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Barbara Lowe's Life with Scleroderma

Entries in this blog

Pity Party!

Up at 05.30 in the morning to the sound of the cockeral's crow, aching leg; no, killing leg and a shoulder that refuses to move. It's going to be one of those day's! Wiping the sleep from my eyes is a joke, I never got any. I heard the clock strike every hour and I tossed and turned like I was on a spit. I hate middle age and I hate scleroderma!   My mum used to complain about aches and pains, indeed I remember thinking "I hope I don't end up like that!? Guess what? I have! I've become my mum

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Piggy Sniffles!

I wrote this rhyme for jaxs and you Here's hoping I don't come down with flu I hope no offence at the following line For the flu I don't want happens to be swine   There's so much about it, It's everywhere In the papers huh! like they care It's all bout statistics and I hope I'm not one I think I'll stay in till the virus has gone A dose of the plague I'll do without please Ill be off to the doctor's if I as much as sneeze   Talk about stories and this one is big Catching epidemics

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Never Too Late!

All is not lost!...... What am I talking about? This blog will sound like an advertisement for get up and go and I can assure you it's not!   I can't believe how much my life has changed in the last 10 years and none more so than in the last few weeks. There I was sat at home trying to twiddle my thumbs. I was thinking my working life was over and perhaps I had nothing more to give. I have an autoimmune disease and fast aproaching 50, what had I got to look forward to -- let's be honest?   I

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Can't Sleep!

Can hardly focus, my eyes are sore Another night, can't stand no more I've got pain in my shoulder and in my tum No sleep last night I simply had none My hubby snored on every breath And out of the covers, I'd catch my death My pillows fluffed high I was almost upright But it became clear I wasn't going to sleep tonight.   I watched the day break and heard the bird call I hadn't slept a wink at all And hubby snored on as he tossed and turned Whilst the fire in my stomach constantly b

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Computer Blues!

Wires everywhere, sticking plugs in and out of sockets, sore fingers from tapping the keyboard, inserting disks that no longer work -- yes! I've had computer trouble. My computer died last week right when you least expect it and right when you really didn't need the expense!   We're off to Crete on Tuesday and if that isn't expensive enough, a new computer has added to a huge amount of spending to our budget this summer. It's a tool that we've become reliant upon. I never thought I'd ever say

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Passports At The Ready!

Just one more week to go until we board the plane for Crete! This will be our second trip this summer and I'm already planning our third. I guess I'm obsessed with the Greek isles but in reality I'm looking for respite. I feel much better in the sun and it's wonderful to be pain free even if it's only for one week!   I do it every time. "I won't take too many clothes" The truth is I always bring back a suitcase full of unworn items proving my husband was right once again! The sight of a small

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Yikes!

'Oh My Goodness' My first solo radio show, completely unscheduled -- the DJ broke down on the motorway and I was already there! It's true that I'd been training so I wasn't too overwhelmed by it all but none-the -less I was still nervous. The radio news came in and then I had to speak; my first words uttered from my lips and so began 3 hours of music and chat, totally unrehearsed and straight off the top of my head!   I had been sitting in co-presenting for about 1 month. I was no stranger to

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Memory

Monday morning, so begins another week--- Let me see? Ah yes! Sore leg, hip and aching joints. I had to comprehend getting out of the bed this morning, firstly shuffling to the edge and then ... wait for it! One leg out and another still to go. I finally straightened up to every bone creaking like an old ship lost at sea.   I'm 49 in exactly one month's time. I feel 79. I have to accept that I can't rush around as I once did. Age related or not, I'm just not capable. My head tells me I'm 18

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The Enema (Personal story of constipation)

That rumbling ache gripes down below A gentle reminder that I must soon go So off to the bathroom I trot again Trying to relieve myself of pain   It ain't no fun trying in vain This awful gripe is driving me insane Straining and pushing for all you're worth My, It's almost like giving birth! It really isn't funny although some would smile When you haven't been to the toilet for a while   You don't need an audience, in fact that's what I got Some awful cold liquid up there was shot

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Thinking About Crete!

Well, it didn't take long to see the return of blue fingers and aching limbs. I'm certain that my fingers sensed I was close to home 37 thousand feet above Sardinia. Out came my socks and cardigan whilst others on the flight sat with shining tans and strappy tee shirts! I sat for a while shivering before succumbing to the cold and placing my second layer over the top.   The flight attendant noticed my quick change and commented --- "Too much sun eh!"   "Not enough" I retorted   I was not

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Bunged Up!

Well, it's been such a hectic month -- where do I begin? Firstly I've been to Crete on a somewhat whirlwind trip, totally unprepared but extremely the right thing to have done in my present set of circumstances. My father's demands became far too much for me to cope with and I was literally running two families, running around like a headless chicken.   My weight plummeted and I was beginning to look rather skeletal. My clothes were hanging off my hips and half of the clothes in my suitcase no

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Ignorance!

Ha,ha, ha, hee, hee, hee. The sound of laughter directed at me In a daft hat and sensible shoes And my fingertips have got the blues Yes, I was nineteen a tender age And had just begun to earn a wage   Look at that, what could it be? I didn't understand then, you see It seemed the perfect party trick Didn't know it would make me sick First it was one, then two and three First on one hand, what was happening to me? Then it was both, something not right So I went to the doctor that

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Germs

With all this talk of swine flu and other threatening diseases, is it any wonder why people are hypochondriacs? We've all heard of man flu, bird flu, swine flu, whatever next I wonder? It makes you want to stay indoors and avoid contact with anyone.   I sat uninvitingly close, next to a lady in the hospital waiting room, her nose red from blowing her hooter into a pocket full of tissues which were full of holes. An occasional smile my way from her white complexion said it all really: I ought

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Wish It Was Tomorrow!

Yawn! Here goes another week. My daughter will shout from the top of the stairs "Mum have you made my sandwiches?"   Hubby will scurry around for his car keys and then ask me for his clean uniform. The TV is on for no other reason than the morning news, which does not concern me. It plays to itself in the corner. The day looks fine, I'm in my pyjamas, but wait -- not for long, I'm off to the hospital for an appointment with my GI man.   I hate the long drive through endless road works and t

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Gift Of The Gab

What a week! I'm quite pleased with myself and with good reason to be so. I've done the first week of training at the radio station so forgive me if I sound a tad boastful. I was extremely nervous when faced with an open microphone and the whole world hanging on my every word. Sorry to sound so dramatic, there may have only been several listeners but to me it was preaching to the masses!   I stumbled a little at first, my nerves got the better of me. It took a further few minutes to calm down

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Boyfriend!

Wiping the sleep from my bleary eyes, today is Thursday and my very first day of radio training! I've just got up, looked in the mirror and, Yikes! My hair has taken on a new style. I look petrified, oh no, not today of all days! Not that anyone will see me, that's the beauty of radio but for my own vanity something must be done! You see we went out last night with Steph and her new boyfriend. There was I trying to make an impression, hubby was already making one and Steph sat nervously as she

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Up In The Hair!

Pondering a visit to our local Tuesday market, then deciding not to go -- it's one of those kind of days. I was at the hairdressing salon earlier to get my untidy locks trimmed and into shape. I commented that even when wet after the initial cut, it would do, never mind the drying bit! Anyhow I'd paid for a cut and blow dry so whether I wanted it or not I was having it!   "Your hubby might treat you this evening," she said (she being the hairdresser).   I smiled and left the salon. Why do pe

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Farm Life And Coffee!

Today looks pretty grim. The pitter patter of rain woke me from my sleep in the early hours and since we haven't seen much of the wet stuff this spring, I suppose it's welcome for some farmers. The only problem is when it starts, it doesn't know when to stop! For the time being my potatoes will appreciate some untreated wetness as will my peas and beetroot no doubt.   Hubby has dreamt up another hobby-- Bee keeping! And I've been on the net looking for hives and equipment, something tells me t

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Penny For Your Thoughts (Hospital food)

My thanks are to Penny for the time she has spent For every last word, I knew what she meant Hospital food leaves a lot to be desired If I had my way the chef would be fired For I've spent some time in a bed on a ward And mealtimes came round at times it was hard I can no longer eat and although it's a shame I had a lucky escape all the same   You don't have to eat this muck one said As she pushed it away from her bed I thought I was hungry but boy when it came I think it was some an

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Typical Saturday Morning

The goats are chewing happily in the field. The geese in similar mood are preening themselves in the yard and the cat rubs herself against the kitchen table with a loud purr. All seems sublimely peaceful in the country until the situation changes with a scream from upstairs.   "Muuumm! There's a bird in my bedroom come and get it out!"   This little frightened bird clung to the curtain rail not knowing what to do as I entered the room. It had flown in through an open window and it succeeded

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Radio Ga Ga!

Ahh! the end of the week and my one and only purpose of getting myself ready to go out and into town is the fact that it's the day I present my little slot on the radio. Things are about to change with the little slot becoming an extended show and me, yes me, a presenting DJ-ess.   Today I sat with my most favourite presenter at the station. He's my favourite because he makes me laugh and makes me go all unnecessarily unprofessional as he pulls faces as I try to describe my Dish Of The Week.

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Everything's Coming Up Roses!

Everything's coming up roses -- well peas, potatoes and carrots, that is. I've achieved a successful veg patch without the pitfalls of a novice. Why, I was even called an expert by a passing friend who called in to say hello! She went away with a box full of the fruits of my labour, tomatoes, cucumbers and some little chilli plants from my greenhouse. She was amazed by my achievement, none more than myself because all I've ever managed to grow in the past is cress.   "What's your secret?" she

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The Perils Of Being Thin!

Things were so different when I used to be fat Oh, by the way I didn't mind being called that! All the jolly woman don't have issues with their weight That explains a lot then, now I'm a sickly size eight   Once my rounded figure was one for those to mock Could never find an outfit or a suitable frock I always felt discomfort in jeans that were to tight And had to battle each morning, the zip was a fight Lay on top of the bed in an uncompromising position Daren't breathe out for fear o

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Half a Century Spouse!

Well, my hubby hit five-0 over the weekend and I couldn't help but tease him a little. A gentle reminder told him that I was still in my forties, albeit just 18 months behind him! Of course he stood some very snide remarks from his friends who labelled him as officially an "Owd Chap". Fifty is surely a milestone and one you never think will happen to you.   Well, he was given quite a few bottles of whiskey and he sat for most of the weekend with a cross eyed look and permanent grin on his face

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Slim But Not Shady!

If I have to blow my nose one more time.... The dreaded cold is back! I'm tired of sniffling and wiping my conk until it's red and sore, lovely subject by the way! My daughter even gave me a pack of her tissues which are mentholated -- imagine carrying those around with you all day? Everyone close by was breathing pure fresh air on account of my sneezing episode which brought out at least 4 handkerchiefs in one go!   Serious issue now: I've lost more weight -- a full 7 pounds. That may not s

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