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Rafvis: Systemic Scleroderma
Italy

Peach Blossoms by Sherrill Knaggs, ISN Artist Hello, I am a twenty-six year old girl and about six years ago my legs and hands began to swell up. I also remember that I always felt cold. Then, while I was working one day I realized that some of my fingers had no sensation anymore. There were practically times when I had no sense of touch. Afterwards I learned to understand when this would happen: when I got excited, with temperature changes, but mostly when it turned cold.

I went to so many hospitals. They tried cortisone and antihistamines, but nothing worked. After some research, they diagnosed me with lupus. I took medicine, but nothing helped and the pain was getting worse.

This did not end until I met a girl from Rome who has the same illness, and she took me to her rheumatologist. I started to recover very fast, and now I go there every fifty days.

I can go forward thanks to treatment. Thanks to this center my illness, not lupus, has receded, although it is not gone completely, but at least now I can write and do things that I didn't think I would do anymore.

I read all the stories on sclero, and I thank God my organs haven't been touched. If I can say my own, I feel bad knowing that I also have it. But I keep on fighting because I have a will to live, so I say to everyone: don't give up, keep going.

To Contact the Author

Rafvis
New email address needed 12-20-06 SLE
Old Email Prefix: biondomax-2006@libero.it
Story edited 11-20-06 JTD
Story posted 11-28-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin

LINKS
(Italiano) Rafvis: Sclerodermia Sistemica

Lupus Stories
Raynaud's
Raynaud's Stories
Types of Scleroderma
What is Scleroderma?
ISN Artist: Sherrill Knaggs (In Loving Memory)
Sherrill Knaggs Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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