PAULINE

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About PAULINE

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    Bronze Member

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  • Location
    Utah
  1. Hi Ozzy 69, I have been taking methotrexate for a year now and as long as you take your folic acid everyday you won't get sick on the day you take the methotrexate. I didn't take the folic acid the very first time I took the methotrexate. BOY DID I GET SICK! I feel like the methotrexate has helped. Hugs, pooder13
  2. Hi yogabear, I agree with you completely it is very beautiful this time of season. Iam visiting my sister here in Olympia and see has wonderful trees all around her. Iam from a small town in Utah called Bear River City and it's a great place but here in Washington it's like your camping in the big forest and the smell is wonderfull also. Here it always smells like the holiday season. Thanks for the reminder to just look around and soak the wonders of nature all in. Hugs, Pauline
  3. HI Whirlway, I am so sorry to hear about your sisters condition and I hope she makes a speedy recovery. As for your self hang in there and are thoughts are with you. Pauline
  4. DEAR FRIENDS, THANK YOU SO MUCH FOR THE QUICK RESPONSE. BAREFUT THANKS ALOT FOR THE EXERCISES.. I LAUGHED SO HARD AT THE COMMENT ABOUT THE MESSAGER CAUSEING WHAT WAS WRONG WITH YOU. THANKS FOR THE LAUGH!!! TJ903 I HAVE TMJ REALLY BAD ALSO, I DIDN'T KNOW THEY HAD SURGERY TO FIX IT BUT I DON'T WANT IT FIXED BAD ENOUGH TO GO UNDER THE KNIFE( HA HA). MARGARET ... I HAVE BEEN READING ALOT ABOUT GARETH TO THE POST HOW OLD IS YOUR LITTLE GUY I DON'T REMEMBER THE AGE? DID YOU FIND OUT WHAT WAS CAUSEING TO SWAT AT THE AIR? I HOPE HE IS DOING MUCH BETTER (BLESS HIS HEART).. NANCY' HOW LONG HAVE YOU HAD THE FACIAL PAIN? I JUST STARTED WITH IT TWO MONTHS AGO. THE DOWN SIDE OF THIS IS I CAN KNOW LONGER CHEW GUM IT JUST HURTS MY MUSCLES IN MY FACE TO MUCH. AND I LOVED CHEWING GUM ALL THE TIME. THANKS AGAIN TO ALL OF YOU. HUGS, PAULINE HUGGINS
  5. Dear Forum friends, I have been having alot of pain in my face exspecially threw my cheeks and jaw line and under my chin. It feels like one side of my face is tighening at a little bit at a faster pace then the other but the pain is the same on both sides. It hurts to open my mouth wide enough just to get a spoon of cereal in. Is anyone here having this same thing happening? If so what can be done if anything? Also sometimes if feels like something is pushing or sqeezing on my adams apple and when I feel it ,it is tender to the touch exspecially the top part of my adams apple. Thanks everyone, Pauline Huggins (Diffused withRaynaunds)
  6. Hi Erin, I am so sorry to hear that you are not feeling well and that you are scared about what the rheumatologist is going to tell you or not tell you. Even thou I don't post to often I read the sclero forum and it is the best support ever! In five more months I will be at my 1 year mark since I was told I have Diffused Scleroderma with lung and esphages involment plus Raynaunds. But I am feeling good and there are medicines out there to help with this illness. Keep in mind that they are comming out with new drugs everyday that possible will be what all of us need to be well again. For me the good days surpass the bad, This to I wish for you and all of us fighting this illness. Take Care and Look Forward to the help you will enjoy here on the Forum. HUGS Pauline Huggins
  7. Dear Nan, I am so glad that you don't have this problem and I hope you never get it. the Yeast issue how do they treat that in your esophogus and does it effect you when you eat? That just doesn't sound fun at all. How long have you had Scleroderma? I've only had it since August of 2006 it's the Diffuse kind that I carry(WHAT A UGLY MONSTER SCLERO IS!) Thanks Nan for writting me I love hearing from people . HUGGS, Pauline Huggins
  8. Dear Sweet and Lisa, Thank you for your quick replies I really do need some feed back on this. Lisa do you have Diffuse Scleroderma? have you had Sclero for 12 years? That is along time and I want to make it for along time to. I hope they soon find a cure for this ugly monster we carry around with us . Sweet, I hope you are doing well and feeling good. Thanks again to you both. HUGGS, Pauline Huggins
  9. Hi Everyone, Well today was the day to see if I was going to get help with my swallowing problem. Needless to say it didn't go as well as I'd hoped it would have.Last time I wrote in I told all of you that my esphogeas wasn't fuctioning anymore from the top of the esphogeas to the tail end of the middle. Well he wants to take more biops while he runs the tube all the way down my esphogeas to strech it to see if this will help. He said I will have to do this twice a year until it dosen't work anymore. Then comes the feeding tube, this leads to my question to you all. How long do these strechings last? I've had strechings befor but not this type. How soon do you the feeding tube will be needed? Please can you tell me so I will kinda have a idea about it? You sure don't have to worry about sugar coating because I like a straight forward answer. Or a guess even. thank you all so much. ps. just a little down today sorry. HUGGS, Pauline Huggins
  10. Dear Kamlesh, I am so sorry to hear about your pain. I personaly haven't felt my jaw shrink but I do feel pain in my jaw and the muscles along my jaw line. I know there has to be someone hear on the forum that can answer your questions. I am sorry that I couldn't be more helpful since you are in need of some answers. Hang in there. HUGGS, Pauline Huggins ( Diffuse Sclerderma since August 22, 2006
  11. Dear Margaret, I am so sorry to hear about your young son. So the doctor told you there is no hope in fixing the swallowing problem? I hope we can all find a medicine that will either stop the process of damage being done or repair the damage done. BIGG HUGGS, Pauline Huggins
  12. Dear Elechos, yes, I would like you to send me the PM about the jellybean problem. Thank you very much. HUGGS, Pauline Huggins
  13. Dear ElizaJ, You can ask any questions you want here at the forum and you will feel better about it. Some of the questions that stick in your mind the most write them down and take them with you into your next rheumatologist appointment because if you are anything like me I get in there and totaly forget half of my questions I wanted to ask. But it's nice to hash it out here with everyone else with the same issues. When is your next rheumatologist appointment? let's us know how it goes. HUGGS, Pauline Huggins
  14. Hi ElizaJ, I to am sorry to hear about your illness getting you down. I have dss and most mine is internal also with some tighting and swelling in my skin. I to get depressed but my meds help alot for that, but most of all the forum friends pick me up the most. Stay close to the forum and the help will just flow to you everyday and make you strong. I wish you nothing but the best ElizaJ! BIG HUGGS, Pauline Huggins
  15. Dear R'egene, I so appreciate all what you have told me and I thank you for that. How long have you had difficulty swallowing? Do you also have alot of problems with your lungs? My test showed I only have 30% lung function is this going to worsen ? and is this precentage bad? Sorry for all the questions R'egene but I'am just reaching for anymore information. BIG HUGGS, Pauline Huggins