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About Bunky

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    Senior Bronze Member

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    California Wine Country

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  1. Hello Bruce and welcome! Wow, you and your wife have been through the ringer! I have no experience with rituxan, but there are others who may have. I sure hope you both find some answers soon. Take care, Bunky
  2. Dear Sweet Sadie, My love and best wishes are with you and your parents... XO Bunky
  3. Thank you all so much for your kind words. It has been a crazy, scary time, but my dad is much better, so thank goodness for that. My sister-in-law has a long road ahead, and my husband and I will do everything we can to help, but I've got to get myself more functional so I can be of help, so I really do appreciate the support and advice. I'm hoping for a more definite diagnosis, and tests to determine the extent of my internal involvement, and then of course a treatment plan. Thanks again, Bunky
  4. Hi Christy and welcome to our forums. This is a great place for support and information. We're glad you found us! Bunky
  5. Bunky

    Non Sclero

    Oh Sam, that is such wonderful news! Thank you for sharing it with us! XOXO Bunky
  6. Linda, So glad to hear you are home! Rest, rest, rest, and let us know when you are feeling better! Take care, Bunky
  7. Lisa, This is the first time I've read your post, and I am so grateful to you for doing all this! I do really hope you see some improvement (placebo or no placebo!). Thank you, thank you, thank you. Bunky
  8. Hi, here's an update on me. I finally am going to the sclero specialty clinic at the University of California San Francisco (UCSF) hospital on Monday. I was supposed to go last month, but my dad had a heart attack and then my sister-in-law was diagnosed with cancer, so I was out of town for 3 weeks. Right before all that (end of April) I had a sudden raise in blood pressure, ended up in the E.R. with a reaction to the blood pressure meds the on call doctor gave me, and I was supposed to see a cardiologist to make sure my kidneys and heart weren't being affected, but the cardiologists in my area wouldn't see me until the end of June. Very frustrating. So I will see the sclero dr. and hopefully they will help me deal with the blood pressure issue. (It's still elevated.) I really am hopeful it is not sclero related, and no damage has been done by waiting this long to have it all checked out. I have to admit I'm nervous, because I've been feeling pretty rotten. Severe fatigue, shortness of breath, and lots of pain in my hands and arms, the reflux has been worse, etc. I've been dragging myself to work and my kid's numerous activities, and then doing nothing when I get home. My kids would like me to actually cook dinner, but I don't have it in me. Well, maybe tomorrow. So much for my fitness routine. :) I'm bringing my husband to the appt. and we're both hoping for some definite answers, although do I really want to know? Take Care, Bunky
  9. Hi Luvbnmom3, I've had similar symptoms in my abdomen and upper legs, where I think my phone is vibrating, but I don't have my phone. I have it most often in my lower abdomen. Its like a spasm I guess. I haven't mentioned it to anyone before, but I see a sclero specialist in a week, and I was planning to mention it then. With so many questions and weird symptoms to ask about, I won't even know where to start! Anyway, I hope you figure this out. Take care, Bunky
  10. Oh Sadie, what an awful way to spend the weekend! I am so glad to hear that you are home and doing a little better. Hang in there! Take care, Bunky
  11. Hello and welcome Lorna! We are very interested to know more about you, and if there is any way we can be of help, let us know. Take care, Bunky
  12. I have elbow splints for ulnar nerve compression that I wear at night. They were given to me by my hand orthopedist. They have helped a great deal. I have chosen not to have surgery, but to splint long term instead. If I forget to wear them for a while, the pain level and numbness increases. They are made to keep my elbows mostly straight. I sometimes where wrist splints when my hand/finger pain is bad. It seems to help somewhat, although I don't seem to have carpal tunnel. I hope this is helpful, Bunky
  13. My doctor has me walking 40 minutes a day 5 days a week, which most days are very doable, plus my dogs like it, but some days or weeks my fatigue level is too much, and I know I can't do it. I am working up to jogging, and then hoping to start running again. I've been asked to coach track next year, so I want to be able to run with the kids, not just to tell them what to do, but to show them. I have nine months to get to that place, so wish me luck! I'm determined that I can still do all the things I want to, with moderation and balance. Of course, with this disease I will probably get knocked flat on my rear more than once, but if I keep on trying, I'll get there eventually. OK so that means get off this computer and go on my walk/run. Bunky
  14. Lucy, Barefut, Shelley, and Barbara, Thanks for your input. It gives me hope that maybe I can continue to protect my family with insurance. I will look into it. Lucy and Tru, I'm so sorry you are going through this disease without the support of your sons. Hang in there! Bunky
  15. So here's a loaded question--has anyone applied for life insurance AFTER being diagnosed with sclero? I have a term policy that will expire in a few years. I just assumed that would be it, I wouldn't be able to get insurance anymore. Bunky
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