Scleroderma Webmaster's Association (SWA)
Scleroderma Sites to Surf!

April 1998 — April 2015

First meeting photo

A step back in time! First meeting of the SWA in 1999.

The Scleroderma Webmaster's Association (SWA) encouraged the worldwide development and recognition of high-quality medical information and support resources for scleroderma.

It was founded by Shelley Ensz, and operated by the non profit International Scleroderma Network from 2002 to 2015.

Now that ample quality resources for scleroderma are available, we have switched to simply linking to such sites within

Original SWA member sites that are still in existence remain listed here, in everlasting gratitude for their service to us all.

SWA Main Page
Site Descriptions A-H
Site Descriptions I-R
Site Descriptions S-Z

U.S. Support Groups
Worldwide Support Groups

International Scleroderma Support Groups

Do you want only the very finest information and support for scleroderma and related illnesses? Then join our friendly, moderated, worldwide Sclero Forums, Chats, Blogs, and Photo Gallery.

We have a world forum, plus special subforums for Australia, the U.K. and South America. Get your questions answered 24 hours a day, by people who really care and who provide solid information that you can rely on! Visit Sclero Forums now. You'll be glad you did!

Also see: Languages and Countries (Main Page)


Scleroderma Email support person for South Africa is Matilda Smith.

(Kiswahili) Kalimani wa Shirika la ISN wa Lugha ya Kiswahili ISN.

(English) ISN Kiswahili Translator: Justus Bahati Wanzala ISN.


Arab Scleroderma Support Group (United Arab Emirates) ISN.


ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.


Australia: Main Listing. ISN.

Scleroderma Association of NSW (Sydney). ISN.

Scleroderma Association of Queensland, Inc. ISN.

Scleroderma/Lupus Support Society of Newcastle, NSW. ISN.

Belgium (Belgique)


Brazil (Português)

ISN: Português Version. Ana Celia Castro and Bernardo Dania

Colombia, South America

Asociación Colombiana de Esclerodermia. Francisco Castellanos, An affiliate of the ISN.

ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.


Canada: Main Listing. ISN.

BC: Scleroderma Association of British Columbia. ISN.

Manitoba: Scleroderma Assn of Manitoba, Inc. ISN.

Ontario: Burlington/Oakville Scleroderma Support and Information Group. ISN.

Ontario: Pembroke Scleroderma Support Group. ISN.

Ontario: Ottawa Scleroderma Support. ISN.

Québec : Kahnawake Scleroderma Support Group. ISN.

Saskatchewan: Scleroderma Assoc. of Saskatchewan (SASK). ISN.


ISN Support Group for Trinidad and Tobago. Susan LeGendre, An affiliate of the ISN.

China (Chinese)

ISN: Simplified Chinese Version. Jie Jackson.

ISN Simplified Chinese Translator: Jie Jackson. ISN.


The Danish Scleroderma and Raynaud's Association, Vestavej 4, 8270 Hojbjerg, Email:

Finnish Scleroderma Association

ISN: Finnish Scleroderma Association, Suomen Skleroderma Yhdistys ry. Maria Paiho-Vartiainen. An affiliate of the ISN.

France (Français)


ISN: French Version by Françoise Kurzen on ISN.

(Français) ISN French Translator: Françoise Kurzen. ISN,

(English) ISN French Translator: Françoise Kurzen. ISN.

(English) ISN French & Italian Translator: Gwen Magnani ISN,.

Germany (Deutsch)

ISN: Deutsch/German Version. Tudor Ionescu and Dorota Dziadzio-Kouris, ISN.

Frau Beate Röpke, Walbecker Str.47, 39110 Magdeburg, Phone: 0049-0391-7318419.

Sklerodermie Selbsthilfe e.V.
Friedhofstrasse 16
74076 Heilbronn

Skleroderma Liga: Unter dieser Adresse kann eine Liste mit Informationsmaterial zur Sklerodermie angefordert werden. Scleroderma Liga e.V. Kelterstr. 23, D-76227 Karlsruhe. Email Christine:

Greece (Greek)

ISN: Greek by Dimitra Stafilia ISN.

ISN Greek Translator: Dimitra Stafilia. ISN.

India (Kannada)

Kannada is one of the many languages of India.

ISN: Kannada Version by Kishori Mundargi, ISN.

Scleroderma (Systemic Sclerosis) Calcutta - Dr. Debabrata Bandyopadhyay.

ISN Kannada Translator: Kishori Mundargi. ISN.

India Scleroderma Support of New Delhi. ISN.


ISN: Indonesian Version by Iona Carina, ISN.


The Irish Raynaud's & Scleroderma Society, P.O. Box 2958, Foxrock, Dublin 18, Ireland Tel/Fax Dublin (01) 202 0184, email IRSS

Israel (Hebrew)

The Israeli Scleroderma Support Group. SD A -Z.

ISN: Hebrew Version. Dina Davidoff, SD A -Z.

Italy (Italiana)

Conoscere la Sclerodermia (Site offline now) Gianalberto Passoni

ISN: Italian Version Gianalberto Passoni, Dr. Magdalena Dziadzio, and Dr. Mario Gismondi, ISN.

ISN Italian Translator: Dr. Mario Gismondi, SD A -Z.

ISN Italian Translator: Dr. Magdalena Dziadzio, SD A -Z.

Yahoo! Gruppi Italia Sclero-IT. Benvenuti nel gruppo di supporto per i visitatori del sito web SCLERO.ORG, la versione Italiana del sito


強皮症とは? by Maki Hasegawa, ISN

ISN: Japanese Version by Maki Hasegawa, ISN.

ISN Japanese Translator: Maki Hasegawa, ISN.

Magyarul (Hungarian)

ISN: Magyarul (Hungarian) Version Torok Aron, ISN.

Malaysia (Bahasa Malaysia)

ISN: Malaysian Version. ISN.

ISN: Tentang Scleroderma Yunus Hassan, ISN.

Netherlands (Dutch)

Mr Peter Berkers, Vereniging Van Vaatpatienten, Bisonspoor 3004, 3605 LV Maarssen, The Netherlands.

ISN: Nederlandse/Dutch Version. Ans Mens, ISN.

New Zealand

New Zealand Arthritis and Scleroderma Support Groups. ISN.


ISN Contributing Author: Dr. Asim Iqbal, ISN.

Poland (Polski, Polish)

ISN Polski Version Dr Magdalena Dziadzio, ISN.

(Polski) ISN Polish Translator: Dr Magdalena Dziadzio, ISN.

(English) ISN Polish Translator: Dr. Magdalena Dziadzio. ISN.

Portugal (Português)

ISN: Português Version, Ana Celia Castro and Bernardo Dania.

Romania (Romana

ISN: Romanian Version. by Krista Lurtz ISN.

Russia (Russian)

ISN: Russian Version. Yelena Makarov, ISN.

ISN Russian Translator: Yelena Makarov. ISN.

Д-р Александра Бальбир-Гурман Dr. Alexandra Balbir-Gurman, ISN.

ISN Russian Translator: Dr. Alexandra Balbir-Gurman, ISN.

South America (Español, Português)

ISN: La Esclerodermia (Español). ISN.

Asociación Colombiana de Esclerodermia, Francisco Castellanos, An affiliate of the ISN.

Escleroderma de A a Z (Português ) Ana Celia Castro and Bernardo Dania.

ISN: Asociación Venezolana de Enfermos de Esclerodermia. Matilde Acosta, An affiliate of the ISN.

Spain (Español)

La Esclerodermia desde la A hasta la Z, Dr. Hernando Rendiles and Gabriela Hebin, ISN.

ASOCIACIÓN de Esclerodermia de España. ISN.


Thailand Scleroderma Support. ISN.

Trinidad and Tobago

ISN Support Group for Trinidad and Tobago. Susan LeGendre, An affiliate of the ISN.

Turkey (Turkish)

A'dan Z'ye Skleroderma by Mehmet Kalender, ISN.

(Turkish) ISN Turkish Translator: Mehmet Kalender. ISN.

(English) ISN Turkish Translator: Mehmet Kalender ISN.

United States

U.S. Support Group Listings. ISN.

United Kingdom

Scleroderma U.K. Forums, Chats, Blogs & Videos. Amanda Thorpe, ISN.

Raynaud's & Scleroderma Care and Support, email, Helpline 07530 810 964.

Raynaud's and Scleroderma Association, info@raynaud', helpline 0800 9172494.


ISN: Asociación Venezolana de Enfermos de Esclerodermia (English). Matilde Acosta, An affiliate of the ISN.

ISN: Español/Spanish Version. ISN.

Go to Australia

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