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About this blog

Barbara Lowe's Life with Scleroderma

Entries in this blog

No. 1 Member Of Memberships

The more I write, the more I seem to be volunteering for. Don't get me wrong -- I love it! I'm a member of PINNT, an organisation in the UK which supports people on artificial nutrition. The word PINNT simply stands for Patients on Intravenous and Nasogastric Nutritional Treatments and Yep! that's me. I found the organisation in a little pack I received from the hospital and duly contacted them for information -- I do like to know I'm not on my own, I think you get the picture! They liked my

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Big Day For Me

Well tomorrow is the day! What day? I hear you say. Well, the one where I reluctantly travel to the hospital for what I can only describe as torturous to say the least --- call me chicken, I don't mind! I'm talking about the dreaded endoscope. There's not much I can't say I've had done to me over the past few years and although it takes very little time, it still has to be my most least favourite test of all. The trouble is they can't sedate me and shoving what resembles a garden hose down

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Wild Goose Chase

I would imagine that most people would spend their Saturday mornings either tucked up in bed or doing something more pleasurable than trudging muddy fields with a stroppy teenager and hubby on a mission and a father-in-law with angina, searching for geese! My Saturday began just as that. The neighboring farm paid us an overdue visit to say that the gander had been terrorizing his mother in the kitchen -- I knew which one of the bunch that was -- he loves his piece of bread in the morning! Th

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The Incredible Hulk

My life unfortunately seems to revolve around hospital waiting rooms and five minute meaningless appointments which have you whirling around a system which doesn't work. I mean, Who am I? I'm not the sharpest knife in the drawer nor am I the smartest person on the block but, please! I'm not stupid. I sat in a hospital room with my daughter, it was her appointment, one she has waited for after a series of mess ups over the last 4 months. In this room there were people of all ages, sex and nati

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Looking Ahead

I was asked recently how I remain so cheerful! Fact is, I hadn't realised I was until now. Life goes on, doesn't it? And if you live in the past or dwell on what could have been, then you'll never move forward. I'd like to involve myself with more projects and I guess that's my New Year's resolution although I never intended to make one. I can't vow to lose weight, take on a fitness programme or return to work, though that would be my dearest wish. I guess my life has changed in so many ways

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New Year --- New Me?

Continuing into 2007 without any New Year resolutions, I guess one year merely carries on to the next. Scleroderma aside and all the problems along with it, I wonder what life has in store for me in the following months. One thing is for certain, 2006 wasn't all that bad. It wasn't a vintage year nor was it anything to archive as a memorable era, but at least I got through it without the dreaded hospital stays. Finally in a house, albeit unfinished, and enjoying a huge amount of space to loun

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Wierd Festive Cheer

To say that I've been quite busy over the festive period is probably the understatement of 2006. I'd forgotten how much hard work was involved planning a family get together and a consequent huge dinner to end the day -- I was simply out of practice and unprepared! They base TV programmes on home makeovers and celebrity chefs. I did the best of making a shell of a home a place fit to hold a banquet and I must say no one noticed the hard work, good or bad, and I guess it was all worth it in th

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What A Week Dec 18

My diary has been so full ---- I hardly know where to begin! We got the carpet down after a marathon 24 hour session. It was pouring with rain outside, freezing cold, windy and fairly miserable. The carpet fitters commented about the mud outside and I stood hands on hips making sure they didn't get past me with muddy boots. Anyhow, after four hours it was all over and what once looked like a house on a building site, now looks like a home..... on a building site! The geese are still reluc

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8th/9th Dec

Had a week of non stop work in the house. The carpet arrives in less than 4 days and I still haven't got a ceiling in the front room. The stairs were hard work, I felt like I was in a silent movie, what a par larva! They were heavy and unbalanced and holding them aloft whilst my hubby drove in the bolts, was far too much for me. I was in a very uncompromising position at one point, not knowing which way to go. In the end my hubby rammed a pair of step ladders under the whole thing and that hel

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Insomnia

The clock is ticking and I cringe at every chime I can't catch my sleep at this moment in time I went to bed coz I was sleepy and really needed the rest I'd been having a "one of those days" and didn't feel my best My shoulder ached, my neck and lower back too Going to bed early was the only thing to do   Its 3am in the morning, I'm starting counting sheep Tossing and turning, restless but I still can't get no sleep! The covers on the floor and I pick them up again I can't close my wea

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Dec 7th

Y'know the saying, if it can go wrong it will! I'll have that inscription on my headstone for sure, or "I told you I was ill!" That was of course a famous quote from one of our finest comedians, Spike Milligan! My phone line has been off yet again. The storms brought havoc and my poor line has so many joints in it now it looks like a broken licorice stick! Of course my internet service was disrupted too, so for the last couple of days I've been twiddling my thumbs. It's only 6 more days befo

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Dec 3rd/4th

Gee! What a busy weekend and so blustery weather-wise. It felt as though a typhoon had hit the trailer -- we were certainly rocking and rolling! It's not right though, the weather I mean. 8 degrees this morning-- that's about 44 degrees to you and me. I've never got the hang of metric somehow, I prefer the good old system, Fahrenheit, Pounds, inches, etc., instead of Celsius, Grams and Centimeters. Europe, in it's vision of a united state, huh, it will never happen. We're still an island an

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Dec 2nd

Well!. Turkey's ordered. I made a calculated guess this year going for a modest size bird instead of the Emu I normally buy. I thought it would be a good idea to put pork with the turkey instead of a mountain of the stuff on the plate and since the people coming to dinner don't eat much anyway, I reckon there will be more than enough as usual. My hubby had a sulk when the mention of money came into the equation, questioning me in the shop as to whether we need all the paraphernalia of accessor

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December Diary

1st December.   We've got 24 days 5 hours and counting. The Turkey not ordered, the shopping not done, the family in high expectation, am I in trouble -- You Betcha! The house is standing still, work has stopped-- guess why? We began to put in the stairs then catastrophe struck! The ceilings are not high enough to take the rise as tested by myself with a very sore head afterwards. The events to follow are that we need to take out some of the floor upstairs to accommodate the steps. Now I'm

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Past Times

I visit my parents regularly, every day in fact. They live in what we call sheltered accommodation for the elderly. It's a great little place. The heating, electricity, rates and rent are all taken care of by just a minimum payment each week. The cold winter months can be deadly for the old and infirm, but I'm pretty much satisfied that my parents at least will be nice, warm, and taken care of during that spell. We sit in the apartment and talk about all the things we did in days gone by. T

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My Life

I love reminiscing, I have many happy memories to share Like when I met my hubby, in a pub with all my friends there He was kind of popular, I was just shy and coy We were such an odd couple, he was just a boy My friends all dared me to speak to him and make the very first move But I was slowly diminishing, my bravery I had none to prove So I stood on my lonesome and looked around the room Just waiting to be whisked away or face my pending doom Then a solitary figure stood right beside m

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Therapeutic Shopping

This week has got to be amongst my seven least favorite days of the year so far. Apart from finding an appointment for an endoscopy, I've also suffered at the hands of the dentist. I made my way, rather reluctantly, to see my dentist for the 3rd time this month. I had a tooth extracted that in truth was less painful than the hole it left behind and for some strange reason, my lower set began to ache as well. Now I'm not the suspicious type but it got me thinking whether my dentist had purposel

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Just A Moan

My outlook on life is simply this-- those who have and those who have not. Those who have have everything, whilst the misfortunate one's are forgot I consider myself fortunate for all I seem to suffer Is just neither one thing or the other Sure I have my bad days and sometimes more often than fair But I have plenty to feel good about, these day's I'd love to share   I have a sense of humor, that one thing keeps me sane And I'm sorry if I sound like I'm being a frightful pain The laugh

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A Year To Er! --forget?

Just when you thought it safe to boast about life in general and how it's been treating you lately -- Whoosh! A bolt from the blue--you're hit with a problem. Not only has my poor 'achin' jaw given me grief since the extraction of a fractured nasher two weeks ago, but I've also got a cricked neck and the telephone man cut through my phone cable. So not only do my geese run off with my phone cable, the engineer snips it whilst up a pole and ran off with it too! Here I am, toothache, stiff neck,

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House Is A Home

The countdown to you know what has begun. My carpet arrives on the 13th and, are we ready? Well, are you ever ready for the festive season? My husband stands ceremoniously in front of me with a bucket of plaster in hand looking at a job begun last year and pondering if it's a go-er today. I'm talking about the ceiling. We can't put a carpet down on a floor that's about to be covered with plaster,--fact is, he gets more on the floor than the wall and short of me getting up there and doing it

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Local Accent

Listening to the radio this morning made me smile, I even laughed. The subject was Lancastrian English. Okay, so what's that, you may ask. Well here in Britain we have local dialect for just about everything. It's said that in Lancashire you can pin point the exact street in which a person lives by the way in which he/she speaks. My Uncle was unique in many ways. His accent so strong that he sounded foreign. He'd start a conversation which had you wondering what the **** he'd said two hours l

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Family Roll

I hate early mornings. I know I'm not alone, but it's not the getting out of bed bit, it's the daily routine of making sure the family unit gets to their given destination, namely school and work on time safely. I feel like their personal chauffer-- give me a hat and uniform and I'll fit the bill perfectly. It doesn't matter how I feel, but I guess that's the beauty of being a wife and mum, soldiers to the cause. My routine begins before 7am with the roll call. I can hear the geese making th

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A So Special Friendship

Oh, Y'know I love a chat, so much so that we had a mute budgie only because he couldn't get to practice. I do rabbit on, my hubby say's so. I have a friend, Yes, I do actually have one, believe it or not! And she can talk under water without coming up for air, how about this? She rang me earlier to tell me about her weekend trip to a haunted mansion. It sounded great but all I could manage to comment was "Oh and Yeah!" She waffled on for an hour. At one point and in the same breath, she inq

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Endoscopy Awareness

Of all the procedures I've had over the last 10 years, an endoscopy has to be the top of the list for avoidance. I dread the very mention of the 'E' word as it brings back two years of hospital stays and illness and I thought I was through with all that! I can't think of a worse procedure, I'm sure there are plenty and I'm sure that in my last 10 years there have been far worse situations but, an endoscope is my worst phobia and we all have one, don't we? It's not that I'm frightened or the f

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Dreaded Endoscope

That letter finally dropped through the door, my endoscopy date I dare not even open it, coz it's the one most thing I hate Having a tube stuck down your throat is really quite an ordeal And to say you can't eat beforehand you miss that little meal First they get you to drink some stuff, I'm sure it's meant to calm And the performance that goes before it assures you of no harm They don't tell you half the story and that can make you suspicious But you know that deep down inside the proced

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