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Tootired

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About Tootired

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  1. I am new to this site and have already learned so much about limited scleroderma, which I've had for about 15 years. I am now having "disturbing" symptoms - bouts of uncontrollable diarrhea. I have read that many people with systemic sclero have IBS and other intestinal problems, but did not see anything about limited scleroderma bowel involvement. Yeah, the severe Raynaud's and living in Western NY, is no picnic, but this has really interfered with my life. Also, I recently had a heart attack. I am a regular exerciser, not overweight, low cholesterol and good ratio, so I am totally shocked that this happened, especially at the completion of a 30 mile bike ride. Hiked the Grand Canyon a week prior to the "event" (still hate to write "heart attack"...). Are cardiac conditions associated with CREST/limited scleroderma? Anyone out there that has similar diagnosis and is aware of this association with Limited scleroderma, please respond. Thanks, tootired (but, hey, that seems like something I shouldn't complain about..now!)
  2. Thanks for the reply. I think (and hope I'm correct..) that systemic scleroderma is different in symptoms from CREST. I appreciate everyone's responses, but I have CREST syndrome, and, from my "research" which scant, I found heart involvement is rare unless associated with pulmonary fibrosis. So far, I've found this site to be incredibly helpful. The last "forum" I joined had only 13 members with scleroderma and no one answered posts.
  3. Thank you for your response and the information sites.
  4. I am new to this site, but not new to scleroderma. I was diagnosed over 25 years ago, and have not had serious symptoms until lately. I am losing a lot of strength in my hands and have GI issues. At 60 years old, I expect problems, but didn't expect a heart attack. I exercise regularly, am of average weight, have a very low fat diet (GERD with Barrett's), and a total cholesterol of 159 with a good ratio. I didn't expect to have a heart attack after a 20 mile bike ride. I had been riding regularly and had no symptoms of impending heart stress. My RDA was almost totally blocked and I was fortunate to be near medical help. Is there any association of CREST with heart disease?
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