I was diagnosed in 2006 with systemic scleroderma sine scleroderma, pulmonary hypertension, pulmonary fibrosis, and GI involvement. Other things secondary to scleroderma were also apparent at the time of diagnosis. Once I got over the shock of the diagnosis (I didn't feel well, but I certainly didn't feel really sick!) and accustomed to the idea that my 'normal' was going to be constantly changing, I have tried to maintain a positive attitude to the whole thing. I've become very interested in 'work-arounds' for the various challenges many of us face.
Scleroderma is an endlessly interesting disease and I've enjoyed learning about it, strange as that may sound.