International Scleroderma Network
Skip to Page Content
Scleroderma from A to Z by the nonprofit International Scleroderma Network
The #1 scleroderma site with 2,000+ pages in 22 languages:
Arabic  Chinese  Deutsche/German  English  Español  Français  Greek  Hebrew  Hungarian  Indonesian  Italiano  Japanese  Kannada  Korean  Magyarul  Malaysian  Nederlands  Polski  Português  Romana  Russian  Spanish  Tamil  Turkish  Worldwide Lists
 
Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

Patient & Caregiver Stories Main Menu
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
ENGLISH Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
ENGLISH Stories by Illness: Main List, Linear/Morphea, Systemic, Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories in English: T
Takeya: Morphea Scleroderma I thank God that it's not harmful to me or the baby...
Tami: Morphea Scleroderma I have gotten used to the stares everyone casts my way because in their eyes I am different. Unique, I guess...
Tammy: Mother of Son with Linear and Morphea Scleroderma Brandan has linear scleroderma on his right side and morphea on his chest...
Tammy M: Linear Scleroderma and Vitiligo When I was first diagnosed there was no such thing as the Internet. I always felt that my family and I were the only ones in the world who knew what scleroderma was...
Tammy W: Morphea Scleroderma I am thirty-one years old and I have just recently been diagnosed with Morphea...
Tara: Systemic Scleroderma I was diagnosed with scleroderma in January 2000, but I have had it since April 1997...
Tata: Morphea The skin from my ankle all the way up to my knee was completely fused to my bone...
Tata P: Diffuse Scleroderma I am thirty-two years old, and I have been suffering this illness since I was nine...
Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face...
Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy...
Terry: CREST I was told that I have CREST by a doctor who saw me in a Workman's Compensation case...
Terry E. (Mojoy the Clown): Morphea Profunda Linear Scleroderma My right lower leg started to swell and the ankle grew big. It hurt all the time...
Tess: Scleroderma En Coup de Sabre I have just had reconstructive surgery for en coup de sabre, which is a form of linear scleroderma...
Theon: Scleroderma and Pneumothorax This is very hard for me, because I was a very active woman, and then suddenly I am totally and completely disabled...
Theresa C: CREST/Limited Scleroderma I am fifty years old and I was diagnosed with CREST in September of 1996...
Thomas: Brother of Morphea Patient We just do not know anything about it and my mom is really sad because my sister is only seven...
Tina G: Systemic Scleroderma and Interstitial Cystitis Interstitial Cystitis is a bladder disease. The symptoms are frequent urination, pain and pressure...
Tina Lech: Diffuse Scleroderma, Fibromyalgia, Pineal Cyst I was a very active, alive, mother of three...
Tina M: Keloids My husband calls them my battle scars or unfinished tattoos...
Tommi: Diffuse Scleroderma I would like to talk with others who have heart involvement...
Toni: Spouse of Stem Cell Transplant Survivor Jeff is now seventeen months past his stem cell transplant and to look at him you would never know he was sick...
Toni H: Morphea Scleroderma I was diagnosed as a child with a strange skin complaint, but was given no information about it...
Tonya: Morphea Scleroderma I am wondering if it will help to hide the brown spots by tanning?
Tony B: Systemic Scleroderma with Pulmonary Fibrosis, Pulmonary Hypertension and Raynaud's It has taken me some time to come to terms with this disease...
Toot: Atrophoderma The only comfort that I get is that my doctor told me that it should never spread to my face...
Tore: Linear Scleroderma However, as time went by, the patch extended, and the hardening, instead of going down, got worse, involving more and more parts of my leg, all the way to my knee...
Tori: Localized Juvenile Scleroderma This is not the first rare disease that I have had...
Tracie S: CREST with Fibromyalgia I ache from head to toe, am cold all the time, feel like I am in a fog, in general I am just not up to par...
Tracy: Undiagnosed Please share your story with me. I am really tired of waiting and wondering...
Trish: Spouse of a Diffuse Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000...
Trudy Rose: Mother of Daughter who has Scleroderma I have been the caregiver for her when she needed me...
Tui: Limited Systemic Scleroderma I am wondering whether such treatments will be ongoing?
Tutter H: Lichen Sclerosus Since this is an autoimmune disorder, I have no idea how long this relief will last or if it will completely go away...
Tyler: Scleroderma, CREST Syndrome It is really confusing and the doctors say it is very rare for people my age to have it...
Stories in English: U
 
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
This is a great day to submit or update your story!
Submit Your Patient, Caregiver or Survivor Story in:
Arabic | Dutch | English | Español | Deutsche (German)
Italiano | Kannada | Polski | Russian | Spanish | Turkish | Other Languages
Share or Update Your Story!
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Keep on Surfing!
Go to Section V-Z: Scleroderma Stories in English
Contact ISN
Email Postal Mail Phone
Inquiry Form (English) Mail-In Donation/Order Form Online Donation/Order Form
Inquiry Form (Spanish) Website: www.sclero.org Please contact us in English.
Email:
isn@sclero.org
webmaster@sclero.org

Or post a message in ISN's Sclero Forums for free well-moderated support and information, 24 hours a day!
International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435
USA
Toll Free Hotline in U.S.
1-800-564-7099

Direct Line 1-952-831-3091
Arranging a Memorial, Fundraiser, Special Donation or P.R.?
We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter. Please help raise awareness of scleroderma and related illnesses by mentioning the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.
Thank you for helping us tackle scleroderma worldwide!
© Copyright 1998-2008 International Scleroderma Network
All Rights Reserved