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  1. I really don't know where to start, or what to ask... But here's my story, I guess... the abridged version... When I was a senior in high school the doctors thought my mom had carpal tunnel, so they did all of the surgery and nothing helped... So flash forward to this summer, and though they had been through a million different "problems" the came to the conclusion that she had scleroderma. The thing is, nobody told me for a while. I'm 19, going on 20, and I'm well into college... meaning I'm not home much. My dad sat me down one day and told me that my mom had about the worst type of scleroderma you can get and that it meant that eventually, she was going to die. I asked him how long, and he said the doctor said that people usually had up to 10 years after diagnosis... my mom has technically had it for about 4 years now... 6 left. It's kind of crushing... but I think it's probably worse on him... at least now since he's around it more. I just keep thinking about all the things she won't be around for... and I know it's selfish... but it doesn't really change anything. Again... I don't know what to say exactly... I really just need someone to talk to... especially someone my age... I figure this is a good place to start. Thanks
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