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Laura B

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    Atlanta, GA
  1. Jackie... I suffered with gallbladder attacks for 2 years that went undiagnosed. They said I had the flu, food poisoning, could be pregnant, gas pains, even mono! I was eventually sent to the shrink! The attacks would come out of no where, caused a terrible amount of pain in my upper stomach, just beneath my sternum. It ALWAYS started with very bad lower pack pain though...then the stomach pain and extreme nausea would kick in. I was only 25 years old. Eventually this young doctor ordered an ultrasound and said I had hundreds of stones, both inside and outside the gallbladder. (He said they probably missed it because they look for "fat, female and forty", and I didn't meet the fat or forty! LOL). I was scheduled for surgery 2 weeks out, but before that happened, my gallbladder got infected. I was hospitalized 5 days and was shot so full of pain medication while they tried to get the infection under control. Finally I was able to have it removed and have not had a single issue with the nausea again. I felt like I had been poisoned! I was so nauseous, but could not throw up. Funny thing is, they said my cholesterol level was extremely high pre-op, but went down significantly post-op. Not sure why? My daughter, who happens to be Autistic was only FOUR when she had hers removed. Was told she was the youngest patient they'd seen with this. Good luck with yours. I never regretted having mine removed. It was very painless. Laura in Atlanta
  2. Wow! :o What a coincidence! I was recently diagnosed with Scleroderma and I have a 13 year old daughter with Autism. Would love to see the info you found! Gotta run to her softball practice now, but look forward to hearing more about this! Gentle hugs, Laura in Atlanta
  3. I received my Pampered Chef order today (in perfect condition, no less). Thanks so much Lisa! Now, if only I had the energy to cook..... Laura in Atlanta
  4. Well, I reported a few days ago that I was recently diagnosed with Scleroderma (received the news by email, no less). I went in today for my follow-up. I will NOT be going to for a third visit! :angry: He told me that while everything pointed towards Sclero, I couldn't possibly be in as much pain as I described to him. (How does HE know what I feel??) He said that while this is a "progressive illness", all he was willing to do for me was to rx steroids, and that I could expect some nasty side effects from that. His suggestion was that I "learn to live with the pain" and if I can't do that, "perhaps I should seek the help of a psychiatrist to learn to suffer with the pain". What? He claims that he isn't willing to turn me into a zombie or drug-addict (not what I was looking for either). So I said, "Basically what you are telling me is that you are unable or unwilling to treat me then?" He just reiterated that I seek the help of a shrink. At that point I got up and told him that the discussion was over, and I'd look elsewhere for help. I walked past his receptionist as she was yelling that I "forgot to pay my co-pay". I looked at her and said, "No, I did not forget!" Has anyone else been treated like you are crazy by your Rheumatologist? Was I wrong to walk out on him? He told me that I was lucky to be receiving the one pain pill I get now, and talked down to me like I was a piece of "poo" on the bottom of his shoe! I've never been treated like that by any doctor before! I was absolutely flabbergasted! Oh well...back to the ol' drawing board I guess. Disappointed in Atlanta... Laura
  5. Patty... How did your appt go today?
  6. Hi! My name is Laura, and I am 41 years old. I'm a single mother of three gorgeous daughters (ages 13, 16, and 20). I just got the diagnosis of Scleroderma a few days ago from my Rheumatologist. I was diagnosis with Fibromyalgia about 10 years ago, so now there is some confusion as to whether it was an incorrect diagnosis, or I have both. (Lucky me, I know). My ANA test was positive, as well as a couple other tests. My main complaints currently are difficulty in swallowing (feels almost like my tongue & throat are swollen), wrist pain (they definitely ARE swollen), severe fatigue, and joint pain. My question is this. What, if anything is generally prescribed for pain? Or do most people NOT suffer from the pain I am feeling? When the diagnosis was "just" Fibromyalgia, I was seeing a "pain management" doctor. He graciously (and I say that with sarcasm) gave me 40 tabs a month. Hmm...use one every 4-6 hours for pain. You do the math. Does anyone out there take pain medication, and if so, what seems to help you? I have a follow-up with my rheumatologist next Monday to discuss long-term treatment plan. Thanks for all the great info everyone. I just happened across this site, and am so glad I did! Laura Atlanta, GA
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