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Simo S: Raynaud's

Italian

Grapes by Shelley EnszHello, I am a twenty-nine year old girl who was diagnosed with Raynaud's about ten years ago. My symptoms include general hypersensitivity to cold, with white fingers that turn insensitive if they are exposed to the cold for a while, but also if, for example while taking a shower, I accidentally let hot water touch my feet, my toes become white, cold, and insensitive.

I was explained by a rheumatologist that high temperatures could also provoke symptoms. I often become cold, and when this happens I usually feel sleepy and clumsy.

I should confess that I have not been regularly checked. About two years ago I was given red fruit and vitamin pills without a good result.

About the stories I read, perhaps mine is less difficult, but I assure you that it can be highly disabling, especially for someone who, like me, works with a computer all the time, so much so that I have had to reconsider my job and career.

I would like to ask a question (if someone could please give me an answer); What's the difference between the illness and Raynaud Syndrome, and what actions should I take since I was diagnosed with the latter? Also, is there any economic help or something of the sort (I am not very familiar with this reality), that could help those that cannot develop themselves normally due to this illness?

To Contact the Author
Simo S.
Email: simona.sarti@alice.it
Story edited 02-08-09 JTD
Story posted 03-10-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Italiano:
Simo: Sindrome di Raynaud

English:
Raynaud's
Raynaud's Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Scleroderma
Types of Scleroderma
What is Scleroderma?
ISN Translator and Editor: Alba León
Alba Leon, ISN TranslatorAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.
ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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