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  1. Yesterday
  2. Information About COVID-19 for Scleroderma Patients. Patients with scleroderma should take extra precautions to minimize the risk of getting COVID-19. Scleroderma News, 03/19/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Well, my doctor is stumped, she has no idea what's going on, extended my antibiotics 3 more days, doing 10 minute salt water soaks, fluid leaking from wound after soaks. I think it's time for a specialist. Blood circulation very poor in that finger. This all started in 1984.
  4. Last week
  5. Differential expression of the inflammasome complex genes in systemic lupus erythematosus (SLE). The data in this investigation emphasized once more the important contribution of inflammasome in SLE-associated inflammation. PubMed, Immunogenetics, 02/05/2020. (Also see Causes of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. The infection is deep inside the finger, it started to drain on the 26 and 29 (clear liquid and blood), but still swollen and painful, I think they need to keep me on antibiotics for a few more days.
  7. Impaired Swallowing Linked to Depression, Lower Quality of Life in Scleroderma, Study Finds. Swallowing trouble in people with scleroderma is associated with lower quality of life and a higher incidence of depression, a study found. Scleroderma News, 02/05/2020. (Also see Dysphagia and Depression) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Hi Ronald, Sorry that you are still having so much pain and problems. I guess that you may get to the point that you feel that the finger is worth less than the pain. I hope you don't, but people live quite happily with a lot less than 10 fingers. Medical grade Manuka Honey might be worth a try if nothing else is working. Good luck, whichever way things go.
  9. Hi Margaret, My finger has been a problem since June 2019, an ulcer that won't heal. A couple weeks ago it started to get worse, then swelled up and got infected, it was throbbing all the time and the entire finger was red and swollen. Been on oral antibiotics since 24 March, it has not got worse, but has not got that better, it did start to drain last night (bloody discharge, maybe pus?) I stopped antibiotics Monday, hope it's better. I don't like taking antibiotics. My doctor told me take them or lose the finger. Not much of a choice.
  10. Why your Valentine might want hot chocolate for that walk on the beach. Drinking cocoa rich in flavonols might make walking easier for some older adults with poor circulation, a study suggests. Reuters Health, 02/14/2020. (Also see Food Guide for Autoimmune Disease and Illnesses) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. Morning Ronald, I don't have scleroderma but do get awful, swollen sores next to the nails. An antibiotic ointment and bandaid (for protection) seems to help with the pain and infection. Some takes day or a week to heal. Take care, everyone. Margaret
  12. Maternal hypertensive disorders (HDP) in systemic lupus erythematosus (SLE) pregnancy and future cardiovascular outcomes. In women with and without SLE, HDP were associated with a three-fold higher rate of hypertension. PubMed, Arthritis Care Res (Hoboken), 01/31/2020. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. Regulation of skin fibrosis by RALDH1-producing dermal dendritic cells (DCs) via retinoic acid-mediated regulatory T cell induction: A role in scleroderma (SSc). This study identified a critical role of dermal DCs as a regulator of Treg development through RALDH1 in bleomycin-treated mice and possibly in human SSc. PubMed, J Dermatol Sci, 01/15/2020. (Also see Dendritic Cells) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  14. An Alzheimer’s Treatment Fails: “We Don’t Have Anything Now”. Drugs to fight brain plaques were tested in people genetically destined to develop dementia, but the drugs failed. New York Times, 02/10/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  15. Angiotensin II receptor agonist antibodies (AT1R-AAs) are associated with microvascular damage in lupus nephritis (LN). AT1R-AAs are prevalent in active LN patients and are associated with histologic features of microvascular damage. PubMed, Lupus, 2020 Feb 10:961203320904787. (Also see Antibodies in Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  16. Earlier
  17. Hi Ronald, Sorry that your digital ulcers are such a painful problem for you. Thankfully, I've never suffered with them, but I would imagine that if they do become infected, antibiotics would probably help. However, I have no medical training, so really the best person to advise you is your doctor/scleroderma expert. Kind regards,
  18. Exploring the impact of paediatric localized scleroderma (LS) on health-related quality of life (HRQoL): Focus groups with youth and caregivers. This is the first qualitative study of HRQoL in LS to include all major LS subtypes. PubMed, Br J Dermatol, 01/18/2020. (Also see Coping with a Child's Chronic Illness) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  19. I have a strange ulcer on my left index finger. It started about 30 days ago getting sore, now its black under the nail and swollen. Has anyone ever taken antibiotics before for ulcers? I ask because since the circulation is poor how does the medicine get in there?
  20. Why Doctors Dismiss Dizziness. It’s one of the most common medical complaints, but patients say many doctors don’t take it seriously. New York Times, 02/10/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  21. Hi Margaret, I can understand why you're very worried about Gareth and scared that his vulnerability will make it so difficult to keep him well. I'm wishing you and the family (and in fact all our members) the very best and hoping we can all come out the other side successfully. Best wishes to you all,
  22. Hi Dimarzio I actually received a text today from the NHS telling me to stay at home for 12 weeks (obviously they consider me to be a risk.) I do agree and was self isolating anyway (obviously things have galloped on a bit since we first posted on this topic.) It wouldn't surprise me if the whole UK were forced into lockdown, as so many people seem to regard the advice to "stay at home" as a sort of extra Bank Holiday (witness the crowds flocking to the coastal resorts and countryside - I bet the locals were thrilled about that!!) Kind regards,
  23. In the UK, the health service are about to issue 1.5m letters to those they consider at risk. I wonder how many of us will receive one? Not expecting one as my general practitioner and rheumatologist seem to think SSc is just a minor inconvenience.
  24. Why Doctors Dismiss Dizziness. It’s one of the most common medical complaints, but patients say many doctors don’t take it seriously. New York Times, 02/10/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  25. Hi everyone, I am scared about this whole situation, not so much for me (even though I'm listed as OLD now!!!) but for Gareth. Along with the UCTD, he's got the immune deficiencies and isn't due for his monthly IVIg till this coming Thursday. I know his immune system is running on empty. Everything has been shut down in our area for the past 10 days, he is with us, but he doesn't understand the situation. I keep telling him people are getting sick - all over the world. He's been to Italy, England and Ireland, so he sees how they are experiencing the same *stay at home* procedures. Please, stay home and stay healthy everyone. My prayers are with all of us. Margaret Mom to Gareth, DS/ASD
  26. Association between vitamin D and fatigue in patients with rheumatoid arthritis (RA): a cross-sectional study. This cross-sectional study found no evidence of association between vitamin D and fatigue in patients with RA. PubMed, BMJ Open, 2020 Feb 6;10(2):e034935. (Also see Symptoms and Complications of Rheumatoid Arthritis and Vitamin D) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  27. The International Scleroderma Network thanks Genentech for their sponsorship support. Posted 03/21/2020.
  28. Digital ulcers (DUs) in systemic sclerosis: their epidemiology, clinical characteristics, and associated clinical and economic burden. DUs place a large burden on the patient and healthcare system through reduced health-related quality of life and increased healthcare resource utilization and associated cost. PubMed, Arthritis Res Ther, 2019 Dec 23;21(1):299. (Also see Digital Ulcers) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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