Hi, My name is Gina. I'm new here and I have a question. I have a positive SCL-70 and the rheumatologist and dermatologist think I have scleroderma. I have a facial rash, long term fatigue, uveitis, and seem to be developing Raynaud's of the toes. However, they are also testing me for carcinoid tumors with a 24 hour urine test. I am currently awaiting the results. Have any of you had this test done? I'm having flushing which is why they are doing this test. (I also had a spot show up on a chest x-ray of the lung.) I'm nervous. I didn't think it was a big deal to turn red but the doctor saw it and was concerned.
My second question is related to fatigue. I really really struggle with it. Is this something you all struggle with too?