I have only made a couple of posts because I have just been soaking in all of the help that everyone on this board has been so wonderful in posting.
My story begins with my husband Jerry and I on vacation in Pennsylvania at a family reuinon in July of 2005. We live in Southern California. Our twin baby boys had just turned one and we wanted to show them off. It was absolutely beautiful weather but my husbands legs were bothering him. He did not think anything of it.
Then in October (three months later) my husband had to have his wedding ring sized bigger because his hands were larger all of the sudden. We have been married 13 years at the time and so I thought, lets go to the Dr. and just make sure everything is ok. The Dr. said everything is just fine. You are a very healthy 37 year old. Nothing to worry about. Three weeks later we had to have his wedding ring resized again. I just felt I knew something was going on so we scheduled another appointment. They did a battery of tests and then two weeks before holiday, they found that my husband has Scleroderma.
With all of that said, it was pretty scary for us. I did a ton of research and then we scheduled an appointment with Dr. Clements at UCLA. He was wonderful in answering all of our questions.
Well now it is two years later and my husband is doing good for the most part. He will not take any drugs at all (my husband has never even taken an asprin if he had a headache in the past) but he does take natural supplements.
His fingers are bent and he has a hard time getting up out of his chair, he gets callouses on his feet really bad making it difficult for him to walk and has lost alot of weight. He is 6'2 and weighs 158. He has always been tall and thin but now he is really tall and thin.
We have our twin boys (who just turned three on Sunday) and they are the best distraction that we could ever have. They really keep us on our toes and most of our energy is focused on them. No time to dwell on the negative that's for sure.
My husband is a wholesale lender and I am a realtor. So we are very blessed in the fact that we both can work from home. On the days that I have to go out he stays with the boys and on the days he needs to go to the office, I stay home.
So that is a little about us. I just wanted to say thankyou again for all of you who have given me so much insight in helping my husband in any way I can.
Big Hugs to all of you! And many many thanks again. I hope I can really contribute in the future.