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  2. Flu vaccine in October, Pneumonia vaccine iin October, Covid vaccine a week ago and a Tetanus jab yesterday. Clinician says I need to have 2 follow up Tetanus jabs as well. Now I know how a pin cushion feels :) Tetanus as a result of my severing an artery in my arm gardening yesterday - very messy business :)
  3. Yesterday
  4. Hello, I was strongly urged by my Scleroderma specialist to be vaccinated. I have already had both injections by Pfizer . No problems whatsoever. No reactions at all other than a tiny bit of sore arm for 2 days.
  5. 'Thousands' of lung cancer cases have gone undiagnosed in England during coronavirus pandemic because people confuse the cough with Covid, NHS boss warns. People may mistake symptoms of lung cancer for tell-tale signs of coronavirus and late diagnosis of lung cancer has significantly worse chances of survival. Mail Online, 02/17/2021. (Also see Cancer) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 03/07/2021.
  7. Last week
  8. Association of clinical characteristics, disease activity and health-related quality of life in systemic lupus erythematosus (SLE) patients with major depressive disorder (MDD). Predictors of MDD in SLE patients include higher scores in pain and global assessment, poor or fair self-reported health, and specific organ involvement. PubMed, Rheumatology (Oxford), 2021 Feb 6;keab123. (Also see Symptoms and Complications of Lupus and Depression) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  9. Scleroderma Renal Crisis (SRC). There is an urgent need to improve early recognition and treatment, and to identify novel treatments to improve outcomes of SRC. PubMed, Presse Med, 2021 Feb 3;104063. (Also see Kidney (Renal) Involvement) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. The International Scleroderma Network thanks United Therapeutics for their sponsorship support. Posted 03/06/2021.
  11. So You Think Your Kid Needs a Covid Test. Here‘s everything you need to know about when to get it and what to expect. New York Times, 01/13/2021. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. The influence of obesity on hydroxychloroquine (HCQ) blood levels in lupus nephritis patients. It was advised to consider the use of 2016-AAO dose of HCQ as per the ideal body weight for this group of patients. PubMed, Lupus, 2021 Jan 5;961203320985214. (Also see Symptoms and Complications of Lupus and DMARDs) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. Shop at AmazonSmile and Amazon will make a donation to the nonprofit International Scleroderma Network. Posted 03/04/2021.
  14. Identifying early pulmonary arterial hypertension (PAH) biomarkers in systemic sclerosis (SSc): Machine learning on proteomics from the DETECT cohort. This novel 8-protein biomarker panel has the potential to improve early detection of PAH in SSc patients and may provide novel insights into the pathogenesis of PAH in the context of SSc. PubMed, Eur Respir J, 2020 Dec 17;2002591. (Also see Prognosis of Pulmonary Hypertension) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  15. Children‘s Screen Time Has Soared in the Pandemic, Alarming Parents and Researchers. “There will be a period of epic withdrawal” warned one addiction specialist, once schools, activities and social life return to normal. New York Times, 01/16/2021. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  16. The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support. Posted 03/02/2021.
  17. Hi Dimarzio, I'm very glad to hear that you've had your Oxford AZ jab with no problems. Kind regards,
  18. Hi Dimarzio, So sorry, I've no idea whether the stem cell transplant is available in the UK. I would imagine the NHS would be pretty much a no-no, as they seem to be incapable of dealing with anything other than Covid-19 at present. Probably the best person to ask would be your consultant (I expect you've thought of that already.) Kind regards,
  19. Earlier
  20. Does anyone know what availability of stem cell transplant is like in the UK whether via the NHS or or privately?
  21. I can report that I had my first Oxford AZ jab 3 days ago and have had no reaction so far other than a slightly sore arm (as you might get from any injection). I will of course need to wait for 3 weeks for full protection but feel much more confident now with the recent data published confirming an 80% reduction in serious cases amongst those who have had both Pfizer and AZ jabs.
  22. A trial of antithrombotic therapy in patients with refractory migraine and antiphospholipid antibodies: A retrospective study of 75 patients. There was a high rate of symptomatic response to antithrombotic therapy in this context. PubMed, Lupus, 2021 Jan 5;961203320983913. (Also see Antiphospholipid Syndrome) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  23. Osteopontin Protein May Be Cause of Lung Scarring in Scleroderma. Osteopontin may be driving scarring of lung tissue in people with scleroderma associated with interstitial lung disease, a study suggests. Scleroderma News, 12/22/2020. (Also see Pulmonary Fibrosis Diagnosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  24. Inside the B.1.1.7 Coronavirus Variant. At the heart of each coronavirus is its genome, a twisted strand of nearly 30,000 “letters” of RNA. New York Times, 01/18/2021. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  25. Association of Therapies With Reduced Pain and Improved Quality of Life in Patients With Fibromyalgia: A Systematic Review and Meta-analysis. This systematic review and meta–analysis suggests that most of the currently available therapies for the management of fibromyalgia are not supported by high–quality evidence. PubMed, JAMA Intern Med, 2021 Jan 1;181(1):104-112. (Also see Fibromyalgia) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  26. Hi Ms Rana, Welcome to these forums. I'm sorry to hear that your mother is experiencing unpleasant glue-like sensations. I'm afraid I have no medical training and so could not possibly hazard a guess as to the cause of your mother's symptoms. Frankly, it could be any number of health problems and so I would suggest that she consults a doctor, in order to obtain a diagnosis. Kind regards,
  27. Hello I write to seek your advice please. My mother has been complaining about experiencing glue like sensation all over her body. Her body does not have any stickiness, rashes or redness, she neither feels hot. What could this be please? Desperately seeking medical treatment. Much obliged Ms Rana
  28. Hi Margaret, I'm so glad that Gareth has had his other vaccination and is feeling fine now. It sounds as if you'll be okay today as well. My second vaccination isn't until May; in the UK they seem to be spreading it out a little more. Kind regards,
  29. Effect of bosentan in pulmonary hypertension development in systemic sclerosis (SSc) patients with digital ulcers. We concluded that SSc patients with digital ulcers treated with bosentan seems to have less risk to develop pulmonary hypertension and to stabilize carbon monoxide diffusing capacity. PubMed, PLoS One, 2020 Dec 10;15(12):e0243651. (Also see Tracleer (Bosentan)) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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