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  3. dimarzio

    Left Atrial Enlargement on ECG

    It seems from what I read, that this is commonly a result of high blood pressure. What are your readings like? If this is the case, blood pressure medication and a healthy diet and lifestyle is helpful. Plenty of exercise and avoiding alcohol and tobacco products. Healthy living will help to prevent heart attacks and strokes, though this is the case for everybody really.
  4. Marybeth Jarubas

    Left Atrial Enlargement on ECG

    Hi all, I have had a couple of ECG's done at the Emergency Room (ER) over the past year. Anyway, I looked at the results and it said I have an enlarged left atrium. Followed up with my family doctor and he didn’t seem too concerned but with the limited Sclero diagnosis I’m concerned. He said to bring up to my Rheumatologist which I will. It could be due to the anxiety I have been under and starting Buspar here. The hospital never told me and I didn’t have a chart set up with them at all but something made me look and get a chart. Has anyone had anything like this before? I am in early diagnosis, so don’t know what or if this means anything. Your help is appreciated. MJ
  5. Sweet

    How to Harness Your Anxiety.

    That was a great article
  6. How to Harness Your Anxiety. Research shows that we can tame anxiety to use it as a resource. New York Times, 10/16/2018. (Also see Anxiety and Attitude) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Last week
  8. Progressive reduction of serum complement levels: a risk factor for relapse in patients with hypocomplementemia in systemic lupus erythematosus (SLE). Simultaneous progressive reductions in complement levels and increases in anti-dsDNA antibody levels may indicate future relapse of serologically active clinically quiescent–SLE patients. PubMed, Lupus, 2018 Oct 11:961203318804892. (Also see Research on Systemic Lupus Erythematosus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  9. The International Scleroderma Network thanks Reata Pharmaceuticals for their support! Posted 11/08/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. Shelley Ensz

    What’s up with this pain in my chest?!

    Hi Cathy, First of all, we should be celebrating the good news, which is that it sounds like your doctors have already ruled out the very worst causes of chest pain, such as heart or lung troubles. So let's take a deep breath while we all rejoice over that! So now it's down to troubleshooting the lesser causes. See 19 Important Causes of Chest Pain by doctor's Opinion. Given scleroderma, some of the more likely culprits would be costochondritis, heartburn or esophageal spasms, muscle tension, or anxiety. I've had random chest pains for over 20 years. Once I had the baseline testing done that ruled out the severe and acute causes, my doctor just explained it could be this, that, or the other thing, and simply not to worry about it unless it goes on for over 5 minutes, is significantly different, or is accompanied by other symptoms. Variously, my chest pains have been due to esophageal spasms, heartburn, pneumonia, pleurisy, influenza, bronchitis, pericarditis, a mammary gland infection, Raynaud's of the nipples, muscle strain (from pushing a car), palpitations, referred pain from gallbladder, mitral valve prolapse, and costochondritis. Plus, then there are just random ones that appear out of nowhere and resolve themselves without any further ado -- and a fair number that I've personally chalked up to fibromyalgia, when they occur along with other roving aches and pains. So, one thing to keep in mind is that you might be having more than one source at the same time, which can really confuse things. Overall, I like to take comfort in whatever they've proven likely won't kill me today, which helps reduce anxiety, which can also cause or worsen chest pain. Plus, one source of chest pain does NOT mean that all chest pain is due to that particular source. There's such a fine line between reacting and over-reacting, and never is the line quite as difficult to find, as when dealing with chest pain -- it is the most common cause of all for emergency room visits. So, my thoughts are with you as you get this sorted out.
  11. Recent progress in systemic sclerosis–interstitial lung disease (SSc–ILD). The implications of much of this ongoing work is our ability to identify those patients at risk for progression, and to offer novel therapies that can limit the progression of inflammatory and fibrotic lung disease. PubMed, Curr Opin Rheumatol, 2018 Nov;30(6):570-575. (Also see Pulmonary Fibrosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. Hi Cathy, I'm sorry to hear that you're suffering with worrying chest pain. As Sweet has suggested, it could be any number of things, some more serious than others. The trouble with a disease such as scleroderma is that there is a tendency to blame every new symptom on it, whether they are due to it or not and it can blind one to any other unrelated problems. A rule of thumb is that if there are new worrying symptoms (especially if you have an underlying condition such as scleroderma) then it's always worth checking it out with your doctor/scleroderma expert, if only for peace of mind. Kind regards,
  13. dimarzio

    What’s up with this pain in my chest?!

    I recommend lots of exercise and heavy breathing then Cathy. Seriously though, I get a lot of cramping in my chest, especially so in colder weather. I too am finding that plenty of aerobic exercise and stretching helps.
  14. Hi Cathy, I'm sorry to hear of the chest discomfort you are having. , it could be so many different things. The body keeps us wondering doesn't it? It could be costochondritis. Check the link and see if that sounds like what you are experiencing. It could also be a simple matter of your back being misaligned, or tight muscles. Do you do any stretching? One thing I notice is due to my pain, I can contract all into myself. I have to remember several times a day to relax, stretch back my shoulders. I lay on the floor and do other stretches which can help.
  15. Cmfc0523

    Blood Results and Worried!

    Hi Phyllis, I recently received the same results as you, with very similar symptoms. I have seen a Rheumatologist, as well as had the ‘standard’ Echo and Pulmonary Function tests, all encouraging. Right now, the Rheumatologist has me ‘on paper’ as having Undifferentiated Connective Tissue Disease, and will continue to watch for any new symptoms to point toward Scleroderma. The most important thing she told me was exactly what Jo said, which is that many live long, often uneventful lives, with this disease. And, knowledge is power! You can only treat the things you know about. I found this forum to be a godsend over the past few months also! Cathy
  16. Hello all! I’m hoping for input on some confounding pain. I’m about three months into this journey, and so far my chief complaint has been some joint pain. Most is in the typical places like hands feet and upper back, but I also have this crazy, random pain in my upper chest. I should note that I had both an Echo and PFT 3 weeks ago and both were great. My doctors don’t seem to think it’s significant, but it is irritating and a bit painful at times, not to mention a little unsettling since it is my chest. It seems to come and go like my back, with no real trigger, except it does seem to get a little worse with activity, as the day wears on or even after a lot of talking. Exercise or heavy breathing does not make it worse. Has anyone experienced something like this? Could it be something akin to muscle and joint pain? Is there something more serious that I should be asking my doctor about? I’m just not sure where to go with this one. I did start Plaquenil recently, which I understand could be helpful but will take awhile to feel benefits. Any thoughts or personal experience is greatly appreciated, because I’m stumped! Cathy
  17. Women told they aren't thin enough for eating disorder treatment, MPs told. Patients who fear they have eating disorders are being told by general practitioners they aren't "thin enough for treatment", according to a woman who was denied help. BBC Health News, 10/16/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  18. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 11/14/2018.
  19. Margaret

    Blood Results and Worried!

    Hi Phyllis, Welcome to the forum and sorry to hear of your positive blood work, along with various symptoms. I can only speak for myself, when my son was diagnosed, but most readings on the web were very depressing and negative. I assumed he would die within a few years and that was 12 years ago, this month! There are many others on this forum who have had it for 20, 30+ years. Gareth had all the positive blood works, too, but only had internal issues - esophageal dismotility being the culprit that brought on the blood tests. He's been on Plaquenil for 12 years and is doing pretty good, with only occasional issues. Stress can play a factor in the disease, too, so try to keep that in mind. Take care, everyone. Margaret Mom to Gareth, 30 years old, DS/ASD
  20. Relationship between interstitial CD34 positive cells and active phase of lupus nephritis. A strong interstitial expression of CD34 was observed in lower activity indices and it could play a protective role in lupus nephritis and could reduce renal activity. PubMed, Eur J Rheumatol, 2018 Oct 10:1-4. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  21. Earlier
  22. Prediction of therapeutic response before and during I.v. cyclophosphamide (IVCY) pulse therapy for interstitial lung disease in systemic sclerosis (SSc–ILD): A longitudinal observational study. ILD severity/activity before treatment and variability of serum Krebs von den Lungen-6, surfactant protein D levels during treatment may be useful to predict therapeutic effects of IVCY on SSc–ILD. PubMed, J Dermatol, 10/05/2018. (Also see Pulmonary Fibrosis Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  23. The International Scleroderma Network thanks Network for Good donors for their support! Posted 11/07/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  24. Restless legs syndrome triples the risk of suicidal thoughts, study finds. People with restless legs syndrome have a greater risk of suicidal thoughts, a study suggests. Mail Online, 10/16/2018. (Also see Sleep Disorders and Suicide Prevention) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  25. PhyllisD

    Blood Results and Worried!

    Thank you.
  26. Case Report: Treatment of colon cancer in a patient with systemic lupus erythematosus. This report provides an effective way to diagnose colon cancer in patients with systemic lupus erythematous and illustrates a successful therapy strategy for this complex medical condition. PubMed, BMC Cancer. (Also see Symptoms and Complications of Lupus and Cancer) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  27. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 11/06/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  28. Prevalence of auto–antibodies associated to pulmonary arterial hypertension in scleroderma – A review. The available evidence points in the direction of a strong association between auto–immune mechanisms and pulmonary hypertension in the setting of scleroderma. PubMed, Autoimmun Rev, 10/11/2018. (Also see Pulmonary Hypertension and Antibodies) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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