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Moomary: Diffuse Scleroderma
It is really hard dealing with this, not knowing how it will affect me.

Blue Daisies for Moomary by Sherrill Knaggs, ISN Artist I was diagnosed with scleroderma and Raynaud's around December of 2002. Before that, I was having trouble with heartburn and acid reflux. My regular doctor tried me on many different antacids, but none of them worked.

Then I made an appointment with a gastroenterologist. He did an endoscopy around June of 2002. That showed inflammation of the stomach, so he referred me to a surgeon. I went to this doctor and he did several other tests.

I had a barium swallow, a pH balance test, and a twenty-four hour pH test. Then finally I had another endoscopy. It showed that my esophagus does not close at all when I swallow. The surgeon suggested that he could do a Nissen Fundoplication. At the time, we were not sure I had scleroderma, but were pretty sure I did. The doctor said he would do a partial rather than a full wrap, because of the possibility of scleroderma. At this time, I made an appointment with a rheumatologist.

That is when I found out I had scleroderma and Raynaud's. I had the Nissen Fundoplication surgery on February 7, 2003. This surgery made the biggest difference in the world. I have not had heartburn, and I can finally sleep at night. I now sleep with two pillows instead of four. I will need to have another endoscopy done every two years because of the scleroderma.

I am having a lot of joint pain now, and very dry eyes and mouth. My rheumatologist put me on medication for the pain and drops for the dry eyes.

That is about all of my story. It is really hard dealing with this, not knowing how it will affect me. I take it day by day. No one really understands unless you are going through this personally. Thanks for letting me share this with you!

To Contact the Author
Moomary
Need new email address.
Old Email: maryfutrell350@msn.com
Story submitted 5-13-03
Story posted 6-30-03
Email note posted 01-24-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor Sherry Jo Young
LINKS
Acid Reflux
Difficult Diagnosis
Diffuse Scleroderma
Dry Eyes/Mouth (Sjogren's)
Endoscopy
Nissen Fundoplication
Raynaud's
Scleroderma
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Story Editor: Sherry Jo Young
Sherry Jo Young was the ISN Story Editor for this story.
New Personal Stories
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite...
(Español/Spanish) Alana: Paciente Nuevo con Esclerodermia (Peru) Le dije que ya no podía abrir la boca completamente, he perdido la fuerza de las manos, tengo problemas respiratorios, mi rosto está diferente, mi piel está dura y he perdido casi el apetito...
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for...
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Sharon H: Scleroderma/Morphea It has been thirty-two years living with this and it has progressively gotten much worse and has spread...
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me...
More New Stories: November 2008
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