Jump to content
Sclero Forums

chockers

Members
  • Content Count

    133
  • Joined

  • Last visited

Everything posted by chockers

  1. chockers

    Warm fashion for Raynaud's.

    Idea, You can buy heat pads and a wrist fleece thing that holds a heat pad and are fingerless. Christine
  2. chockers

    Warm fashion for Raynaud's.

    Try magic gloves or cotton gloves for the computer. I don't like silver gloves as they make my hands colder, but they might be ok in a office on a computer, or half-fingered gloves. Good wishes with keeping wrists warm, christine :emoticons-group-hug: :emoticon-dont-know:
  3. chockers

    Warm fashion for Raynaud's.

    Well most of the time I am cold. It has got worse and this week the hospital might put me on the nifedipine all year round; also I'll see what they say about increasing the Methotrexate (still on a low dose). Looking smart.... well, that's gone out of the window; got too many clothes on. I find 3 layers might be okay; vest, long sleeve jumper with matching colour on top, jeans and long socks. Later when cold; long socks and a pair of short socks, long johns, sheepskin boots, hat and gloves (spare pair for going on top with good coat). Sometimes 2 vests or tee shirt vest. Crazy! I need sorting for cold but this weeks hospital appointment will hopefully do this. Christine.
  4. chockers

    Does this happen to you?

    You can get some favourless toothpastes; you won't buy it in supermakets though. Try biotine toothpaste. Christine
  5. chockers

    My Temperature was 35

    Nurse has told me to ask the RA man about low dose all year round, as she was looking at my BP. I have an appointment in August. christine
  6. chockers

    My Temperature was 35

    Hi Folks I have rheumatoid arthritis with overlap scleroderma and Raynaunds. Just lateley if I have got cold my temperature has gone down to 35. Also I have been like this when I have had a fever. Last time I had a fever I had trouble it got to 40 and the lowest was 35. I also traveled home on a cold bus and my feet got cold and walked home half a mile with feet very cold and numb pulling a bag behind me which would had thought would had warmed me up. Do I need to speak to the R.A. nurse next time I see her? Does anyone else have this. I take nifedipine in winter wonder if I should take it in summer? I am also still wearing winter clothes as can't keep warm sometimes. Christine
  7. chockers

    My Temperature was 35

    Thank you. I am a lot colder this year . I wonder if I should take Nifedipine all year round? I have had changes (slight) since I have been on reduced Methotrexate(liver). I shall see someone; the nurse in July and R.A man in August. love Christine
  8. chockers

    Facial rash/spots

    I have to use a emollient cream its like lard but stops the face drying out and flaking and the more you use it the better the skin becomes. I take a pot every where I go. When washing my face it's done with the emollient cream then when dry I put more on. Christine
  9. chockers

    calcinosis gone to pot

    Today calcinosis Another lump popped out ha ha now have a small one. Christine
  10. chockers

    Facial rash/spots

    Cover up might be the worst thing, I think it started off my dermatitis and I have never got rid of it. I can't use most things on my face now. The best thing is get it under control and then you may have a pink face. I found community dermatologist nurse the best as she had time to sort it and I got some camouflage make up from the red cross and it covers everything. Christine
  11. chockers

    Facial rash/spots

    Well I have big skin problems, all to do with my auto immune system not working. So it makes you prone to rashes. Try making an appointment with the community dermatology nurse, then try to get a referral to the hospital dermatologist. Now the dryer the skin the greaser the ointment you must put on. As creams just go in and 5 mins later skin is dry again, I use an emollient ointment looks like lard I wash in it and then rub some on and keep the face greasy if it's dry which might mean twice in a hour a few times a day. I have acne Rosacea and seborrhoeic dermatitis .I have it in my hair, face, ears and chest ( rare ), I would recommend the community dermatologist nurse as they have time to see what works and what does not and can inform the hospital better. You might have a fungal thing on your face, mine never ever goes; I expect I have it for life .Good control or a red face. I find hospital fine but really as the appointments are so far between them you need the nurse as well. She knows me well now and all I have to do is ring her and I don't have to see her. You need ointment rather then cream sometimes and you could have more then one thing wrong with your face with me it's a pain in the neck. The rosacea needs one cream the rest needs other stuff. I also need anti biotics for spots as they won't go very easily. Christine
  12. chockers

    Calcium Lump Removal

    I have thought if my finger is still mucking about next year I thought, you know. I will ask to have the end removed or end of my finger chopped off . Maybe that would be the end of a sore finger that has to be covered up :emoticons-line-dance: But how many more lumps am I growing? :great: Ha ha I will end up with stumps
  13. chockers

    calcinosis gone to pot

    Update I have cancelled swimming until May. I now wear a mepore dressing on the end of my finger as that's the most comfy thing to wear. I keep it on most of day, cooking I just put latex gloves on, I just pop a glove on for messiy bussness and I wash my hands with the finger out of way. Washing up and cleaning I wear rubber gloves. It has changed a bit and now it looks like there's a bit more to come out, it's sore, painful to touch. It does not stop me from doing anything apart from swimming. I might buy a cast to cover it and go swimming but I have child like hands so won't be supprised if they are too big? I suppose I will be like this for a while? Christine :happy-dance:
  14. chockers

    Colonoscopy

    Hi I have had both. The worst was the diet beforehand. I knew nothing of the top end, was sound asleep, the bottom end I woke in middle and saw my insides on the t.v bit but it got painful so they just gave me a other shot and was out for the rest of it . Nothing to it really; the thought is worse. Diet was lovely bovealy and the running to the loo clear out time ha ha they give you something to drink to clear you out. Otherwise not much too it. Christine :emoticons-line-dance:
  15. Hi Folks. I have scleroderma overlap with Rheumatoid Arthritis. I am well controlled. I got a copy of my bloods for insurance reasons and to fly out and I see on there they are testing me for CREST though I've not been told yet. Guess they might be still testing me? I have Raynaud's, Calcinosis, little red spots, heart burn, tight skin on face and scalp, Irritable Bowel Syndrome as well as the R.A. (very little joint damage.) So how do you know you have it ? I guess I might have. Christine.
  16. chockers

    How do you know if you have Crest?

    Hi folks Well my nurse says I don't have crest and my rheumatologist says there's no such thing as crest or limited, he worked at Royal Free, so what ever I have he will be an expert as he would had seen it. Today I had to ring the Raynaud's and Scleroderma people because (sorry no-one answered) my calcinosis popped - it grew over night and started to pop out of the skin, with a load of liquid calcium (white stuff). The Raynaud's and Scleroderma lady (Ann) had just done a survey on them and knew what to tell me to do. I ordered some antibiotic cream from the chemist (forgot the name) and I am keeping it dry and covered. It was the biggest the nurse had ever seen, I went to the connective tissue nurse on Friday. Today I rang our help line but the nurse (mainley R.A.) rang back - go to doctors. That would had been totally useless as it just looks like a scab or a hole, but I can see the core inside. And doctors just don't know they have never seen them. So I have my finger covered but its comfy as using the right stuff. Anyway that's me today. ha ha ha ha Christine
  17. chockers

    How do you know if you have Crest?

    They say I don't have it, ha ha. Well now they do. I have scleroderma mild R.A MILD and overlaps mild. But I don't care I am alive. christine :emoticons-group-hug: :emoticons-line-dance:
  18. chockers

    calcinosis gone to pot

    hahahahahahahaaaaaaaaaaaahhhhhhhhaaaaaaa :emoticons-line-dance: :emoticon-crying-kleenex: I don't care! Christine
  19. chockers

    calcinosis gone to pot

    Hi Folks. Well, I've been to the nurse today. She says my calcinosis is the biggest she has seen...wow. It has not got a hole in it. I have been swimming this week with 2 plasters on it. I wash my hands but don't soak them and I also keep gloves in my pocket. Every now and then something rears its head; No real diagnosis, apart from overlap rheumatoid arthritis and scleroderma. I've also been told to rest more. ME!!! Doing too much....Ha! christine
  20. chockers

    Hair Thinning and loss

    Thyroxine is a hormone replacement (it's what your thyroid does not make). Chris
  21. chockers

    Is this a reflux or motility issue?

    When I worked I saw lots of ulcers. You need to look after them carefully, but sorry they take a long time to heal. In the old, they can take a year sometimes and I have seen worse. Sorry upset you. Chris
  22. chockers

    calcinosis gone to pot

    I can remember you well and would know you if I saw you, even if I saw you just the once. I did not come to the AGM last year as I felt I knew enough for now and had been to the rheumatoid groups as well, but will come to the AGM next year 2012 rather then this year, as it's the 30 year thing. Hope you are well. Christine
  23. chockers

    calcinosis gone to pot

    Hi Sue No this was not my normal doctor. He looked at my finger but he said it was a whitlow. They have 5 minutes per person per visit so no way would he go though my notes. I did say too him it was scleroderma realted. Chris
  24. chockers

    Systemic and hypothyroidism

    I have Hypothyroidism and feel fine unless it goes to pot. If you feel fine then you are stable so don't leave off your thyroxine; your body does not make it and you need your pills. You also don't pay for pills from the doctors; it's now free if you take thyroxine. Christine
  25. chockers

    calcinosis gone to pot

    Hi Amanda Yes I keep forgetting to post .As I like think theres nothing wrong ha ha . Do you rembember me I met you in 2009 agm .I am going to miss this year and come 2012 the 30 yr one As been twice . So how are you . love Christine chris the little lady
×