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Monica O: Daughter of Mother with CREST
Argentina

Miniature Red Rose by Sherrill Knaggs, ISN Artist I am Argentinean. My mother, who is now seventy-six years old, was diagnosed with advanced CREST scleroderma, after thirty years of going through several doctors and suffering without knowing why.

She is now under treatment, but suffers with pulmonary hypertension, calcifications in her trachea, bronchi, and part of a lung. The fingers and toes of her right side present necrosis, and she is in terrible pain due to her legs being affected with calcinosis under the upper part of her foot.

I would like to know if there is something that can help ease the pain and, however slightly, improve her quality of life.

It is awful to see how she gets worse day by day. I feel powerless, because I do not know what to do. She asks God every day for patience.

Thank you for reading this.

To Contact the Author
Monica
New email address needed 10-10-06 SLE
Old Email Prefix: piscis.mg
Story edited 08-16-06 JTD
Story posted 09-26-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Caregiver Stories
CREST Scleroderma
Pulmonary Hypertension
Pulmonary Hypertension Stories
(Español/Spanish) Monica O: Hija de Paciente con Esclerodermia CREST
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Monika K: Morphea Scleroderma
 
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