jlph62

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About jlph62

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  1. I had the argon plasma treatment today, and it was not as bad as I thought it would be. The only uncomfortable part was that I was not given enough to put me out and the tube really bothered me. I have to have it done again in 3 weeks and the doctor said she would be sure to see to it that I receive enough medications so it doesn't bother me at all. No pain afterwards just a long 2 hour drive home. Joanne
  2. Thank you for all of the warm welcomes. I am a little less nervous reading that others have had no problem with this procedure. In addition to GAVE; I also have Raynaud's, GERD, lot's of inflammation, pulmonary hypertension, fibromyalgia, chronic fatigue, as well as some kidney issues. I am also a diabetic. Thank goodness I have a really good primary care doctor who got the ball rolling (it helps when your fingers turn blue in front of him). I now see a rheumatologist, nutritionist, and a gastroenterologist. It did not take long for me to get a diagnosis, the only hard part is since I look well on the outside nobody (especially family) really believes there is anything wrong with me. Thanks for listening Joanne
  3. I was diagnosed with watermelon stomach in February. On Thursday May 28th I am going to have the Argon Plasma Coagulation. I was wondering if someone who has had this done could tell me a little about their experience. I have scanned the internet and cannot find any information; only the fact that watermelon stomach is treated this way. Thanks Joanne
  4. Hi this is the first time I have posted, but have been lurking in the background. I was just officially diagnosed with limited systemic sclerosis last week. I have Raynaud's, GAVE (watermelon stomach), GERD, aches and pains, and am very tired all the time. I applied for Social Security in July 2003. Within 3 weeks I was given presumptive SSI. This made it possible for me and my kids to barely make it and we had to move into government housing. I received it for 6 months and then started receiving SSDI. It is true that you have to wait 2 years for medicare, but in my situation because my monthly amount was so low I still qualified for medicaid with a spend down. It all comes down to the information the doctor gives them and the case worker that is assigned to you. I hope it works out for you very quickly. Now I babysit 3 days a week and still receive my full check from Social Security because I earn less than 900 dollars a month. Joanne