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About Tawanda70

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    Waxhaw, NC

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  1. Hi Kaz! I too have hypothyroidism. When I first consulted my doctor, he said it sounded like hyperthyroidism. The test came back stating the opposite! I take my thyroid medication every day and feel much better from it. I only have to have a yearly blood test to make sure the dosage is appropriate, but I will never forget how I felt before the problem was discovered. Warm hugs to you!
  2. Hi Ellie. So glad you found this forum. Sorry to hear what is going on... your symptoms are so close to mine. I first saw a rheumatologist that told me there was no cure, little treatment and to just "deal with it". Needless to say, I never went back and have been treated by my general practitioner since. I have an appointment with a new rheumatologist this month that has some knowledge of this disease. The closest rheumatologist to me that is a specialist in scleroderma is too far away, so I hope I am happy with the one that I am going to see. There is not much more that I can add, as ev
  3. Miocean, belated congratulations!!! :emoticon-congratulations: May you continue to do well and I am saying many thanks for your one-year anniversary :)
  4. Thank you all so much for your encouragement! Healing has been slow, but steady. Totally amazing (and a relief!) that there is NO reflux. Still occasional nausea, but that's normal right now. Next step is to see my gastroenterologist on what do to about the 67.5 average on my acid pH. Had follow-up with the surgeon and the only small issue is adema in spleen and stomach... and of course he said that is due to me doing more than I need to right now. No biggie and this too shall pass. One thing I did not expect was to get a text from a "friend" saying that I was "acting weird" and she was no
  5. So far, I have had no reflux! Still healing from the surgery, but happy to report that my surgeon said it was "text book". Incisions look great, still walking around with soreness, but of course that is to be expected. I think the gas that settled in my shoulders has aggravated the inflammation in my joints and that hurts almost as bad as my belly! My 15 year old stayed the night in the hospital with me and was such a blessing. All the alarms going off for more oxygen, low saline bag, low pain meds in my pump, were taken care of by her. I didn't know I was in the world, but she really came thr
  6. Can't add much more to what everyone has said on this thread thus far. I was diagnosed at 17, but when you are that young, you never think anything will happen to you. Now that I am 40, the past 3 or so years have been difficult. My first rheumatologist told me "there is no cure, so you are going to have to deal with it!" Needless to say I never went back to him! Family and friends just don't understand, so have them read The Spoon Theory. It will also help you realize how to proceed with this disease. Good luck and come here often... I no longer google anything. I come here for the real
  7. Hello everyone! Hope this post finds you all symptom-free (or at least feeling well). My fundoplication is scheduled for tomorrow. Although I am so looking forward to no more spontaneous vomiting, heartburn and further esophageal erosion, I am feeling the usual trepidation about it. Luckily, I have some wonderful friends and family who will be making meals for my hubby and children and filling in on my taxi-mom duties, etc. I have heard from some of you that your surgery was a success and would love to hear more from those of you who have had it. My surgeon has a 90% success rate, has done ove
  8. Cecilia, This forum is certainly the BEST in my opinion! I was diagnosed at age 17 (now 40) with CREST, with an updated diagnosis of systemic scleroderma. Warm welcome to you. Everyone has so many different symptoms of this disease, we are not all the same. BUT, we have each other here and it has helped me a great deal to stay away from my own pity parties. Much luck to you
  9. Dear Jeannie, Hate to hear all that you are going through... one thing that struck me, though. Your spoons are tarnished, so that means they are silver! And where there is silver... there is a lining :) My spoons are plastic and I broke all of them this week. Sunday was 13 hours of competition dance for my little one, Monday had to admit my eldest daughter to the hospital for 9 days vomiting, dehydration and diagnosis was Abdominal Migraine. We finally got home Wednesday and on Thursday, I was unable to get out of bed. Stress is a monster for me. This morning I woke up with terrible ch
  10. Hi there J. The replies to your post I cannot emphasize enough are so true! I am going through that also... we all do. My own mother wants me to hide my disease from my children ( girls ages 15 and 8) so I don't scare them or worry them. My sister is a registered nurse and doesn't seem to get it. She went so far as to say (and I never got this diagnosis) that doctors just give people a Fibromyalgia diagnosis just to make them happy. Arthralgia is certainly a part of this disease, but I would never mention this to her because all I would get is the rolling of the eyes. It is hurtful to tho
  11. Alice, does your esophageal manometry results prevent your surgery? I still have enough function to allow for the surgery. Now, if that goes one day for me, it will be dealt with then :huh:
  12. I forgot... one more question. Prednisone... how has steroid treatment worked for any of you? The Omeprezole I take (at highest dosage and been on for quite a while) 'melts bones' over time and I know steroids do the same. My grandfather-in-law had Lupus and took steroids and was fine on them, other than some swelling. I am concerned about osteoporosis later in life as well as bloating up and being crazy from side effects from steroid treatment, not to mention the bone loss. Any insight would be greatly appreciated :)
  13. Happy New Year to all! My fundoplication has been rescheduled for February 23, and this time I will not cancel (hubby would choke me if I did ). I am in the process of scheduling an appointment with a rheumatologist who was referred by a wonderful lady who works in the lab at my general practitioner's office. She has Scleroderma too... what a small world. When I was in there for a routine check of my thyroid levels, I told her my diagnosis, as she had asked what brought me in that day. She looked at me with such surprise and said she had it too. We got all teary eyed and we hugged
  14. You are all so wonderful for the encouragement that I really need right now. Last two days spent in bed so I could have enough spoons today. I shared "The Spoon Theory" with my family and close friends and last night, two of my friends came by with a bouquet of spoons and flowers for me that they put together with all their love. One of those friends has an 11 year old daughter who was recently diagnosed with Lupus and a very rare (no name for it) blood platelet disorder. Now she understands how to help to daughter learn how to manage her spoons! I will try to post the pic of my bouquet on her
  15. Thank you all for your posts. "The Spoon Theory" is great! Definitely will use it as a tool for my family/friends to have a better understanding of what my days are like. Mopsy, glad to hear your surgery was a success! I cannot imagine at age 21 dealing with all of this. I did call my surgeon to reschedule the surgery. My husband and I had a long talk about it last night and we have a "plan" to deal with the surgery, post-op, and coming home to heal. My girls are all "promising" to be helpful during this time and at all times my days aren't as good as others. Funny how my mother (ret
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