Monica O: Daughter of Mother with CREST

I am Argentinean. My mother, who is now seventy-six years old, was diagnosed with advanced CREST scleroderma, after thirty years of going through several doctors and suffering without knowing why.

She is now under treatment, but suffers with pulmonary hypertension, calcifications in her trachea, bronchi, and part of a lung. The fingers and toes of her right side present necrosis, and she is in terrible pain due to her legs being affected with calcinosis under the upper part of her foot.

I would like to know if there is something that can help ease the pain and, however slightly, improve her quality of life.

It is awful to see how she gets worse day by day. I feel powerless, because I do not know what to do. She asks God every day for patience.

Thank you for reading this.