[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Tammy: Mother of Son with Linear and Morphea Scleroderma

Everything happens for a reason, even though sometimes we really do not know why.

Painted Turtle, Photography by Shelley Ensz My son Brandan was five years old when we found out he had scleroderma. Then the real nightmare started, as I was given this small little handout about scleroderma, which seemed to say that I was going to lose my son.

We went to the local hospital and used their library but most everything we found was on systemic scleroderma, which was worse that I thought.

I am glad our family doctor knew what it was right from the start. He sent us to Children's in Pittsburgh, which was a joke. Then we found Dr. Medsger in Pittsburgh. He is a godsend.

Brandan haslinear scleroderma on his right side and morphea on his chest pretty bad. He has gone through steroids, physical therapy, and methotrexate — and nothing has helped.

Leader of the Pack by Shelley Ensz He is ten years old now and he is finally learning how to deal with other people knowing that he has scleroderma. Scleroderma is a tough thing to live with and watch your children go through the changes, but everything happens for a reason, even though sometimes we really do not know why.

The one thing I have learned is to give your child the best moral support and self esteem and they will prevail. They are stronger that we are most of the time.

Take care and God bless.

To Contact the Author

New email address needed 9-3-03
Old Email Prefix: bpyoung-cm
Story Posted 4-22-00
Story edited 9-3-03 SLE

Story Artist: Shelley Ensz
Linear Scleroderma
Morphea Scleroderma
Juvenile Scleroderma

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Go to Tammy M: Linear Scleroderma

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical   News   Sclero Forums   Support   Translations  Donate or Shop
Copyright 1998-2014, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.