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About doodlehead

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  1. Hello, has anyone had old scars become more visible and thicken?. This is happening from my hands down to my ankles(I was a clutz as a kid and have plenty!). Also I have abdominal insisions and they are hypertrophic. Im still classified as undifferentiated connective tissuse disease. Im not hoping for sclero(or anything else for that matter) just tring to find as much info on autoimmune conditions as I can.
  2. I was wondering if there are any subtle signs of the beginning of sclero mouth (other than the dentist saying please open your mouth wider even though they can see that your lips are pretty small and tight). I have a line on the bottom part of my bottom lip, it looks like a perfectly drawn scar. I have just noticed small white bumps under the skin on upper and lower lips (they are very small I have to stretch my lips to see them and they are under the skin). Because of sicca syndrome I inspect my teeth and gums pretty regularly and have never noticed them before. Some days I think I'm beginning to see things that I just haven't noticed before or they were there and I just didn't pay any attention. Goodness, am I turning into a hypochondriac? :unsure:
  3. I seem to have a delayed then exaggerated response to injury. It started I n November 2008. I was drinking a calorie supplement (due to unexplained weight loss) and dropped a bottle of it on my foot. Well at first it felt like a dropped a bottle on my foot, a little sore but nothing abnormal. I was tired so I took a nap. Woke up 2 hours later and couldn't walk on that foot. I actually thought I broke it but it wasn't swollen or red. Next time I bumped the inside of my knee on a coffee table, same thing happened. I didn't hit it hard enough to cause a bruise but couldn't walk on that leg (right side this time.) Next time my cat bit my left foot (bad kitty) I cleaned it out, put antibacterial ointment on it, it just felt a little sore but no big deal. I went to bed and when I woke up the next day the pain was excruciating. I ended up going to the ER and they said I probably had a bacterial infection (common in cat bites) The doctor there could not believe the pain I was in from it. After I explained about my autoimmune condition he just chalked it up to that. They gave me antibiotics and sent me on my way. I refused pain medications due to GERD and IBS. I can't take anything but Acetaminophen which doesn't help much but I really have no other choice. Some things are really weird.
  4. Shelly, Thanks for the quick reply. I am trying to get as much info as possible (in little chunks, this really is overwhelming at times). Like I said my rheumatologist seems hesitant to give me any definitive answers. I understand that autoimmune diseases resemble each other and that it takes time to be sure what you have to administer the correct treatment. I just have a hard time with all the symptoms I have and being told that they probably are not related. Without going into detail (my right hand and forearm won't allow me to type that much) I don't know of any "healthy people" that have experienced any of the conditions I have let alone multiple ones at the same time. I am so glad I came across this website. It reassures me that I am not going nuts (ok maybe just a little that one I have seen in "healthy people") Thanks again Doodlehead
  5. I too have multiple telangiectasias. The first one appeared on the inside of my lower lip. Now they are on my face, upper arms, neck, chest and abdomen. I had a CT scan (actually 2) and was told I had a hemangianoma on my liver (2nd CT showed 2). Could these be internal telangiectasias? My next rheumatologist appointment is next month. I guess Ill ask him (even though he seems reluctant to give me a definitive answer to anything). Maybe it's just another unsolved mystery :mellow:
  6. I haven't been diagnosed with scleroderma. My rheumatologist classified it as undifferentiated connective tissue disease (UCTD) right now but lab and physical look like sclero (some things lean to lupus also, could this be overlap?). I have the red spots on face, chest, arms and now they are starting to show up on my belly. I have skin thickening right below my right eye and at the corner (next to tear duct). I have had many other symptoms for years (joint pain, fatigue, unexplained weight loss, gynecological issues (premature ovarian failure, early menopause, etc.). When I had surgery (4 times) all of my scars became extremely fibrous. Any time I get even a small cut it takes forever to heal and then becomes thickened. I'm not hoping for sclero but it would be nice to know what I'm dealing with. I'm new to this website and am finding it extremely helpful. At least now I know I'm not the only one that has been searching for years for a explanation as to what's been going on (other than hearing we can't find anything physically wrong, must be in your head). Thanks guys! :rolleyes:
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