Conflicting opinions in Sclero Forums (MAIN) Posted March 18, 2016 Hi Kathy, Welcome to Sclero Forums. I'm sorry that you are sick, and dealing with conflicting opinions. If I were you, I'd seek a tie-breaker opinion from a listed scleroderma expert. Since your illness is not moving fast or aggressively, and you don't yet have prominent symptoms of any particular connective tissue disease (such as a lupus butterfly rash, or tight skin from scleroderma, etc.), you might still have a long wait for a definite diagnosis. And, it might be beside the point if your symptoms remain mild, as about 50% of people with some symptoms of connective tissue disease never go on to develop a full-fledged, more specific, illness. Therefore, it's normal for many doctors to sit on the fence for awhile, waiting to see what else develops, if anything. It can be extraordinarily stressful to have reason to suspect serious illnesses, and more stressful to have loose or disputable answers. Most of us find support during this phase to be absolutely vital. So I want to assure you that you, and everyone else in your position, are very welcome and encouraged to participate fully in Sclero Forums. We know you know that doesn't equate to a diagnosis. But we know you know that you need and deserve support just as much, if not more, than someone who already has an iron-clad diagnosis.