Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
All Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 ;2009
Stories by Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish

Sorin

Cousin of an Undiagnosed (Possibly Scleroderma) Romanian Patient

Fresh FlowersI live in Romania and I have a cousin who has symptoms that have been described as very similar to those in scleroderma. More specifically, he is feeling very weak, having mainly heart problems (tachycardia) and hypertension, associated with gastrointestinal problems, dry mouth, muscular pains and extreme fatigue. However, when tested with Sclero 70 (a test), the results were negative.

As he is feeling very bad, with no improvement whatsoever for many months now, he is desperately seeking someone who could help him find out more about this disease and treatments for it - especially naturist treatments.

Although the results to the test were negative, he believes that he could have scleroderma, as he has found out that scleroderma is very difficult to diagnose. If there is someone with similar symptoms who has been diagnosed with scleroderma who would like to share his/her experiences and/or knows they could be of some help, please contact me.

Thank you!

To Contact the Author
Sorin
New email address needed 07-18-06 SLE
Old Email Prefix: srds73
Story posted 10-14-99 SLE
LINKS
Difficult Diagnosis

ISN: Romanian Version
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
 
Go to Sparky: Diffuse Scleroderma
 
SCLERO.ORG is brought to you by the nonprofit International Scleroderma Network (ISN). The ISN is a full-service nonprofit scleroderma charitable foundation providing stellar research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension.
  1. Post a message in Sclero Forums!
  2. Email: isn@sclero.org
  3. English Email Form
  4. Español Email Form
  5. Italiano Email Form
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
United States
Toll Free Hotline in U.S.
Hours: 9am-3pm CST only.
Please leave a complete message, in English.
1-800-564-7099
Direct Line
1-952-583-5735
We are also known as the Scleroderma from A to Z web site.
© Copyright 1998-2010 International Scleroderma Network
All Rights Reserved