for patients who have been diagnosed with Scleroderma or other Connective Tissue Disease, who either have pulmonary hypertension or who are regularly screened for it, to participate in a July 30th paid marketing research study in Boston. Read PDF Flyer: Boston Marketing Research Study or call Katherine at 617-542-5500 x310. Schlesinger Associates-Boston. Posted 07/26/10.
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Marzia: Morphea

I wanted to tell you all this, because I hope that for you things may go better.

Let me introduce myself, my name is Marzia, I am a twenty-two-year-old girl. Three years ago I described my situation on this site (see my original story, in Italian).

I am affected by morphea and at that time I took three pills of piascledine and used Elocon to fight the spots I had on my skin.

To be honest this cure only served so that the spots in my thighs receded, for they at first turned hard and had that famous ivory tone in the middle of the spot. Now only the maroon spots remain, while those in my wrists are still there, and they go from dark to light continuously. For a moment I was convinced it ended there, and that my situation would become stationary. Also the dermatologists told me (they still tell me) that the spots are "stationary", but recently I realized that the spots in my wrists keep on appearing (they have increased by three in about three years), and sometimes my wrists hurt, especially when it is cold.

Two more dark spots have appeared, always oval, 2-3 cm in diameter, one in the lower stomach and another one close to another spot inside the thigh. I suffer from pain that goes from my hips to halfway through my femur. The dermatologist gave me Elocon together with vitamin E and a cream (mela-d), that according to her would help me get rid of the spots. I have taken X-rays, blood tests, so on. Every doctor I have been to, seeing that I am a young, healthy-looking girl, asks me why I go and take so many tests at my age. They start laughing, and then tell me I am very healthy. Even though these doctors with all their analyses have told me that I am healthy, I am in so much pain at such young age and they still say there is nothing wrong?!

Morphea is there, you can see it, and the biopsy confirmed it. The specialists tell me not to worry too much for the time being, while I am still young and my situation is not as bad, but that I should feel alarmed if I start to notice strange symptoms. The only thing I can do right now is to get doctor check-ups periodically.

Maybe what is needed for doctors to take you seriously is just to be constantly sick. I am sorry for having taken so much space to write down my story, but I wanted to tell you all this, because I hope that for you things may go better. So for those who suffer of morphea like me, since I have been taking vitamin E and using the mela-d cream, the spots haven't disappeared, but my skin looks better, healthier in all of my body.

I hope this helps you. A big hug to you all and good luck.

To Contact the Author
Marzia
New email address needed 08-06-09 SLE
Old Email Prefix: fiorediluna3
Italian story posted 07-05-04
Story update translated 03-18-06 AL
Story update posted 06-07-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Update Translator: Alba León
LINKS
(Italiano) Marzia: Morphea
Morphea Scleroderma (Italiano)
Morphea Scleroderma (English)
Sclerodermia (Italiano)
Tipi di Sclerodermia (Italiano)
Morphea Scleroderma (English)
Morphea Stories (English)
Types of Scleroderma (English)
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
New Personal Stories
Mars: Scleroderma with Full Gastrointestinal Involvement I finally started total parenteral nutrition (TPN, or tubal feeding) in May 2010 and it was an absolute success...
Sonya D: Surviving Daughter of Systemic Scleroderma Patient (Portugal) She had difficulty eating, drinking and digesting her food, but yet doctors had no clue...
Hazel: Morphea Scleroderma In 1962 when I was just twelve years old, my mother took me to our family doctor with what looked like a blister under my right eye...
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse...
Heather A: Scleroderma (South Africa) My fingers started to curl up and I could not wear any rings on my fingers anymore as they were so swollen...
More New Stories: May-July 2010
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Maxine D: Cousin of Scleroderma Patient
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States

This website is certified by Health On the Net Foundation. Click to verify.
This site complies with the HONcode standard for trustworthy health information: verify here.

Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
Privacy Policy, Financial Disclosure, and Disclaimer.
© Copyright 1998-2010 International Scleroderma Network
All Rights Reserved
 
Home   Donate   Medical   News   *Sclero Forums*   Support   Translations   Search