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Suzy G: GAVE and Primary Biliary Cirrhosis

My top left side of my stomach is so, so sore.

Watermelon by Shelley EnszJust over six years ago I was diagnosed with primary biliary cirrhosis (PBC), a liver disease. Since then everything else seems to be happening to my body.

Gastric Antral Vascular Ectasia (GAVE, which is also known as Watermelon Stomach) was diagnosed about three years ago and after numerous iron infusions it was decided that they would operate and stem the bleeding in my stomach. That was yesterday and today I feel so weak and tired. My top left side of my stomach is so, so sore. It hurts to bend down. Looks like we will repeat surgery in three to six months.

I would love to hear from anyone with similar problems.

To Contact the Author
Suzy G.
Email: johngeorges@iprimus.com.au
Story edited 01-31-09 JTD
Story posted 03-03-09 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
LINKS
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ISN Story Editor: Judith Thompson Devlin
Judith Rose ThompsonJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
New Personal Stories
Maria T: Daughter of Deceased Scleroderma Patient (Italy) He, upon looking at my mom's face and hands diagnosed her with sclerodermia, in fact he took care of her until the end...
(Italiano) Maria T: Figlia di una Paziente Defunta di Sclerodemia (Italia) Lui, come vide a mia madre disse "tu hai la sclerodermia", guardandole le mani e la faccia...
(Update) Dee B: Limited Scleroderma/CREST Syndrome (South Africa) There is so much I want to add to my original letter after reading more of other peoples stories. I am certainly not getting better but wish I was...
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information...
More New Stories: August-November 2009
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Go to Suzy H: Mother of Daughter with Morphea
 
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