My mom has just been diagnosed with scleroderma and Raynaud's . She is 72. And I'm frantic. I'm trying to find out everthing that we need to know to help her. I am so glad that I found this website, by accident I must say, and hope that I can get some help. She has it in her face, arms, hands and legs. We now just found out there is scaring in her lungs and she needs to see a lung specialist. I want her to see a sclermoderma specialist but need advise on who is the best and where to go. Even who to stay away from if there are any of those. We live in Bethlehem Pa and I know there are some doctors. in Philly or is somewhere else better. Any recommendations on who she should see would be greatly appreciated. Also, would they also treart problems in the lungs or would a pulmonary dr. be better.
Her dr. here in Bethlehem wants her to try a medicine for transplant patients to see if it helps. I'm not sure of the name rght now its slipped my mind. Has anyone every heard of this? Any thoughts on meds for both the limps and lungs would help. Also, any other suggestions would also be appreciated. It's all so confusing right now