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Scleroderma from A to Z by the nonprofit International Scleroderma Network
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Earl's Running for SCLERO.ORG!
Sponsor Earl Manns in Green Bay Marathon, May 18, 2008! I'm running in honor of my daughter Mya, and in memory of Sherrill Knaggs. Join the excitement! (Also see: Donate Now, Earl Manns: ISN Fundraiser, and In Memory of Sherrill Knaggs)

Patient & Caregiver Stories Main Menu
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
ENGLISH Stories by Date Posted: 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008
ENGLISH Stories by Illness: Main List, Linear/Morphea, Systemic, Symptoms
Stories by Language: French | German | Greek | Italian | Polish | Romanian | Russian | Spanish | Turkish
Stories in English: V
Val: Systemic Scleroderma I am afraid to find out too much about the disease because I do not want it, but I do wonder what is going to happen to me next...
Valeria: Systemic Sclerosis (Italy) I am a 21-year-old woman, and at the age of nine I was diagnosed with systemic sclerosis...
Valerie: Mother of Morphea Patient We noticed that our son was developing a purplish "rash" on his left leg when he was about four years old...
Vanessa: Linear Scleroderma My older sister found a way to cover up the nasty disease on my forehead. Bangs! It was a great idea...
Veronica: Sjögren's Syndrome (Italy) I am a 30-year-old woman and I have been suffering for three years from Sjögren's Syndrome with highly positive anti-SSA antibodies...
Stories in English: W-X
Walter: Father of Scleroderma Patient In November he received his diagnosis of scleroderma.He is the best son a father could ever hope to have...
Weesie: Crest/Raynaud's I have come to feel that I am am easy pickings for the majority of physicians since they know that there is no cure...
Wendy: Morphea My diagnosis was back when I was in junior high school...
Wendy B: Mother of Daughter with Morphea and Vitiligo Does anyone else have Morphea and vitiligo? And what is the outcome?
Wendy L: CREST Syndrome In 1987 I was diagnosed with Non-Hodgkin's Lymphoma. I received highly toxic chemotherapy, and at a later date radiotherapy...
Wes C.: Brother of Systemic Sclerosis Patient Just days ago, my sister Michelle was diagnosed with systemic sclerosis, after being misdiagnosed for almost two years...
William M: Scleroderma or Lupus I had to give up my career of being a registered nurse (RN) over two years ago due to total disability...
Stories in English: Y
Yally: Dermatitis with Linear/Morphea My daughter has a spot on her left leg, that almost covers it completely...
Yolima: Diffuse Scleroderma I was misdiagnosed for more than a year with so many diseases and given all types of medication for different problems except for the real disease...
Yvonne Frasure: CREST and Fibromyalgia I no longer go to the doctor because I simply cannot afford it. I cannot get insurance so everything is out of pocket...
Yuri: CREST Syndrome Now, one month before my nineteenth birthday, I live with CREST Syndrome, rheumatoid arthritis, acid reflux and anemia...
xStories in English: Z
Zuly: Morphea I would like to help people who suffer from it and get to know others with the same illness...
ENGLISH Stories by First Name: A  B  C  D  E  F  G  H  I  J  K  L  M  N  O  P  Q  R  S  T  U  V-Z
New Personal Stories
Jaci: MCTD and Autoimmune Hepatitis Out of fear of going back to the doctors, I tried just to live with it, whatever it was. What I found strange was that nobody seemed to noticed how terrible I was feeling, not even the doctors...
Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me...
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007...
More New Stories: April 2008
This is a great day to submit or update your story!
Submit Your Patient, Caregiver or Survivor Story in:
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Share or Update Your Story!
We will edit your story, create original artwork to decorate it, prepare it for the web, and post it on this site. Just fill out our simple Story Submission Form for your story, updates, or email address changes.
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