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  1. Connie


    Hi there. I have often wondered about triggers. I started having symptoms of scleroderma and Lupus after I had a miscarriage. I already had two childern and had no problems. After the miscarriage I had two more childern and I continued to have the symptoms and it gradually got worse. I have wondered if it could have been the hormone changes that come with pregnancy. My first two childern were born when I was in my early 20's. I was in my late 30's when I had my miscarriage and last two children. Who knows. Connie
  2. WOW! I have a balance problem as well. I can be walking down a sidewalk and just fall. Last year I fell on the stairs and fractured my ankle. My husband says I need to watch where I'm going but I can't do that and watch my feet also. You should have seen me on crutches :D . Connie
  3. My GI doctor also told me two years ago not to eat popcorn and I love it. He wanted me to give it up because of the hulls. I had a colonoscopy done and the hulls were still there even after drinking all of that "stuff". I have to have another colonoscopy in June. He will probably be upset with me so I'm really trying to give it up :) . Connie
  4. Hi. I have been taking Plaqenil for 15 years. It has worked well for me. It helps with the fatigue. I actually have no side effects. My doctor has tried to take me off of it twice. But I had to go right back on it. I see the eye specialist twice a year. Good luck with this. Connie
  5. Hi. Thanks for the welcome. A little about myself. It's hard to believe but I'm 50 plus! I'm married and have four sons and one grandson. I work at the local school in the kitchen. It's a great job for me because it is only three hours each day. I know I could never work full time. Sometimes I have a hard time staying the three hours. I have all of the usual "junk" that goes with Scleroderma. The thing that bothers me the most is that I don't look sick so a lot people think I'm just a complainer. So it's good to be able to talk to people who know how I feel. Thanks again. Connie
  6. Hi, I'm new here and it's like WOW someone feels like I do! I was diagnoised with Lupus in 1991 and diagnoised with Sclero in 2005. Anyway, I have been on Plaquenil and Elavil since 1991. It helps. Before I started taking it I was so tired I I was afraid to even leave my house because I was afraid I couldn't get home. I still have to pace myself. The meds haven't taken away to fatique but they help. CONNIE
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