Scleroderma Story Collections

SCLERO.ORG Stories. Over 800 patient, caregiver and survivor stories from around the world, including stories in many languages, including French, Italian, Romanian, and Spanish. Read our Stories. Stories on other web sites include:

Birdman: Roger and Julie Ford, Caring Bridge. Birdman and Birdman's Wife are regulars on Sclero Forums. Stay updated on Roger's pending stem cell transplant here. To update, sadly, Roger passed away on 9-21-09, after having had his stem cell transplant for scleroderma.

Blog: Jackie Sue We Love You. Jackie has GVHD. The blog covers her progress after her mini-allo MUD transplant. Her transplant was the first one to be performed by the Mayo Clinic. Bruce and Jackie. (Also see: Graft vs. Host Disease, GVHD )

Blog: Living With Hope. I have scleroderma, avascular necrosis, cervical spinal disc disease, pulmonary fibrosis, pulmonary aterial hypertension, and several other things that go with these diseases. I was diagnosed in 1991. I am 56. Brian, my husband was diagnosed 3 years ago with early onset Alzheimer's. He is 57. Dee Dee Hunt.

CARE.TV Owner James Barclay was misdiagnosed with scleroderma.

Chasing the Cure. In this book, follow Doris' courageous journey in dealing with an autoimmune disease and sifting through the maze of doctors and treatments, including a stem cell transplant. Doris Razo.

Denelle's Journal. A journal of Denelle's experience at Northwestern during her stem cell transplant.

Amy Daniels' Blog on Clinical Trial at Northwestern Amy Daniels

Kealy's Journey with Linear Scleroderma from Mom's Perspective. Terry Bullard.

Living with Sclero. My life with juvenile scleroderma, in Finland. Epasen (Emmi).

Living with Scleroderma Shirley Wright

Sharon's Stem Cell Transplant Blog, "Spreading our wings in Windy City". Sharon and Craig.

Sjögren's Syndrome by Lynne Messina (a lovely collection of patient stories) About 20% of Scleroderma patients also have Sjögren's Syndrome.

Please see Scleroderma Sites to Surf! for more Scleroderma stories.