I've been thinking about this for a while. I attend a meeting in Manchester, which has roughly 10 members each month. We've all become great friends as well as raising funds for The Raynauds And Sceroderma Association here in the UK. I live some 25 miles from the meeting place and quite frankly it's becoming too much travelling for me of an evening. Sometimes it's quite late when I arrive home and then I don't feel like driving home most times!
I thought it would be great to start my own local group as most of the other meetings tend to be in the cities. I asked the Association for some help and they placed an article in the quarterly magazine which featured my request for a local meeting, plus my contact details. Last night the phone rang and it was my first lady who was very interested in helping to run the group! She said she was quite elderly and had battled with sclero all her life -- would she be of any help? I gave a resounding yes! I went on to explain that there are a lot of younger people with the condition who, without mincing words were scared for the future -- she was living proof that sclero can be managed and can live a full, evenful life if not healthy!
I'll keep this blog updated ----- Watch this space.