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Jeannie McClelland

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About Jeannie McClelland

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    Senior Gold Member

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    in the Rocky Mountains of the USA

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  1. Hi everyone, it's time for my biennial check-in. I do these for newer members who are learning to cope with a frightening diagnosis. Let's see, it's been 11 years since I landed at the Center of Excellence where I was diagnosed with systemic sclerosis sine scleroderma (also called limited), pulmonary hypertension, and interstitial lung disease. So how am I after a decade plus of SSc? Great! I've developed supra ventricular tachycardia, had scary few months when my bone marrow was producing very few white blood cells and neutrophils, and the GI issues have all progressed, but on the
  2. I am at 6.5 years of participation in the PHAROS study and have donated blood to several genetic studies - any participation in any way is so valuable. As Miocean pointed out, even if one doesn't qualify for a clinical trial, there is still a way to give researchers data that might someday lead to a cure.
  3. Pictures of Aisla? If I can ever get her to stand still or figure out how to get one from my non iPhone to the computer! This pup moves like greased lightening.... She came to us having been an outside dog living under a porch or maybe a dog house. She had gorgeous sun streaks (my hair never looked so good), except for the top of her head. Can you say over-processed peroxide blonde? Give us another month of being inside more and the last of the puppy fluff gone, then I hope to have a photo of her in her permanent, glorious russet coat. Dolly Dumpling is gorgeous, Amanda! Mind you, I'm par
  4. Woohoo!! Aren't grandkids just the best? Congratulations!
  5. Hi Steve, I'm really late joining the thread, sorry! First let me assure you and your wife that there is life after the diagnosis; this year will mark my 8th anniversary and I hope for many more years. My daughter is also a pharmacist, so I m pretty familiar with the working conditions. It's my understanding that a pharmacist can't be forced to give injections although they may be required to undergo the training. I would simply say I wasn't comfortable and didn't wish to risk the liability issues. Standing on concrete floors - ouch! My recommendation is for her to acquire some of the
  6. Buckets of treats would be very welcome, she's like a gannet - eats anything in sight. She's Aisla (eye-la)' another Scottish name. The vet's staff were groaning when they realized we had stuck them with another 'it doesn't sound like it looks' name, they wanted to change it to Lucky! :)
  7. It's a new puppy! (No virtual baby showers, please.) Well, technically she is probably a pre-teen at 9 months old, she certainly acts that way. We adopted her from a herding dog rescue agency 10 days ago and wow, has she livened up the place. She's a Border Collie/Australian Shepherd cross and will definitely get me up and moving as her exercise requirements far exceed mine (and those of our Senior Dog). It's going to be fun to train her to be a responsible trail dog. She arrived to fill the hole left by the death of Mhairi at14 - if you remember the silly photo that was my avatar, that was th
  8. Hi Miocean! I'm pretty much in the same O2 boat as you. When I first started at my scleroderma center, I kept running into older gentlemen who seemed to be blowing kisses at me. Kind of nice, but I'm an old married woman so I just gave them a wink and kept trundling along on the treadmill. Imagine my dismay when I found out about pursed lip breathing!! Anyhow, I think of you often and I'm blowing you a (real) kiss. I'll hold you and your potential transplant in my thoughts.
  9. Hi Brianala, I'll add my welcome too. I was diagnosed with SSc in 2006 and at the same time with Raynaud's, pulmonary fibrosis, and pulmonary fibrosis. I had a full Nissen fundoplication about a year later, done laparoscopically. Prior to the surgery I was having constant, severe reflux. My fundoplication has worked extremely well. After an endoscopy last year, I am pleased to report it has held up beautifully. There seems to be a lot of controversy in the last couple of years about whether fundoplications are truly beneficial or not in cases of esophageal dysmotility. I don't think there
  10. Howdy, as we say here in the high and dry! Barn looms. Well, it depends on who you talk to, but most people will tell you that they are called that because they are built out of big (heavy!) timbers like a, um, well, a barn. True, but they were also, in the very old days, built and kept in the barn where the animals made it a pretty warm place. Mine wasn't that big, but she wasn't little either. The 2 that went to the consignment shop were small things. Now, the one I use every day is a big Swedish beauty, 120cm/47in weaving width. Like all of us here, I really need incentive to get moving an
  11. I sent a barn loom back to the old farm for my 'adopted' brother to use when the winter weather keeps him out of the fields and 2 more are going to our local weaving shop on consignment. (I still have one, so don't worry.)We don't have a sofa either - everybody always hangs out in the kitchen and dining room anyhow! We went digital for our reading entertainment and donated literally (no pun intended) hundreds of paperbacks to charity shops and wow, did that ever get rid of a lot of dust! My biggest downfall was paper clutter, so now I open it on the way back from the mailbox. It gets tossed i
  12. Great topic! The thing we did that helps me the most was to go with bare wooden or tile floors throughout the house. I'm enjoying our 4-legged kids a lot more now. A quick whiz through with a dust mop makes the place look like I have suddenly (after lo these many years) become a good housekeeper. We also tear our shopping list in half - Himself gets the bigger half (and gets to 'drive' his cart), while I get the shorter half and my own cart! Woohoo! We meet at the till and pay out as one. Another one of my favorite tips: instead of asking a store assistant where something is and then setting
  13. Oh Shelley, what a blow~ please know that the hearts of all of us who you have touched via the ISN go out to you. Love always, Jeannie
  14. I'm doing really well, confounding the doctors with my extraordinary recovery from that horrible illness last year, thanks. I think of you all quite often. Miocean, my SIBO was treated with week on/week off tetracycline. It took a while but eventually it cleared up. Re: domperidone. I'd suggest folks google "domperidone clinical studies" and read a number of them. I suspect you might find the published data more reassuring than alarming. Of course, any decision about any medication should be between you and your doctor and thought given to the good old risk/benefit analysis. The proble
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