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Everything posted by Jenny

  1. Jenny

    V beam laser

    Hi, Has anyone had the v beam laser done on face and chest for telangiectasia (red spots)?
  2. Jenny

    New Treatment For Telangiactasias

    Hi Jennifer, I also have tela. red dots on my face. I just started using a mineral make up also, I love it! If you want to know the name, please send me a P.M. I have never had laser treatment but was thinking about it... But you say you have gotten worse? How come? I thought that it would get rid of them? Sorry to hear that they got worse. Jenny
  3. Jenny


    Hi, Just wondering if anyone has had any pigmentation on their face? Im starting to get brown darking and blotchy darking on my forehead? Does anyone else have this problem? Thanks, Jenny
  4. Jenny


    Hi Sweet, What I use is a product that contains all herbs and botanicals. If you are interested let me know, and I will send you a PM. I haven't showed my rheumatologist the product yet but I will be this tuesday, so I will let you know hat he says. Do you know if your product is safe for sclero patients? Thanks Jenny
  5. Jenny

    Nitro Paste

    Hi Peanut, Did the nitro paste work for your Raynaud's? I have severe Raynaud's, just no gangerene or ulcers just always freezing.. Thanks, Jenny
  6. Jenny


    Hi Sweet, Thanks for your reply! If you have the name of the cover up I would love to have you PM it to me.. I have just tried one that is working quite well. Thanks for your help! They told me that the sun will make the browning worse? Jenny
  7. Hi guys, This is my first time on this forum or any forum, it's great! I'm 26 and have diffuse scleroderma. I'm desperately trying to find answers and healing just like everyone else! This disease is so frustrating and makes me feel so sad and angry everyday, as I love my life. I was wondering if anyone has heard of the use of IVIG or tried this therapy?
  8. Jenny

    Diffuse Scleroderma

    Hi Janey, I was just wondering how long is one treatment? My sisters was 18 months, but that's in Canada. Also, what do you take fpr arthritis pain due to the rain? It has been raining here for 5 days now and I'am so sore. Thanks So much
  9. Jenny

    Diffuse Scleroderma

    Hi Janey, Thanks for the reply! I live in BC, Canada so the treatments are free. The catch is the IVIG is not just handed out.... Thats awesome to hear its working for you!! I will be seeing my specialist soon as I live 14 hours away from my specialist. So I will be asking about this in May. It gets me so excited to hear positive things, I try not to get to excited though, try to advoid the disappointment. I believe there has to be a cure or something out there for this... I two have MCTD with Scleroderma, Lupus and Raynaud's. I was diagnosed when I was 21. I believe it was caused by hormones. I was on the birth contol pill, then was forgetting to take my pill. Went onto Depo-Prevera and wasn't working that well so switched back to the pill after I had recieved my 3month dose of Depo. Later about a month or so I woke up and couldn't move my hands. They put me on Prednisone and then about 3 hours later I moved them! Since then I haven't had any answers as to why my hands did this? I feel great and work out at 3 times a day and Supervise a Preschool/Daycare with 43 children! This I'am very greatful for, I just wish I didn't have it all......! I would love to hear your story if you will share? I 'am now 26 and trying to get pregnant. Do you have kids? Talk to you soon, Thanks so much! Jenny
  10. Jenny

    Diffuse Scleroderma

    Hi Heidi, Thank you very much for your support and reply. I want to know what people have tried and what worked? So many questions....??
  11. Jenny

    Saw My Rheumy Yesterday

    Hi there, I have diffuse sclero with Raynaud's, i am living in northern bc. I will be moving back down south as it is so nice and warm! I have severe Raynaud's, can you tell me more about the vitamin d? The doctors say that the cold will make the sclero flare up?Any feedback would be great Thanks
  12. Jenny

    Isosorbide Dinitrate (isordil)

    Hi Does anyone have teleganegies on their face(small red dots)? its when the blood vessels become diulated.
  13. Jenny

    Qualifying For A Clinical Trial

    Hi, Has anyone heard of IVIG and it's affects with scleroderma? My sister has Lupus and went on this for 18months and has been in remission for 5 years now.
  14. Jenny

    Qualifying For A Clinical Trial

    Hi, I have had diffuse scleroderma for 5 years and iam currently on plaquenil and pariet. I have only been on these drugs and prednisone. Do you think I would qualify for the scot? I'am 26 years old and my oirgans aren't affected, may be slightly on lungs, not sure if fibrosis on lungs or acid?