| Stories in English: O |
| Olga: Difficult Diagnosis Recently I came across www.sclero.org while researching my illness that has not been recognized neither in my native country nor in Italy, where I moved twelve years ago to escape from cold winters which have destroyed my skin... |
| Stories in English: P |
| Pam: Systemic Scleroderma for 27 Years (Australia) I have had several amputations... |
| Pamela W: Morphea Scleroderma It started as a bruise about the size of a dime under my arm... |
| Pam M: Diffuse Scleroderma, CREST and Raynaud's I went to a rheumatologist and after she had almost killed me with all the tests and drugs for a year, she threw her hands up and said there was nothing else she could do... |
| Paolina F: Essential Telangiectasia It initially started on my feet and has progressed to most of my legs, arms, and I have some spots on my torso... |
| Papa V: Lupus, Antiphospholipid Syndrome, Myasthenia Gravis, and Scleroderma About thirty years passed, and then—BAM !—I got a heart blockage, stroke, liver biopsy due to elevated enzymes, skin rash, high blood pressure, very high ANA... |
| Pat: CREST Scleroderma They had to do surgery and take calcium deposits out of my knee... |
| Patchlady: Morphea I am very scared that it could get worse, and have not been given any indications on how to treat it... |
| Patricia M: Morphea My breasts looked as if they were on fire... |
| Patty S: Localized Scleroderma, Pulmonary Hypertension and Sjögren's I have quit my job and reduced my stress a hundred percent. I am doting on my children and my husband... |
| Pearl: Surviving Daughter of Pulmonary Fibrosis Patient We watched her struggle daily to breathe, yet there was nothing anyone could do, not even the doctor... |
| Peggy: CREST and Raynaud's Years later, at fifty-six, my family doc said he thought I had scleroderma because I was having trouble with my hands, and my fingers looked like sausages... |
| Peggy H: Undiagnosed MCTD? I have been told for twenty years that I might have Mixed Connective Tissue Disease (MCTD), but I haven't been definitely diagnosed... |
| Peky: Sjogren's and Hashimoto's Thyroiditis (Italy) This year, after continuing to be sick, I visited the rheumatologist again... |
| Penelope: CREST Scleroderma (Italy) I was tired, my joints ached, and my hands turned different colors... |
| Peter: Burn Survivor with Scleroderma My left hand had contracted so much that I had to wear a protective piece of plastic on my palm to prevent my fingernails growing through the skin... |
| Phyllis: Morphea At age 63, I noticed shiny places on my abdomen. I thought it was a fungus... |
| Phyllis C: Scleroderma How many new cases are coming up now from people that were at the World Trade Center? I was there along with co-workers that are very ill now... |
| Phyllis K. Phillips: Scleromyxedema I have been living with scleromyxedema for ten years, and as you may know, there is very little information about it... |
| Pieranna: Daughter of Mother with Sjögren's Syndrome (Italy) My mother was just recently diagnosed with Sjögren's Syndrome, after years of joint pain and dry mouth... |
| Pree: Morphea Even if I get the right treatment or not, I will not let this disease ruin my life... |
| Pushpa: Scleroderma with Raynaud's (Bangalore, India) Around my 21st winter, the year of 1982 in Calcutta, India, is when I first noticed my nails and fingers were turning blue when exposed to the cold... |
| Stories in English: Q |
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| Stories in English: R |
| Rachel: Morphea Scleroderma I have learned to control the use of addicting medication and to manage the pain as well as possible... |
| Rachelle: Interstitial Cystitis I am just happy after two and a half years to know that I have a real answer and I can get better... |
| Rafvis: Systemic Scleroderma There were practically times when I had no sense of touch... |
| Rao: Caregiver of Morphea Patient My son-in-law's six-year old boy was attacked by a disease called morphea... |
| Ray N: Watermelon Stomach This past Friday I had two more pints of blood, making nineteen in all. I felt like King Kong from Saturday until Monday afternoon... |
| Raymond: Surviving Son of Scleroderma Patient On September 31, 2002, my mother, Claudia Girouard, lost her courageous fight with scleroderma... |
| Renae B: CREST, Sjögren's, Raynaud's I was diagnosed with scleroderma about four years ago at the University of Iowa Hospitals in Iowa City, Iowa... |
| René: CREST/Raynaud's I went through a hyperbaric chamber... |
| R.G.: Raynaud's and Chillblains Within just a few minutes of vigorous swimming all of the chillblains had disappeared... |
| Rhea: Morphea The giant spot on my back started out as Morphea and then started gaining more qualities of Linear Scleroderma... |
| Rhonda L: Systemic Scleroderma I have recently been diagnosed with sclerodema, and am still trying to wrap my brain around this... |
| Ro M: Scleroderma After six months of suffering, I have just been diagnosed with scleroderma. I was constantly tired, run down and plagued with infections... |
| Robert B: Morphea I am tired all the time. My foot is swollen and sore making it hard to walk... |
| Roberta: Morphea (Italy) I am a woman of 25 years of age, and two days ago I saw the doctor about a mark on my right forearm, which is compatible with the diagnosis of Morphea... |
| Roberta A: Systemic Sclerosis/Overlap Two rheumatologists both said because I did not have thick skin I did not have systemic sclerosis... |
| Robin: Difficult Diagnosis My rheumatologist said I have scleroderma, but just lately she said now she is not sure if it is that or fibromyalgia... |
| Robin E: Scleroderma, Lupus and Raynaud's I do not know if I can describe what I am going through because it changes each week, if not each day... |
| Robin H: End-Stage Renal Disease (ESRD)/Transplant Recipient It has been almost two years now since my kidney transplant. I am doing better than ever... |
| Robin T: CREST Syndrome My hands were always cold and turning white, purple then red then back to normal, and hurting. Then I developed a sore on my finger tip that wouldn't go away... |
| Rodger Mansfield: Widower of a Diffuse Scleroderma Patient Fortunately, Kathleen was able to get a quick and accurate diagnosis of diffuse scleroderma... |
| Rodriguez: Linear Scleroderma Little by little pigmentation is coming back into my leg and there are times I still feel joint pain but I have gotten through it... |
| Ron: Fibrosing Alveolitis I was diagnosed in October 1996. Since then I have spent a lot of time in the hospital, including six weeks in intensive care... |
| Rose: Diffuse Scleroderma The decision to amputate was made, and the pain that kept me up in tears all night, every night was finally gone... |
| Rose M: CREST Syndrome I was finally correctly diagnosed with CREST after two years of thinking I was going crazy... |
| Rosebud: Diffuse Scleroderma My hands are the worst. They are completely swollen, red, itchy, with burning sensation and in pain constantly... |
| Rosemary F: Surviving Daughter of Diffuse Scleroderma Patient She tried to explain it, but it was hard for me to comprehend the disease's symptoms. Mom said that it was the same thing that her oldest sister died from... |
| Rosie: Limited Systemic Sclerosis (Australia) Some of my symptoms may not be due to limited scleroderma, however most of these symptoms have appeared since my diagnosis... |
| Rosú: Sjogren's Syndrome and Hashimoto's Thyroiditis (Italy) Sjogren's causes periferic polyneuropathy, with pain and loss of sensibility in my right hand and arm... |
| Rouge: Limited Systemic Sclerosis (Italy) I am 35 years old, and up to two years ago I thought I was only suffering from Raynaud's Phenomenon... |
| Rubie: Linear Morphea Scleroderma I was referred to a dermatologist and was finally diagnosed with linear morphea at the age of four... |
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