Scleroderma Sites to Surf!
The Scleroderma Webmaster's Association is a free service of the nonprofit International Scleroderma Network. We all work together to make it easy to find scleroderma resources worldwide!
Scleroderma Sites to Surf! (Main Page)
Site Descriptions A-H
Site Descriptions I-R
Site Descriptions S-Z
International Support Groups
United States Support Groups
For Scleroderma Webmasters:
Invitation for Webmasters
Apply for SWA Membership
Instructions, Logo & Listing
Awareness Banners
April, May, June
International Scleroderma Support Groups
Also see: Languages and Countries (Main Page)
Africa
Afrikaans and English-speaking South Africans Scleroderma Email Support Person is Marthie Duminey, email MDuminey@omnia.co.za. Read Marthie's Story. If you are living in South Africa and are experiencing symptoms or are diagnosed with scleroderma, please become a family member. We need you, to give you a warm hug and a chat and vice versa. Also caregivers, family or friens. We invite you all to feel like a butterfly winging it from flower to flower in a lovely sunny spot,beautiful,warm and nourished. ISN.
(Kiswahili) Kalimani wa Shirika la ISN wa Lugha ya Kiswahili ISN.
(English) ISN Kiswahili Translator: Justus Bahati Wanzala ISN.
Arabia
Arab Scleroderma Support Group (United Arab Emirates) ISN.
Argentina
ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.
Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.
Asociacion Argentina de Esclerodermia Nieves Cavilla.
Australia
Australia: Main Listing. ISN.
Jenny Ryan Foundation. ISN.
Scleroderma Association of NSW (Sydney). ISN.
Scleroderma Association of Queensland, Inc. ISN.
Scleroderma/Lupus Support Society of Newcastle, NSW. ISN.
Belgium (Belgique)
ASSOCIATION des PATIENTS SCLERODERMIQUES DE BELGIQUE. ISN.
Brazil (Português)
ISN: Português Version. Ana Celia Castro and Bernardo Dania
Colombia, South America
Asociación Colombiana de Esclerodermia. Francisco Castellanos, ISN.
Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.
ISN: Spanish Version. Dr. Hernando Rendiles and Gabriela Hebin ISN.
Canada
Canada: Main Listing. ISN.
BC: Scleroderma Association of British Columbia. ISN.
Manitoba: Scleroderma Assn of Manitoba, Inc. ISN.
Ontario: Burlington/Oakville Scleroderma Support and Information Group. ISN.
Ontario: Pembroke Scleroderma Support Group. ISN.
Ontario: Ottawa Scleroderma Support. ISN.
Québec : Dorval: AWISH Scleroderma Support Group. ISN.
Québec : Kahnawake Scleroderma Support Group. ISN.
Québec: Sclérodermie. Robert Gravel.
Saskatchewan: Scleroderma Assoc. of Saskatchewan (SASK). ISN.
Carribean
ISN Support Group for Trinidad and Tobago. Susan LeGendre, ISN.
China (Chinese)
ISN: Simplified Chinese Version. Jie Jackson.
ISN Simplified Chinese Translator: Jie Jackson. ISN.
Denmark
Mr N B Sorensen, Danish Raynaud's & Scleroderma Association, Marievej 25, 3060 Espergaerde, Denmark
Finnish Scleroderma Association
ISN: Finnish Scleroderma Association, Suomen Skleroderma Yhdistys ry. Maria Paiho-Vartiainen.
France (Français)
ASSOCIATION des SCLERODERMIQUES de FRANCE. Dominique Godard
Québec: Sclérodermie. Robert Gravel.
ISN: French Version by Françoise Kurzen on ISN.
(Français) ISN French Translator: Françoise Kurzen. ISN,
(English) ISN French Translator: Françoise Kurzen. ISN.
(English) ISN French & Italian Translator: Gwen Magnani ISN,.
Germany (Deutsch)
ISN: Deutsch/German Version. Tudor Ionescu and Dorota Dziadzio-Kouris, ISN.
Frau Beate Röpke, Walbecker Str.47, 39110 Magdeburg, Phone: 0049-0391-7318419.
Sklerodermie Selbsthilfe e.V.
Geschäftsstelle
Friedhofstrasse 16
74076 Heilbronn
Tel.:07131-161656
Fax:07131-161657

Skleroderma Liga: Unter dieser Adresse kann eine Liste mit Informationsmaterial zur Sklerodermie angefordert werden. Scleroderma Liga e.V. Kelterstr. 23, D-76227 Karlsruhe. Email Christine: Ch.Stotsches@t-online.de
Greece (Greek)
Scleroderma from A to Z: Greek
ISN: Greek by Dimitra Stafilia ISN.
ISN Greek Translator: Dimitra Stafilia. ISN.
India (Kannada)
Kannada is one of the many languages of India.
[Scleroderma from A to Z: Kannada Version]
ISN: Kannada Version by Kishori Mundargi, ISN.
Scleroderma (Systemic Sclerosis) Calcutta - Dr. Debabrata Bandyopadhyay.
ISN Kannada Translator: Kishori Mundargi. ISN.
India Scleroderma Support of New Delhi. ISN.
Indonesia
ISN: Indonesian Version by Iona Carina, ISN.
Ireland
The Irish Raynaud's & Scleroderma Society, P.O. Box 2958, Foxrock, Dublin 18, Ireland Tel/Fax Dublin (01) 202 0184, email info@irishraynauds.com. IRSS
Israel (Hebrew)
The Israeli Scleroderma Support Group. SD A -Z.
ISN: Hebrew Version. Dina Davidoff, SD A -Z.
Italy (Italiana)
Conoscere la Sclerodermia (Site offline now) Gianalberto Passoni
ISN: Italian Version Gianalberto Passoni, Dr. Magdalena Dziadzio, and Dr. Mario Gismondi, ISN.
ISN Italian Translator: Dr. Mario Gismondi, SD A -Z.
ISN Italian Translator: Dr. Magdalena Dziadzio, SD A -Z.
Yahoo! Gruppi Italia Sclero-IT. Benvenuti nel gruppo di supporto per i visitatori del sito web SCLERO.ORG, la versione Italiana del sito www.sclero.org.
Japan
強皮症とは? by Maki Hasegawa, ISN
ISN: Japanese Version by Maki Hasegawa, ISN.
ISN Japanese Translator: Maki Hasegawa, ISN.
Magyarul (Hungarian)
ISN: Magyarul (Hungarian) Version Torok Aron, ISN.
Malaysia (Bahasa Malaysia)
ISN: Malaysian Version. ISN.
ISN: Tentang Scleroderma Yunus Hassan, ISN.
Netherlands (Dutch)
Mr Peter Berkers, Vereniging Van Vaatpatienten, Bisonspoor 3004, 3605 LV Maarssen, The Netherlands.
ISN: Nederlandse/Dutch Version. Ans Mens, ISN.
New Zealand
New Zealand Arthritis and Scleroderma Support Groups. ISN.
Pakistan
ISN Contributing Author: Dr. Asim Iqbal, ISN.
Poland (Polski, Polish)
ISN Polski Version Dr n.med. Magdalena Dziadzio, ISN.
(Polski) ISN Polish Translator: Dr n.med. Magdalena Dziadzio, ISN.
(English) ISN Polish Translator: Dr. Magdalena Dziadzio. ISN.
Portugal (Português)
ISN: Português Version, Ana Celia Castro and Bernardo Dania.
Romania (Romana
ISN: Romanian Version. by Krista Lurtz ISN.
Russia (Russian)
ISN: Russian Version. Yelena Makarov, ISN.
ISN Russian Translator: Yelena Makarov. ISN.
Д-р Александра Бальбир-Гурман Dr. Alexandra Balbir-Gurman, ISN.
ISN Russian Translator: Dr. Alexandra Balbir-Gurman, ISN.
South America (Español, Português)
ISN: La Esclerodermia (Español). ISN.
Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.
Asociación Argentina de Esclerodermia. Nieves Cavilla.
Asociación Colombiana de Esclerodermia, Francisco Castellanos, ISN.
Escleroderma de A a Z (Português ) Ana Celia Castro and Bernardo Dania.
ISN: Asociación Venezolana de Enfermos de Esclerodermia. Matilde Acosta, ISN.
Spain (Español)
La Esclerodermia desde la A hasta la Z, Dr. Hernando Rendiles and Gabriela Hebin, ISN.
Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos.
ASOCIACIÓN de Esclerodermia de España. ISN.
Thailand
Thailand Scleroderma Support. ISN.
Trinidad and Tobago
ISN Support Group for Trinidad and Tobago. Susan LeGendre, ISN.
Turkey (Turkish)
A'dan Z'ye Skleroderma by Mehmet Kalender, ISN.
(Turkish) ISN Turkish Translator: Mehmet Kalender. ISN.
(English) ISN Turkish Translator: Mehmet Kalender ISN.
United States
U.S. Support Group Listings. ISN.
United Kingdom
Raynaud's and Scleroderma Association, 112 Crewe Road, Alsager, Cheshire ST7 2JA Great Britain. Telephone (+44 (0)1270 872776), Fax (+44 (0)1270 883556), Email info@raynauds.org.uk. Anne Mawdsley, Director.
ISN Sclero Forums for Scleroderma Society U.K. New subforum launching soon! Amanda Thorpe. Posted 05-12-09.
ISN: Scleroderma Society U.K. An ISN Affiliate.
The Scleroderma Society PO Box 581, Chichester, PO19 9EW, Telephone: 020 7000 1925, Advice Line: 0800 311 2756, Email: info@sclerodermasociety.co.uk Kim Fligelstone, Chairperson. An ISN Affiliate.
Venezuela
ISN: Asociación Venezolana de Enfermos de Esclerodermia (English). Matilde Acosta, ISN.
ISN: Español/Spanish Version. ISN.
ISN: Asociación Colombiana de Esclerodermia MSN Grupos. Francisco Castellanos, ISN.
Thanks to Judy Tarro!
SD World Email ListSpecial thanks to Judy Tarro of SD World for SWA site design assistance.
Keep on Surfing!
Go to Australia
Contact ISN. We are a full-service nonprofit scleroderma charitable foundation.

Email Inquiry Form (English)
Email Inquiry Form (Spanish)
Email Inquiry Form (Italian)
Email: isn@sclero.org
Or, post a message in our terrific
Sclero Forums Online Support Group!

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702
USA
Toll Free Hotline in U.S.
1-800-564-7099
Direct Line
1-952-831-3091 (U.S.)

Donate in Memory to the nonprofit International Scleroderma Network at sclero.org. We will make a custom donation form and link for you, and send thank you's and acknowledgement cards. We list donors and events in our website and newsletter.

Please help raise awareness of scleroderma and related illnesses by mentioning and linking to the nonprofit International Scleroderma Network at sclero.org in conversations, speeches, web sites, and publications.

(We are also known as the Scleroderma from A to Z web site.)
© Copyright 1998-2009 International Scleroderma Network
All Rights Reserved