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About this blog

Barbara Lowe's Life with Scleroderma

Entries in this blog

 

Stumpy Fingers

Did I ever mention how illiterate I am with computers? It's a surprise to all I imagine, that so much of my time is spent at a Radio Station which actually runs with nothing but computers! I am there at my desk looking all clever and like know what I'm doing -- It's a ruse!   I have spent hours writing stuff, from reports to emails, only to press the wrong button and it all magically disappears - how frustrating. I haven't the will to sit down and begin again. My heart sinks.   My stumpy fin

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Ouch!

Woke up this morning - Ouch!! My back was staying put - I wanted to get up! Sciatica struck at 08.15 on Tuesday 29th January.   So my day begun like a Neanderthal, my knuckles almost dragging the floor. I needed to straighten up, least ways to make coffee which I desperately needed, my mouth like the inside of a Rabbit hutch.   Reaching for the jar of coffee with a little Argh! Just lifting the kettle for water did nothing to help my posture.   Cats gathered around my ankles assuming to be

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Momma Used To Say

My Momma used to say, "just wait until you're old" When your back goes out more than you do and begin to feel the cold Back then her words were unheeded I was young, why should I care? I'm too far away from fifties, it was a lifetime till I was there.   I'd go outside in winter, build a snowman, cold hands would warm by the fire With feet so cold inside my boots and skimpy outdoor attire "You'll get chilblains" my mum used to cry, and then you'll get what for But those words meant nothin

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Snow-Ma-Geddon

Snow they say!   Well it's certainly cold enough. The mere mention of the word and everyone buys bread- Why?   I'd wrestled with a wonky wheeled trolley all round the supermarket. I'd bumped. bruised, and bore the brunt of many a screwed up face and said "Sorry" more times than a child with a broken piece of China! I was worn out when I reached Checkout.   In front of me was a lady, you know the type. A busy little bee type who was keeping up with the cashier, throwing things into bags, bu

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Cats Everywhere.

Heating on! Now where are my boots?   Those flakes were growing in size, Mmmm! it may be sticking. The cats certainly thought so. Note I say cats yes I now have a menagerie! One Meowing, one stretched in front of the fire and one sat on the work top -- Sat on the worktop? "Hey Geroff"   Meeeoww!   Beastly thing, I've just spent ages cleaning the worktops and trying to get rid of the smell of curry from last night. The containers are in the bin and I'm not going out - not yet to put them in

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Shocked

There's absolutely nothing remotely humorous about a Hospital or doctor's appointment. It's just something you get very used to and - yes we do need them. I've been to-ing and fro-ing for much of the 13 years since diagnosis. Monthly appointments and stabbed so frequently for blood that my body is a not a temple but a colander. I've driven home with arms aching and bruised and the last time I was there - electrocuted! Yes, I testify, I was actually shocked, not in a surprised sense but physicall

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Here Kitty!

I've never been the brightest button in the box, according to some. I was never top of the class in high school except one subject where I excelled my own expectations and probably that of the teacher too, Biology. Yes I could sex a Frog, knew the gestation period of a Newt and claimed top marks for drawing an Amoeba - it was rather good, I had all the shading in the right places. I was good at drawing too but I was ridiculed in Maths, numbers never added up for me. I never seemed to have enoug

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Respite or Frostbite

It was meant to be a quiet day. I hadn't reckoned on my daughter having the day off from work and I found myself rolling out of bed to the sound of a 7am alarm and wondering why she was still in bed?"You don't listen Mum. I told you last night it's my day off. Now I'm never going to get back to sleep" Well, since I was already up, I might as well stay up and Steve was already heading for the bathroom, so the next question would be:"Make us a coffee" It wasn't long before Steph joined us enquirin

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Just call Me Babs

Here's my first attempt at a blog for almost 3 years. I'm a bit rusty and corroded around the edges but none the less here goes!   I live on a farm of sorts. I have a house that is begging to be finished, a Husband with gout, a 22 year old Daughter with boyfriend in tow, one house cat, one visiting cat and one Goat. I have 3 walls, one conservatory with no doors and our 6th December Holiday under renovation but we are getting there. I have Raynauds, Scleroderma, Cervical Spondylosis, Arthriti

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The incredible Shrinking Head!

You can tell it's March -- Things flying about the yard, yep! there goes a Chicken, not entirely the direction it was heading but when the wind took hold it ended up right in the middle of the field. Today has got to be compared to a mild hurricane. It almost blew me over and the gust took me up the yard the fastest I'd gone for years!   I was glad to be home and watch stuff through the window. Stuff like twigs, chickens, an old plastic bag and the old gander trying to stand proud and looking

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Taste Of Spring

Today is what I call one of the first days of Spring! Glorious sunshine from a big round thing that is quite a stranger to these lands of late. It was a pleasure to come home and enjoy a degree of warmth on my starved skin.   I pulled up to the gate to a welcome party of feathered friends who crowed,squalked and flapped at my arrival and then out of nowhere the Gander came charging down the drive with neck outstretched and hissing! I was just about to kick out my leg when a guy stopped me to a

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Filling In The Gaps

I'd completely forgotten what it was like to have a whole week away from work -- well if you can call it that! Since taking a voluntary role at the Radio station my life has gone from four walls, well three actually. Did I mention we never did complete the gable end and we still have panoramic views from my stairway? Yes it's true that we survived two of the worst winter's on British record with a hole as big as a tunnel entrance, facing North too I might add! The geese walk in and out, so do th

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Six Jobs!

Another day at the Radio Station, my these weeks are flying by! It was kind of a hard day today since I got up too quickly this morning, treading on the cat downstairs, then stubbing my toe on the table leg. My hubby was dishing out daily instructions but to be honest it went in one ear and out the next! My daughter emerged from the dark room where no one ever goes, looking somewhat similar to how I felt and the first word from her lips was "Mum can you make me a drink?" The second sentence wen

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Twice The Woman -- Half The Size

Seems so strange finally being here and able to type into the forum. I've been a stranger in these parts for far too long and I've dearly missed having a moan or a titter to those who share a common bond, although Scleroderma has become somewhat of a stranger to me these past months and I guess that's something to be glad about. I no longer have the time to think about what the future holds. My day at the radio station is full of current news and interesting folk passing through. Sound checks,

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In The Wilderness

Not sure if this will appear on the blog site but here goes!..... My absence, although caused by personal issues, was not entirely due to my lack of availability, oh no! my ISP saw to that. I've been blocked out since October last year. So here is my rather long and tedious blog that you've probably all been waiting for?   I'll begin with today, Mother's Day in the UK. I was up and fully dressed by 7am. My hubby was off to work and my car was blocking his in the yard. I'd bought daffodils more

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Heelloooooo! Is anybody there

:emoticons-yes: I'm writing this little rhyme To see if I get in this time It's been some while since I was here So before I start I'll pour a beer!   Bet you thought I'd been real sick And No! I haven't turned alcoholic Just my twisted humour I really do not drink But getting onto the forums has really made me think!   I've had a few problems and "Boy" I've been so busy It's really no wonder I haven't turned to the fizzy Doing stuff for the radio and busy being in demand I've never

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Just Stuff!

I've been so busy with this'n'that, I've hardly had the time to sit down and relax. The radio work is exhausting but great fun and I'm finding myself getting more heavily involved than I'd set out to do. I was made Marketing and Production Director because of my previous business experience and although my services are voluntary, I'm thoroughly worn out!   I've interviewed famous and not so famous people over the past few months, the most interesting people are usually the ones who are not fam

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Medical Miracle

Brrrr! I'm so cold. No matter how much clothing I pile on it makes little difference! I feel about as bare as the trees at the moment and yes, they are dropping leaves at the rate of knots making my drive extremely slippery. My fire won't go and I'm fast losing patience with the thing. I piled on loads of wood and even a firelighter to boot but it flickers with a solitary flame and enough smoke to send signals.   My yearly appointment is one to look forward to tomorrow -- not! An early morning

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Me Time!

How do you define a hectic week -- taking the kids to school, hospital appointments, job commitments and family duties. Just stop and think for a while -- What about me? I'm burned out, no energy and feel like I've been hit by a 37 bus full of passengers and in the midst of it all I can't remember my hospital appointment date which I'm sure I've missed, my hair salon appointment or where I'm supposed to be with who, where and when. If ever there was a case for short term Alzheimer's, I'd probab

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Gremlins

Something's going on here of which there is no cure I'm wandering in blog land, don't belong here I'm sure I really feel umwanted, the gremlins locked me out And even with a little push my presence was not about I tried in vain but to no avail My fingers turned a whiter pale I tapped and screamed but the site wasn't playin "Don't recognise you!" I think it was sayin So I sat and sulked beyond despair Thinking, I would never get there   My fingers numb and patience thin I was never go

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Silver Screen -- Not Exactly!

Well the day started with me arriving at the station right in the middle of an interview with the Mayor. I was set upon by burly bouncers and ushered outside until the co-ordinator realised that I was a presenter and not some stray fortune seeker. Cameras everywhere, cables, lights and people talking in corridors. I recognised a TV presenter, much smaller than I imagined and very stern, not at all like the face I knew from the box! There were lots of fingers on lips, "Sshhh!" and whispering. I w

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Living A Lie!

There's a definite nip in the air! I went outdoors this morning just to let my hubby out of the drive, my car was parked behind his, and I could see my breath. The car was damp and cold and, yes, my Raynaud's was in full bloom. The end of summer is here. "Huh! what summer?" I hear some of you scream, well you'd be right of course! We've had little or no summer at all, perhaps one or two days that actually felt like it should and my, how the weeds grew!   My skimpy tops stayed in the drawer and

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Another Fun Day

Trying to write this is nothing short of impossible. The kitten loves the keys and he's walking all over the keyboard. I got up early because he was making the most awful wining sound, only to be greeted with a huge "meeeoww" as I walked into the room. My daughter had thrown him out of her room in the early hours, a playful kitten at 3 am and a grumpy teenager is not a good mix. He's adorable such a character and you can't help but like him but the attention he requires is nothing short of dev

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TV Star!

I can't help but be a wee bit excited. It's been a funny old week! We got a kitten straight from boot camp, believe me he's small but a huge handful! Then, I've had the most amazing news, --- I'm about to be on TV, yes me! The BBC are coming to the radio station and filming a documentary about our station -- we are rather good you see!   The station runs purely on volunteers and over the past 12 months we've grown in popularity, not only locally but world wide. I now have my own show on Satu

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Kitty Cat

Funny, how an eighteen year old can flicker her eyelids and cuddle in such a disearning way as to sweigh my hubby into submission and me fighting her corner in a way I haven't done since she was a nipper. Her constant plea to own a kitten, fell upon deaf ears on almost a weekly basis and I don't know why but he relented almost out of the blue?   Before long we were travelling high into the Pennine region way above Pendle Hill on a rainy, misty Wednesday evening in search of a Persian Cat Breed

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