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  2. Fish oil supplements tied to improved male fertility. Men who consume fish oil supplements, which are high in omega-3 fatty acids, might get a boost in fertility, a new study suggests. Reuters Health, 01/17/2020. (Also see Supplement Guide) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Hi everyone, I'm on methotrexate on my 4th month now I think it is, I always feel rough day after taking it, headache, nausea and diarrhoea, but feel better as the week goes on, think it affects us all in different ways. I'm taking it to help with arthritis, hope this helps.
  4. Last week
  5. Clinical and Structural Efficacy of Hydroxychloroquine (HCQ) in Rheumatoid Arthritis (RA): A Systematic Review. Combining HCQ with other DMARDs could provide some clinical improvement in patients with RA. PubMed, Arthritis Care Res (Hoboken), 2020 Jan;72(1):36-40. (Also see Treatments for Rheumatoid Arthritis and DMARDs) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Corticosteroid-sparing (CS) benefit of intravenous immunoglobulin (IVIg) in systemic sclerosis-associated myopathy (SScAM): A comparative study in 52 patients. This study suggests the benefit of IVIg as adjunctive therapy, with an acceptable tolerance profile, and supports its use as a CS-sparing agent, in SScAM. PubMed, Autoimmun Rev, 2020 Jan;19(1):102431. (Also see Treatments for Dermatomyositis and Polymyositis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Many older U.S. adults don't get needed cardiac rehab after a heart attack. Only about one in four patients on Medicare receive cardiac rehabilitation recommended to help them recover from events like a heart attack or coronary bypass surgery, a U.S. study suggests. Reuters Health, 01/17/2020. (Also see Treatments for Heart Involvement) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Assessing Associations of Synovial Perfusion, Cartilage Quality, and Outcome in Rheumatoid Arthritis (RA) Using Dynamic Contrast-enhanced Magnetic Resonance Imaging. Synovial perfusion relates to remission, response, and cartilage quality in a cohort of therapy-naive patients with early RA. PubMed, J Rheumatol, 2020 Jan;47(1):15-19. (Also see Symptoms and Complications of Rheumatoid Arthritis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  9. Characterizing Disease Manifestations and Treatment Patterns Among Adults with Systemic Sclerosis (SSc): A Retrospective Analysis of a US Healthcare Claims Population. One-third of patients with SSc in the healthcare claims population received immunomodulating therapy during the first year after diagnosis. PubMed, Rheumatol Ther, 11/16/2019. (Also see Immunosuppressants) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. Your heartburn drug has been recalled. Now what? There are alternatives to heartburn relief – including a doctor-approved bedtime trick. NBC Health News, 01/20/2020. (Also see Reflux Prevention and Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. The International Scleroderma Network thanks Genentech for their sponsorship support. Posted 02/21/2020.
  12. My rheumatologist suggested that I put a good lotion on my hands; to use a large amount then put vinyl gloves before bed and keep them on night. They are much softer and my Raynaud's is much better also. If I am going to be outside I put vinyl gloves under my knitted gloves and also wearing mittens. Between the two my hands stay nice and toasty warm. Before I got scleroderma I worked in the cold. learning a lot about keeping warm.
  13. Earlier
  14. Construction of a Frailty Index (FI) as a Novel Health Measure in Systemic Lupus Erythematosus (SLE). The SLICC-FI may be a useful tool for identifying patients with SLE who are most vulnerable to adverse outcomes. PubMed, J Rheumatol, 2020 Jan;47(1):72-81. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  15. Advances in the Treatment of Scleroderma (SSc): Autologous Hematopoietic Stem Cell Transplant (HSCT). HSCT can be considered as an option in carefully selected patients with rapidly progressive SSc who have a risk of organ failure. Medscape, 1/2/2020. (Also see Stem Cell Transplantation) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  16. Hi Carol. I've struggled with Raynauds for a few years and found knitted gloves of little help. You can get rechargeable battery oorated heated gloves which are very good, though I use thermal lined leather gloves which I got from a supermarket. For me, the key is to not let my hands get cold before putting the gloves on in winter. As soon as I go outdoors, the gloves go on or my hands go into my pockets. Another thing I've found is that it is important to keep your whole body warm. I found that if I can keep my head and neck warm by wearing a thermal hat and snood, it seems to help to keep my hands warm too. I also find that I need to keep my hands dry. The leather gloves help too if it is raining. Hope this is of some help. Dimarzio
  17. Americans are binge drinking more, greatly increasing health risks. The rise in binge drinking increases health risks: accidents, disease and early death. NBC Health News, 01/16/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  18. High Prevalence and Disease Correlation of Autoantibodies Against p40 Encoded by Long Interspersed Nuclear Elements in Systemic Lupus Erythematosus. These autoantibodies may represent an early immune response against LINE-1 p40 that does not yet by itself imply clinically significant autoimmunity. PubMed, Arthritis Rheumatol, 2020 Jan;72(1):89-99. (Also see Diagnosis of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  19. Defining genetic risk factors for scleroderma-associated interstitial lung disease (SSc-ILD) : IRF5 and STAT4 gene variants are associated with scleroderma while STAT4 is protective against scleroderma-associated interstitial lung disease. Further work is required to understand the genetic basis of lung fibrosis in association with scleroderma. PubMed, Clin Rheumatol, 01/08/2020. (Also see Pulmonary Fibrosis Diagnosis and Genetics) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  20. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 02/16/2020.
  21. Hi Carol, Welcome to these forums! I'm very sorry to hear that you're experiencing such severe Raynaud's symptoms and the link I've included does have lots of tips about dealing with the problem. Although I do have Raynaud's, thankfully it doesn't affect me as badly as you describe. I have found that it's very important to keep my core body temperature warm, as this does affect the severity of the symptoms I experience. I would suggest that a few light layers of gloves would be more effective than thick woollen gloves, but unfortunately, gloves are not desperately practical when used for daily activities at home. Kind regards,
  22. I have severe Raynaud's with limited scleroderma. I really need some suggestions on what gloves to wear for inside use. Gloves that would keep hands warm and be practical enough for use with daily activities. I recently had to cut my visit short at my daughter's home because my fingers turned blue constantly, even wearing knitted gloves. Thank you for your support!
  23. When Life Throws You Curveballs, Embrace the "New Normal". For patients with life-altering illnesses or anyone just getting older, it helps to roll with the punches and make the best of the here and now. New York Times, 01/20/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  24. High Incidence of New-Onset Joint Pain in Patients on Fluoroquinolones as Antituberculous Treatment. There is a high incidence of joint pain in patients receiving antituberculous treatment, when fluoroquinolones are administered as compared to pyrazinamide. PubMed, Respiration, 2020 Jan 14:1-7. (Also see Extrapulmonary Tuberculosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  25. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 02/14/2020.
  26. Hi Inibini, I can sympathise a bit, because in the beginning my hands were very painful and my fingers were very swollen. I spent an absolute fortune having all my rings made larger, only to have to have them altered again when, due to my taking prednisolone, my fingers went back down again. I had bilateral carpal tunnel syndrome and had successful operations on them; in my case the carpal tunnel was entirely due to having scleroderma, so I would imagine that the operation for carpal tunnel is the same for people with or without scleroderma. However, I have no medical training and so therefore this is just my opinion. The best person to advise you is your doctor/scleroderma expert. Kind regards,
  27. Case Report: Spontaneous bowel perforation in the setting of colonic involvement with scleroderma (SSc). It is essential that clinicians faced with abdominal symptoms and signs in patients affected by SSc are able to quickly differentiate acute visceral perforation from benign causes. PubMed, BMJ Case Rep. (Also see Bowel Dysfunction) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  28. Hi! I’m having more and more problems with my hands during night time; the problems come as two parts: swelling and numbness. The swelling is my fingers being swollen in the night and the morning, problem to make a fist. But does not hurt. The other part is numbness which is very much like carpal tunnel syndrome because my fingers get numb, mostly the little finger and the ring finger, just like the symptom picture for carpal tunnel. Sometimes also other fingers such as thumb and index. However, I have had this checked (because I keep waking up a lot!! And need to exercise my hands) and performed all sorts of physiological tests, but everything seems normal. So I’m thinking the mechanism might be different from the carpal tunnel people without SScl get. Could it be that the latter is due to vessel leakage and the former due to compression of nerve due to tightness of the tunnel from other reasons? I’m wondering because carpal tunnel surgery probably will not help me if the cause is different from regular carpal tunnel. No doctors seem to be able to provide an answer. Any experts out there? Theoretical or clinical? Kind Regards
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