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Scleroderma from A to Z by the nonprofit International Scleroderma Network
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Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

Patient & Caregiver Stories Main Menu
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
ENGLISH Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
ENGLISH Stories by Illness: Main List, Linear/Morphea, Systemic, Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories in English: N
Nan: Mixed Connective Tissue Disease and Fibromyalgia Finally after several years of struggle, one wonderful doctor at OSU got gutsy and gave me the MCTD diagnosis...
Nancy H: Raynaud's I also have the beginning stages of Crohn's, panniculitis, rheumatoid arthritis, and now Raynaud's...
Naomi: Systemic Sclerosis and Pulmonary Fibrosis My doctor is astonished of my attitude considering I have Raynaud's, my fingers are curling up and I have lost my nails, pulmonary fibrosis...
Natasha Lubin: My Eyes Say It All When I was only eight years old, my hands were blue, red, white, purple, numb, stinging...
Natasha Lubin: Scleroderma Meets Sjögren's I started this page so I can keep finding connections between all of our diseases...
Natasha Lubin: My Son, My Caregiver Jeffrey said to me, "My mother is never going to die and is not sick..."
Nathalie: Lupus/Scleroderma I arrived at the hospital with two black fingers. They had gangrene and I was very worried about having an amputation...
Nats: Morphea One thing I often wonder about is whether this condition could have been caused by a tetanus jab I had a few weeks before I noticed the first mark appearing...
Naye: Systemic Scleroderma I was looking in the mirror one morning when I noticed a pink discoloration around my nose...
NB: Dermatomyositis I just knew then that my child's father would leave me, but he stood by my side and later became my husband even when I thought I looked like a monster..
Neelam: Systemic Sclerosis (India) In December 1998 my right pointer finger started becoming blue and was hurting a lot...
Nettie: Systemic Scleroderma with CREST Up until now I have done very well at pretending not to be ill...
Nickole: Surviving Daughter of Diffuse Scleroderma Mother I am not sure how long my mother had scleroderma, but I do know that the doctors did not know much about it at the time...
Nico: Daughter of Patient with Raynaud's Syndrome and Systemic Scleroderma (Italy) My mother was twenty-nine years old (now she is almost sixty one) when she discovered she was affected by Raynaud's Syndrome...
Nucci: Morphea (Italy) My disease was diagnosed in 1998, although my first tests were done about two years before at one of Italy’s best dermatology hospitals...
Noreen: Surviving Mother of Fibrosing Alveolitis Patient (Manchester, England) Alana gave us the most precious 14 months of our life, and because of Alana we now look after profoundly handicapped children...
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
This is a great day to submit or update your story!
Submit Your Patient, Caregiver or Survivor Story in:
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Share or Update Your Story!
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Section O-R: Scleroderma Stories in English
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