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birdie

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About birdie

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  1. Thank you! Keeping my fingers crossed. Thanks for the input.
  2. Yes, am seeing a rheumatologist guy. He is rather vague about this problem, however. He has diagnosed me with crest and keeps watching lung and pulmonary function.
  3. Thanks for the support. If this doesn't work, will try something else.
  4. Hi: I am new to all this and still in denial about whether I have scleroderma. I have had raynauds for over 30 years and have developed a low motility esophagus within the past 6 years, with significant Barrets. I have had a steady progression of losing control of my bowels over the past 10 years. At first it was only when I stressed myself physically. I like to walk marathons! My OBGYN said this. .....but it got worse. So I went the biofeedback route and also did a secca procedure. (figuring if I really have scleroderma, my bodies ability to overproduce collagen would help!!). After 7 months, the results were underwhelming, so I am now trying out a sacral nerve stimulation device to see if that helps. This is an extremely embarrassing symptom, and I hope this electrical device will help. Anyone have this problem?
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