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PAULINE

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Everything posted by PAULINE

  1. Hi Ozzy 69, I have been taking methotrexate for a year now and as long as you take your folic acid everyday you won't get sick on the day you take the methotrexate. I didn't take the folic acid the very first time I took the methotrexate. BOY DID I GET SICK! I feel like the methotrexate has helped. Hugs, pooder13
  2. Hi yogabear, I agree with you completely it is very beautiful this time of season. Iam visiting my sister here in Olympia and see has wonderful trees all around her. Iam from a small town in Utah called Bear River City and it's a great place but here in Washington it's like your camping in the big forest and the smell is wonderfull also. Here it always smells like the holiday season. Thanks for the reminder to just look around and soak the wonders of nature all in. Hugs, Pauline
  3. HI Whirlway, I am so sorry to hear about your sisters condition and I hope she makes a speedy recovery. As for your self hang in there and are thoughts are with you. Pauline
  4. DEAR FRIENDS, THANK YOU SO MUCH FOR THE QUICK RESPONSE. BAREFUT THANKS ALOT FOR THE EXERCISES.. I LAUGHED SO HARD AT THE COMMENT ABOUT THE MESSAGER CAUSEING WHAT WAS WRONG WITH YOU. THANKS FOR THE LAUGH!!! TJ903 I HAVE TMJ REALLY BAD ALSO, I DIDN'T KNOW THEY HAD SURGERY TO FIX IT BUT I DON'T WANT IT FIXED BAD ENOUGH TO GO UNDER THE KNIFE( HA HA). MARGARET ... I HAVE BEEN READING ALOT ABOUT GARETH TO THE POST HOW OLD IS YOUR LITTLE GUY I DON'T REMEMBER THE AGE? DID YOU FIND OUT WHAT WAS CAUSEING TO SWAT AT THE AIR? I HOPE HE IS DOING MUCH BETTER (BLESS HIS HEART).. NANCY' HOW LONG HAVE YOU HAD THE FACIAL PAIN? I JUST STARTED WITH IT TWO MONTHS AGO. THE DOWN SIDE OF THIS IS I CAN KNOW LONGER CHEW GUM IT JUST HURTS MY MUSCLES IN MY FACE TO MUCH. AND I LOVED CHEWING GUM ALL THE TIME. THANKS AGAIN TO ALL OF YOU. HUGS, PAULINE HUGGINS
  5. Dear Forum friends, I have been having alot of pain in my face exspecially threw my cheeks and jaw line and under my chin. It feels like one side of my face is tighening at a little bit at a faster pace then the other but the pain is the same on both sides. It hurts to open my mouth wide enough just to get a spoon of cereal in. Is anyone here having this same thing happening? If so what can be done if anything? Also sometimes if feels like something is pushing or sqeezing on my adams apple and when I feel it ,it is tender to the touch exspecially the top part of my adams apple. Thanks everyone, Pauline Huggins (Diffused withRaynaunds)
  6. Hi Erin, I am so sorry to hear that you are not feeling well and that you are scared about what the rheumatologist is going to tell you or not tell you. Even thou I don't post to often I read the sclero forum and it is the best support ever! In five more months I will be at my 1 year mark since I was told I have Diffused Scleroderma with lung and esphages involment plus Raynaunds. But I am feeling good and there are medicines out there to help with this illness. Keep in mind that they are comming out with new drugs everyday that possible will be what all of us need to be well again. For me the good days surpass the bad, This to I wish for you and all of us fighting this illness. Take Care and Look Forward to the help you will enjoy here on the Forum. HUGS Pauline Huggins
  7. Dear Nan, I am so glad that you don't have this problem and I hope you never get it. the Yeast issue how do they treat that in your esophogus and does it effect you when you eat? That just doesn't sound fun at all. How long have you had Scleroderma? I've only had it since August of 2006 it's the Diffuse kind that I carry(WHAT A UGLY MONSTER SCLERO IS!) Thanks Nan for writting me I love hearing from people . HUGGS, Pauline Huggins
  8. Dear Sweet and Lisa, Thank you for your quick replies I really do need some feed back on this. Lisa do you have Diffuse Scleroderma? have you had Sclero for 12 years? That is along time and I want to make it for along time to. I hope they soon find a cure for this ugly monster we carry around with us . Sweet, I hope you are doing well and feeling good. Thanks again to you both. HUGGS, Pauline Huggins
  9. Hi Everyone, Well today was the day to see if I was going to get help with my swallowing problem. Needless to say it didn't go as well as I'd hoped it would have.Last time I wrote in I told all of you that my esphogeas wasn't fuctioning anymore from the top of the esphogeas to the tail end of the middle. Well he wants to take more biops while he runs the tube all the way down my esphogeas to strech it to see if this will help. He said I will have to do this twice a year until it dosen't work anymore. Then comes the feeding tube, this leads to my question to you all. How long do these strechings last? I've had strechings befor but not this type. How soon do you the feeding tube will be needed? Please can you tell me so I will kinda have a idea about it? You sure don't have to worry about sugar coating because I like a straight forward answer. Or a guess even. thank you all so much. ps. just a little down today sorry. HUGGS, Pauline Huggins
  10. Dear Kamlesh, I am so sorry to hear about your pain. I personaly haven't felt my jaw shrink but I do feel pain in my jaw and the muscles along my jaw line. I know there has to be someone hear on the forum that can answer your questions. I am sorry that I couldn't be more helpful since you are in need of some answers. Hang in there. HUGGS, Pauline Huggins ( Diffuse Sclerderma since August 22, 2006
  11. Dear Margaret, I am so sorry to hear about your young son. So the doctor told you there is no hope in fixing the swallowing problem? I hope we can all find a medicine that will either stop the process of damage being done or repair the damage done. BIGG HUGGS, Pauline Huggins
  12. Dear Elechos, yes, I would like you to send me the PM about the jellybean problem. Thank you very much. HUGGS, Pauline Huggins
  13. Dear ElizaJ, You can ask any questions you want here at the forum and you will feel better about it. Some of the questions that stick in your mind the most write them down and take them with you into your next rheumatologist appointment because if you are anything like me I get in there and totaly forget half of my questions I wanted to ask. But it's nice to hash it out here with everyone else with the same issues. When is your next rheumatologist appointment? let's us know how it goes. HUGGS, Pauline Huggins
  14. Hi ElizaJ, I to am sorry to hear about your illness getting you down. I have dss and most mine is internal also with some tighting and swelling in my skin. I to get depressed but my meds help alot for that, but most of all the forum friends pick me up the most. Stay close to the forum and the help will just flow to you everyday and make you strong. I wish you nothing but the best ElizaJ! BIG HUGGS, Pauline Huggins
  15. Dear R'egene, I so appreciate all what you have told me and I thank you for that. How long have you had difficulty swallowing? Do you also have alot of problems with your lungs? My test showed I only have 30% lung function is this going to worsen ? and is this precentage bad? Sorry for all the questions R'egene but I'am just reaching for anymore information. BIG HUGGS, Pauline Huggins
  16. Dear Emmie, I am so upset at the fact this came from a Sclero expert so called DOCTOR! How dare he! And for the nurse I thought you had to at least have compassion to work with ill people. I guess that she wasn't loved enough when she was a child. I want you to know that no one should take such cruelness from a health provider. I am so sorry you had to hear this rubbish that's all you needed right! You take care and we hope nothing but the best for you in your search for a new doctor. HUGGS, Pauline Huggins
  17. Thanks Emmie, It is great to have somewhere to go to vent . I really like to hear anyone's suggestions on what to do or what not to do. Thanks to everyone on the board I truly apprecate you all. HUGGS, Pauline Huggins
  18. Dear Sweet, I am so sorry about all what you have had to endore and all the up comming test you have to go threw. I can't believe how long you have to travel I bet you are so tiered by time you arrive home. Have you been having alot of memory loss since you've been dignosed? I don't understand why the doctor couldn't write his personal input about your fight against this terrible illness and how it has engulfed your life. It's not like your lying to get lots of money so you can live it up and travel and to party everynight. I hope it all turns out well for you Sweet I really do. I hope all will go well for you in the month of January so you can have a great start inthe New Year. HUGGS, Pauline
  19. Thanks to all of you and I will let you know how things go after the 10 of Jan. Elehos I to had to wait three months to see the rheumatologist to find out what was going on , it was a long wait just to wait some more but I know it will work out in the long run. Sweet, thanks for your input I really need it. Hedi Thanks for saying there is meds out there to fix's this swallowing ordeal. BIGG HUGGS, PAULINE
  20. Thanks to Elehos and Janey, My rheumatologist is a specialist and right now he is just treating my symptoms, but wants to see me right after I get back from the GI doctor on the 10 of January. Right now the only thing I am taking is Celebrex, Protonix, and Pain meds for my rough days. Elehos, will you please let me know what the doctor tells you about your swallowing problem when you get to see him? Janey, I will check into the site you have given me. Thank you for that. BIG HUGGS, Pauline Huggins
  21. Hi Everyone, I 've been having some swallowing problems and would like to tell you all about my latest Barium Swallow. The statement wrote out from my Rhym to take to the gastronuraligist( don't mind my spelling am not to good at it.) It states, 1. LONG AREA OF NARROWING IN THE MID ESOPHAUS WITH DECREASED PRIMARY AND SECONDARY CONTRACTIONS AND DELAYED EMPTYING OF BARIUM BOTH IN THE UPRIGHT AND PRONE POSTIONS. 2. SLIDING HITATAL HERNIA WITH SCHATZKI B-RING AND MILD GASTROESOPHAGEAL REFLUX. 3. MOTILITY CHANGES IN THE ESOPHAGUS ARE CONSISTENT WITH SCLERODERMA INVOLEMENT IN THE ESOPHAGUS. My doctor told me that maybe the gastro-doctor could help me. It always feel like my food won't go down or stay down even with drinking alot of water with my meals. I've had my esophagus streched twice then they decided to do the Barium Swallow. Do you think this problem can be fixed? or do you think in the long run that I will end up with a feeding tube? I have only been dignosed for four months with dss, It seems to be attacking pretty quickly. My lungs only have 30% function and I continue to be short of breath even when I just make my bed. I sad and getting a little be more scared at each passing day. I just needed to vent and cry on your sholders for a minute or two. If anyone can tell me what all of this means with the swallow I would greatly apprecate it. HUGGS, Pauline
  22. Hi memetos2, I to have Diffuse Scleroderma I was told this in August of this year. I was wondering if you could take me through the steps what you have gone through in your first year of diffuse sclero. I am sorry to hear about your hospital stay, I hope they got the clotting problem under control. How did you know you had them? Is this something I need to worry about getting with this illness? I am just recently new to the board also and would like to hear from you agian on whats going on with your health. HUGGS, Pauline
  23. Hi BeanPole, I will try the oat extract lotions to see if it will work for me. Somedays is worse then others when it comes to the itching. Thanks again for the help. HUGGS, Pauline
  24. HI Everyone, Thanks to Erin and Hedi for your help I will look into the site you have provided for me. Thanks for the welcome. Thanks a Bunch, Pauline
  25. Hi Everyone, I was told on August 22nd that I have Diffuse Scleroderma I have tightning of my face,hands,wrist,forarms,feet,ankles. I also have had Raynaunds for 5 years. but this past week and a half I have had alot of itching problems on my hands wrist ,feet and ankles. Is this from the slero? Or am I just going nuts here? Can you please tell me if any of you have this problem. Thanks a Bunch, Pauline
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