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  3. Hi Carol. I've struggled with Raynauds for a few years and found knitted gloves of little help. You can get rechargeable battery oorated heated gloves which are very good, though I use thermal lined leather gloves which I got from a supermarket. For me, the key is to not let my hands get cold before putting the gloves on in winter. As soon as I go outdoors, the gloves go on or my hands go into my pockets. Another thing I've found is that it is important to keep your whole body warm. I found that if I can keep my head and neck warm by wearing a thermal hat and snood, it seems to help to keep my hands warm too. I also find that I need to keep my hands dry. The leather gloves help too if it is raining. Hope this is of some help. Dimarzio
  4. Americans are binge drinking more, greatly increasing health risks. The rise in binge drinking increases health risks: accidents, disease and early death. NBC Health News, 01/16/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
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  6. High Prevalence and Disease Correlation of Autoantibodies Against p40 Encoded by Long Interspersed Nuclear Elements in Systemic Lupus Erythematosus. These autoantibodies may represent an early immune response against LINE-1 p40 that does not yet by itself imply clinically significant autoimmunity. PubMed, Arthritis Rheumatol, 2020 Jan;72(1):89-99. (Also see Diagnosis of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Defining genetic risk factors for scleroderma-associated interstitial lung disease (SSc-ILD) : IRF5 and STAT4 gene variants are associated with scleroderma while STAT4 is protective against scleroderma-associated interstitial lung disease. Further work is required to understand the genetic basis of lung fibrosis in association with scleroderma. PubMed, Clin Rheumatol, 01/08/2020. (Also see Pulmonary Fibrosis Diagnosis and Genetics) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 02/16/2020.
  9. Hi Carol, Welcome to these forums! I'm very sorry to hear that you're experiencing such severe Raynaud's symptoms and the link I've included does have lots of tips about dealing with the problem. Although I do have Raynaud's, thankfully it doesn't affect me as badly as you describe. I have found that it's very important to keep my core body temperature warm, as this does affect the severity of the symptoms I experience. I would suggest that a few light layers of gloves would be more effective than thick woollen gloves, but unfortunately, gloves are not desperately practical when used for daily activities at home. Kind regards,
  10. I have severe Raynaud's with limited scleroderma. I really need some suggestions on what gloves to wear for inside use. Gloves that would keep hands warm and be practical enough for use with daily activities. I recently had to cut my visit short at my daughter's home because my fingers turned blue constantly, even wearing knitted gloves. Thank you for your support!
  11. When Life Throws You Curveballs, Embrace the "New Normal". For patients with life-altering illnesses or anyone just getting older, it helps to roll with the punches and make the best of the here and now. New York Times, 01/20/2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. High Incidence of New-Onset Joint Pain in Patients on Fluoroquinolones as Antituberculous Treatment. There is a high incidence of joint pain in patients receiving antituberculous treatment, when fluoroquinolones are administered as compared to pyrazinamide. PubMed, Respiration, 2020 Jan 14:1-7. (Also see Extrapulmonary Tuberculosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 02/14/2020.
  14. Hi Inibini, I can sympathise a bit, because in the beginning my hands were very painful and my fingers were very swollen. I spent an absolute fortune having all my rings made larger, only to have to have them altered again when, due to my taking prednisolone, my fingers went back down again. I had bilateral carpal tunnel syndrome and had successful operations on them; in my case the carpal tunnel was entirely due to having scleroderma, so I would imagine that the operation for carpal tunnel is the same for people with or without scleroderma. However, I have no medical training and so therefore this is just my opinion. The best person to advise you is your doctor/scleroderma expert. Kind regards,
  15. Case Report: Spontaneous bowel perforation in the setting of colonic involvement with scleroderma (SSc). It is essential that clinicians faced with abdominal symptoms and signs in patients affected by SSc are able to quickly differentiate acute visceral perforation from benign causes. PubMed, BMJ Case Rep. (Also see Bowel Dysfunction) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  16. Hi! I’m having more and more problems with my hands during night time; the problems come as two parts: swelling and numbness. The swelling is my fingers being swollen in the night and the morning, problem to make a fist. But does not hurt. The other part is numbness which is very much like carpal tunnel syndrome because my fingers get numb, mostly the little finger and the ring finger, just like the symptom picture for carpal tunnel. Sometimes also other fingers such as thumb and index. However, I have had this checked (because I keep waking up a lot!! And need to exercise my hands) and performed all sorts of physiological tests, but everything seems normal. So I’m thinking the mechanism might be different from the carpal tunnel people without SScl get. Could it be that the latter is due to vessel leakage and the former due to compression of nerve due to tightness of the tunnel from other reasons? I’m wondering because carpal tunnel surgery probably will not help me if the cause is different from regular carpal tunnel. No doctors seem to be able to provide an answer. Any experts out there? Theoretical or clinical? Kind Regards
  17. Cats and Risk of Schizophrenia. In the same study that found pet dogs reduce overall risk for schizophrenia, the researchers reported less positive news for cats. Healthy Living Magazine, January 2020. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  18. The International Scleroderma Network thanks Network for Good donors for their support! Posted 02/12/2020.
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  20. B cell synovitis and clinical phenotypes in rheumatoid arthritis: relationship to disease stages and drug exposure. We demonstrate an ongoing B cell-rich synovitis in a larger proportion of patients with established RA that does not seem to be captured by standard clinimetric assessment. PubMed, Arthritis Rheumatol, 11/29/2019. (Also see Diagnosis of Rheumatoid Arthritis and B Cells and T Cells) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  21. Case Report: Autoimmune Hepatitis and Systemic Sclerosis: a Rare Association. Autoimmune hepatitis and systemic sclerosis may be associated, therefore patients with these diseases should be monitored closely. PubMed, Eur J Case Rep Intern Med. (Also see Liver and Spleen Involvement) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  22. Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 02/09/2020.
  23. Immune discovery 'may treat all cancer'. A newly-discovered part of our immune system could be harnessed to treat all cancers, say scientists. BBC Health News, 01/20/2020. (Also see Cancer) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  24. Negative regulation of dendritic cell (DC) activation in psoriasis mediated via CD100-Plexin-B2. Our results uncovered a negative regulatory mechanism for DCs activation in psoriasis, which was mediated via CD100-Plexin-B2 in a cell type- and receptor- specific manner. PubMed, J Pathol, 01/14/2020. (Also see Psoriasis and Psoriatic Arthritis and Dendritic Cells) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  25. Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. (Also see Get Scleroderma Awareness Bracelets) Posted 02/07/2020.
  26. Dipeptidylpeptidase 4 as a Marker of Activated Fibroblasts and a Potential Target for the Treatment of Fibrosis in Systemic Sclerosis (SSc). DPP-4 characterizes a population of activated fibroblasts and shows that DPP-4 regulates TGFβ-induced fibroblast activation in the fibrotic skin of SSc patients. PubMed, Arthritis Rheumatol, 2020 Jan;72(1):137-149. (Also see Fibroblasts) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  27. Call to tax 'hidden' sugar in pre-mixed alcoholic drinks. Many "ready to drink" pre-mixed spirits are packed with excessive sugar and hidden calories and should be subject to a sugar tax like fizzy drinks, health experts say. BBC Health News, 01/21/2020. (Also see Food Guide) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  28. The International Scleroderma Network thanks United Therapeutics for their sponsorship support. Posted 02/06/2020.
  29. Thank you for your response and opinion, I am on the UK waiting list for CBT Therapy in the South, that comes with a 4 month waiting list unfortunately but I am open to trying to resolve the anxiety side of things. I just can't shake that these symptoms are not scleroderma, I know how ignorant it sounds - but the wrinkly hands, raw finger tips, skin peeling, hands indenting easily and holding the indent for hours, lump and rashes are completely freaking me out. I understand google is not a doctor and will never replace a specialist, but having every symptom I find odd have the first or second result popping up as scleroderma is really, really getting to me.
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