[Skip to Content]
Patient & Caregiver Stories Main Menu
(English) Stories by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z
Stories in Other Languages: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010

Tracy: Undiagnosed

My fingers and toes turn white and become completely numb.

[Macaw] I have been experiencing extreme sensitivity to the cold. My fingers and toes turn white and become completely numb. I have seen a doctor, and he has run two antinuclear antibody (ANA) tests. They were both positive.

My problem is, my doctor is not telling me anything. He wants to wait another six months to test my ANA again. I do not know if the wait and see approach is the best way to handle this. Should I find a specialist, or wait for a diagnosis?

I would really appreciate hearing from somebody who has been diagnosed. Not only would I like to hear how the diagnosis came about, but also what the chances are that I have scleroderma if at all possible. My only other symptoms are fatigue and a little joint stiffness in my fingers.

Please share your story with me. I am really tired of waiting and wondering. Thank you very much.

To Contact the Author

New email address needed 7-13-03 SLE
Old Email Prefix: tjak4
Posted 11-19-00 SLE
Story edited 7-13-03 SLE

Story Artist: Shelley Ensz
ANA Antibody Tests
Difficult Diagnosis

2014 New Personal Stories

Sheri M: CREST Syndrome (Update) It has been three years since I've posted and I am happy to say I am still doing well...
More New Stories
Submit Your Patient, Caregiver or Survivor Story in:
Arabic  | Dutch  | English  | Español  | Deutsche (German)
Italiano  | Polski  | Russian  | Spanish  | Turkish  | Other Languages
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
Go to Trish: Spouse of a Diffuse Scleroderma Patient

SCLERO.ORG is operated by the International Scleroderma Network, which is a full-service U.S. nonprofit 501(c)(3) established in 2002. We provide stellar worldwide research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. Donate or Shop Now.

Questions? Post a message in Sclero Forums or email us directly at isn@sclero.org. Or call our Scleroderma Hotline (English only), Toll Free in U.S. 1-800-564-7099 or Direct at 1-952-831-3091. Ask for our Welcoming Email.

Our headquarters postal mailing address is: International Scleroderma Network (ISN), 7455 France Ave So #266, Edina, MN 55435-4702, United States.

The most important thing in the world to know about scleroderma...is sclero.org!
Home   Medical   News   Sclero Forums   Support   Translations  Donate or Shop
Copyright 1998-2014, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.