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Everything posted by azrose

  1. Thanks to all of you that replied. I will do what Pamela says, basically try not to worry about it, until when and if any other symptoms appear, because there are just too many variables. My ANA was neg My ACA was neg, (1:40) but 1:320 had a speckled pattern wrote in as a comment My anti dsDNA was neg MY anti SCL 70 was neg My Anti SM/rnp was neg histone IGG neg Anti SSB neg anti SSA neg ACE 58, elevated, doctor says indicative to sarcoidosis, but could be other things and was not concerned Rheumatoid factor normal So overall I think I am doing fine. The steroid burst and the drug Singulair has helped my morphea a lot....So I am one lucky lady. I want to thank you all again, you helped me understand that this is all very complicated, and unless you are having symptoms, it does you no good to worry about what may or may not happen in the future. I too am just going to try to "roll with it". It could be a lot worse than Morphea. Best Wishes Azrose
  2. Thank you all for your response. Janey and Pamela, Should I be concerned? I guess I am confused. My ACA is negative--which from what I read regarding localized scleroderma, having a positive response means you are more like likely to one date have systemic scleroderma....mine is negative, that is good. But how significant is the speckled pattern, in combination with a negative ACA. Could the fact that I have localized scleroderma morphea be triggering the speckled pattern, or does it indicate that I may have a problem with systemic scleroderma in the future. I understand from your posts that they are two different things....you are right these are very confusing. Thanks again AZROSE
  3. I have localized scleroderma morphea. I have the results of my blood work back, most is pretty good. I have a question about one test, the centromere antibody test. -------------- The results as shown on lab report: centromere antibody <1:40 (reference range <1:40) comment: 1:320 speckled pattern --------------- If the centromere antibody test is negative, how can you have a 1:320 speckled pattern. Does this mean that it is positive,... or does it mean that the very few antibodies that they found, some of those have a speckled pattern. Should I be concerned? My rheumatologist has tried a burst of steroids, followed by Singular 10mg (yes the asthma drug), and after 2 weeks the red halo around my neck lesions appear to be less...don't know what is making it a bit better,.. if it is the steroids or the Singular or the combination of the two. But I am hoping that it continues. Best wishes to you all. I do not post often, but your website and this forum are the fantastic. AZROSE
  4. Carolynv Thank you very much for your post. It was great to hear that someone who has morphea actually has a treatment that works. I will discuss this with my rheumatologist when we meet. Has your son had any major side effects from the medications? How long after starting the medications did you notice an improvement, or the lack of spreading? How long will he have to continue the medications? I hope your son continues to improve. Your email has given me a lot of hope. You can not believe how much I appreciate you taking the time to reply to me. Thanks, AZROSE
  5. I am a 52 year old female, who is new to this forum, but have spent many hours reading on the site. I had radioactive iodine treatment on my thyroid for graves disease about 2 years ago. About a year later, a spot of morphea (biopsied as scleroderma) appeared right over my thyroid on my neck. Has anyone else had this problem? In the last week my spot of morphea appears to have grown. It could be possible that now with it being summer, and my skin becoming a little tanned, the white areas are becoming more pronounced. I can definately see more morphea than I could a week ago. Also the sun seems to make the area burn and itch. I am not a sun worshiper, but I do go for a walk every day. I do apply sun screen. Steroid creams to the area does not appear to help. How fast does your spots of morphea grow? I have a visit scheduled to see a Rheumatologist in 3 weeks My mother died of polymyositis and scleroderma at age 42. Her sister, my aunt has systemic scleroderma. There is also a strong history of rheumatoid arthritis and thyroid disease in the family. We call it the family curse... Thank you for any help you can provide, especially from anyone who has had Graves disease, or problems with the sun on their spots of morphea. azrose
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