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jenee

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About jenee

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  1. Hi Barefut, My neighbor has MS the progressive kind :) We shared notes one thing she has that I don't is really bad balance, and neurological problems. She doesn't has raynauds or GI symptoms. She doesn't have the red spots, or puffy hands etc She also has alot of nerve pain and painful muscle spasms. She also has memory problems and emotionally problems I.e she gets depressed. Getting depressed can happen to anyone with a chronic disease though :) Memory problems can be due to fatigue. Anyhow, in order to get her diagnosis she had the MRI of her brain plus a lumbar puncture te
  2. That was a good catch. Hope all is well with them. Jen
  3. Hi Barb, Welcome to the site!! Sweet is right Plaquenil has anti inflammatory properties might be something to mention to your doctor. How are they treating your Rheumatoid Arthritis? Look forward to getting to know you better. Jen
  4. Hi, My primary doctor noticed the Livedo Reticularis in my legs and arms much like Shelley. It is a lacey rash, look up Lacey rash on the internet. Anyhow, I am being tested for the numerous antibodies to antiphospholipid syndrome. I haven't been diagnosed with APS yet, that is what antiphospholipid syndrome is called. The rash is harmless and doesn't really look scary or bad just something a doctor would notice :) However, the problem with APS is clots, which can be harmful. I am not on Birth Control as Estrogen can make an event like a clot more likely, it is kinda li
  5. Hi Kiwi, I am glad to hear that. If it were me, I wouldn't worry too much about the APS. Your doctor has you on Plaquenil which does have anti-clotting properties so that could cover the possible APS. You might want to talk to your rheumatologist about taking a aspirin a day as long as you can tolerate that. The other drugs for APS can have more negative side effects. Good luck :) Jen
  6. I have no experience personally with lung problems and I am not a doctor, but I believe that a 1/3 of CREST patients can develop lung problems. I am not actually sure what type though :) I think the CT Scan would be much better then the PFT test to pick up early problems. The CT scan could pick lung problems or abnormalities before they cause Lung Function Problems. On the flip side PFT is not invasive whereas the CT Scan does expose you to xrays, and is considered more invasive. I wouldn't worry too much, plus some cases of CREST are worse than diffuse, and vice versa it jus
  7. Yea, I have read that too several times, but I still forget somethings time to time. I have a problem remembering to use Generic names like NSAID's instead of brand names. I am sure there are other boo boos I make that I am not aware of :) Jen
  8. Hi, I am sorry you are going through all this at your young age, but I justed wanted to say welcome and hi. Jen
  9. I think (I am not a doctor) that the external telangiectasias are benign, and generally just a cosmetic concern. However, if I had them popping up left and right, I would probably want an endoscopy just to make sure there are no internal ones in the stomach, which can cause GAVE. GAVE can cause serious bleeding and be quite serious. GAVE is also pretty rare :) So, I wouldn't worry to much about it. I have no idea about liver hemangiomas but I am sure Shelley is right. Jen
  10. Hi Everyone, No, I was like Shelley thinking the spots on your chest is a normal variant but I will say something to him. It doesn't hurt and who knows it might speed up the diagnosis. There are alot on my chest. I will also mention the ones on my lips and face. Do any of you have these spots on the roof of your mouth, just curious? I am not a fair skinned person, more medium tone I suppose, but I bruise and bleed easily so they could fit in with that. The bruising has been happening since I was a teenager. I was tested for it in the military because I was black and b
  11. Hi Bragabit, I have a few questions for you :) Do you have any other symptoms like joint pain, fatigue, Raynaud's, and GI problems, etc other than the hard spot. My next question is the pain, fatigue, hard spot, etc severely affecting your quality of life? What are your swallowing problems? What tests did you have for the swallowing problem? Anyhow, If I were you I wouldn't worry too much about the hard spot unless lots of other things are going on. I have the same thing on the side of my pointer finger and it is not a scleroderma skin issue, I don't know what
  12. Hi Guys, Well I just came back from the rheumatologist, and I had the GI (gastro intestinal) Upper Endoscopy about a month ago. The endoscopy revealed that I have erosive Esophagitis Grade Two, several areas of erosion in my stomach and a ulcer in the antrum of my stomach. I am taking a PPI (proton pump inhibitor) now called Zegerid. I wasn't too alarmed about the results until the speech lady :) The ulcers are from, I guess, taking naproxen during my period? Perhaps my stomach is sensitive, who knows? He suggested I not take the naproxen but my menstrual cramps are too bad to a
  13. Hi Miachelj, I am sorry about your troubles and hope things improve. I myself am not diagnosed and do not have as much knowledge as these ladies on the board but will try to help. I am not a doctor or even in the medical field so take my info to form questions for your doctors. I do have a few questions, what are they treating your lupus with? What tests did they do? My understanding is that sclero is treated as the symptoms arise, the ladies here with more experience will chime in if I am wrong. So, anyhow symptoms get treated individually so things like your GERD would
  14. I am so sorry for your loss. :(
  15. Hi Stef, Everyone is right you need to FIRE this guy. You need a doctor you feel comfortable with. I suggest finding a new Rhemumatolgist since this is important to have. Tell us where you live and maybe somebody here can give you a good referral. I am from New Mexico and Janey gave me some good recommendations. Luckily for me I have not gone through what you have, and I think it is terrible that you doctor acted so unprofessional. Personally, I think behavior like that is uncalled for and you did not do anything wrong! Please tell us where you live and someone will chime in wit
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