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About Vee

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  1. Hi Red, I haven't been here in a very long time! But a good friend of mine brought this post to my attention. About 3 years ago, my voice started getting hoarse, like I had a cold or laryngitis, but as the years have worn on, it's gotten worse and worse. My voice got to be almost nonexistent on some days and on the days I COULD talk, it sounded like there were 3 or 4 people talking at the same time. Finally, I had to do something about it so went to an ENT. Actually I saw two of them. The first one told me that I needed a videostroboscopy and he didn't have that equipment, so I foun
  2. Hi Lisa, My name is Venessa and I live in Michigan. I am now 47. about 12 years ago I started having issues with breathing. It was very slight, and the only way I could explain it to my doctor was that it felt like I had to yawn, but I couldn't get enough air to satisfy the yawn. So he did a mini PFT (pulmonary function test) and decided that I had exercise induced asthma and put me on asthma medication. Just about the same time, my mother was diagnosed with scleroderma. Her first signs were blue fingers. About a year later, I noticed a blueness to my fingers when my body got cold, (I AM
  3. Howdy Everyone! It's been a very long time since I dropped in. Sorry! Life has been happening at a very fast pace with me. My oldest daughter is getting married this coming Saturday, and the other girls are back to school. I just wanted to say hi, and wish everyone Very Warm and Happy wishes, and hope that everyone is doing as well as they can be doing! Hopefully, I'll remember to pop in more often. I'm here now, because someone else I met on these boards found me on Facebook, which I also don't keep up with! reminded me of you guys.
  4. Hello Michael, I'm in Michigan, and it gets cold often here. I don't know if a sauna "helps" my sclero, but boy I sure look forward to getting into one every time I can. I have diffuse systemic sclero with ILD and of course, Raynaud's. I also have an overlap of rheumatoid arthritis (RA). I've never felt faint or ill after or during a sauna dip. So I guess you're right in assessing that your wife should be the one to tell you if it would do her any good or not. Good Luck! Vee
  5. Hi clem, A few years ago, I had my first bout with a finger ulcer. The doctor put me on Plendl, Trental, and a nitro patch all at the same time, it did nothing for my finger for 5-6 months! I was then taken off all three meds and put on Viagra. In 6 WEEKS my finger was closed and healed, and I haven't had another one since. I am a big advocate for viagra for raynaud's. My side effects were headaches, allergy like symptoms, and overall feeling of heaviness. I suppose that is due to the lowering in blood pressure. I took it at night before bedtime to aviod these side effects. The resul
  6. Hello Smurfette, I hope everything goes/went well for you. I hope you let us know how this procedure works for you. I know someone whose doctor suggested this for her. I told her of this thread and I hope she will chime in soon. She is really scared and I think it will do her good to share with someone who experienced the same thing. Thank you for sharing.
  7. Me too, I have gum tenderness on and off. But lately I've been having problems with my teeth. I've had 2 of them break while eating dinner. In the past year. I've always had very strong teeth. Is this because of the Prilosec everyday for almost 10 years? I hope this doesn't keep happening.
  8. In keeping with the bra topic, There'd be no pantyhose allowed!!! I almost strangle my husband with mine the last time I tried to put a pair on. He thought he'd help me since I was struggling, and somehow it ended up around his neck with my feet halfway in them! NOt a pretty sight, but it was funny. I was laughing so hard, I told him I better just take them off before I kill him or the kids see us and are scarred for life!!! Oh yea, and all the flooring is soft, so we don't have to worry about wearing cushy shoes for our painful feet. And all the toilets are tall so we don't have to
  9. I'm a little late on this one, but I have deep purple petunia waves and dark orange marigolds this year. They are looking great, and I haven't had to water much at all. Just remember to dead head them so they get big and bushy.
  10. All cups and glasses have handles or stems to hold. And all bra's have front closures!! Sorry about that one, but it's one of my biggest trials in the morning! And all dentists hands would be small enough to fit in your mouth without hurting!
  11. Hi Parris, I started having thyroid troubles after the birth of my first daughter in '85. I was diagnosed with sclero in '98. Whether or not it is related, I don't know, but it seems an aweful lot of us Sclerodians have thyroid disease!
  12. Thanks Tang! Peanut, I recently met a woman who had had a stem cell transplant. She is doing FABULOUS!!!!!! And I expect nothing but the same for you! Get thru the tough period and come back to us. We're waiting to hear from you. Lots and lots of Warm and Happy thoughts comin' at ya'! xo
  13. LOL! I thought they were breifcases also! I guess that's as far as my thought went!
  14. Hi Sadie, I have diffuse systemic sclero. I have interstitial lung disease as a result, which has left me with only 47% of my lungs working. I have raynaud's, of course, and I also have an overlap of Rhuematoid Arthritis. I'm sure someone else already cleared this up for you, but I didn't read all of your responses, so here is my explaination. With sclero, you can either limited(skin involvement of the hands, face, neck, and/or feet),or Diffuse(skin involvement all over the body). Sysetemic means internal involvement, which you can get with either type of sclero. And CREST a
  15. Hi Celia, I've had ILD for almost 10 years now. My cough is mostly dry. It is not as bad as it was in the first 5 or 6 years. I take an OTC allergy med with Decongestant. I take it at night, and it helps me tremendously. My cough will get phlemy if I work myself into a coughing "fit". And I agree wtih Janey wholeheartedly. I think the reflux issue makes the cough worse. And I also believe that we have reflux without even knowing it sometimes. My PFT's have been stable for 4 years now, and my cough is not as annoying as it was. I hope you find relief soon.
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