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Joelf

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  1. Cardiac magnetic resonance predicts ventricular arrhythmias in scleroderma (SSc): the Scleroderma Arrhythmia Clinical Utility Study (SanCtUS). Ventricular function, oedema (T2 ratio) and %late gadolinium enhancement had the greatest utility as independent predictors of rhythm disturbances in SSc patients. PubMed, Rheumatology (Oxford), 11/25/2019. (Also see Complications with Systemic Scleroderma Heart Involvement) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. The International Scleroderma Network thanks Genentech for their sponsorship support. Posted 01/21/2020.
  3. FDA approves fish-oil drug for cutting cardiac risks. U.S. regulators approved expanded use of a fish oil-based drug for preventing serious heart complications in high-risk patients already taking cholesterol-lowering pills. NBC Health News, 12/13/2019. (Also see Complications with Heart Involvement and Supplement Guide) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. Successful treatment with hydroxychloroquine for systemic lupus erythematosus with cutaneous involvement accompanied by a xanthomatous reaction. As yet unrecognized factors may play a role in the development of a xanthomatous reaction in discoid lupus erythematosus. PubMed, Lupus, 2019 Dec 1:961203319890677. (Also see Treatments for Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. Fat Grafting for the Treatment of Scleroderma. Fat grafting in scleroderma patients likely improves skin manifestations by recreating fullness, correcting contour deformities, and improving skin quality. PubMed, Plast Reconstr Surg, 2019 Dec;144(6):1498-1507. (Also see En Coup de Sabre) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. The Hidden Drug Epidemic Among Older People. People in their 60s take an average of 15 prescription drugs a year and combined with over-the-counter products, they may do more harm than good. New York Times, 12/16/2019. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  7. Systemic lupus erythematosus (SLE) is a risk factor for atrial fibrillation (AF): a nationwide, population-based study. Development of AF in patients with SLE was associated with increased mortality. PubMed, Clin Exp Rheumatol, 2019 Nov-Dec;37(6):1019-1025. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 01/16/2020.
  9. Hi CyberSamurai, Although the specialist in Dimarzio's link isn't on our list of scleroderma experts, he does specialise in connective tissue diseases. Ideally we do recommend listed specialists, but unfortunately, if there is no one available to you, then then it's probably worth you consulting the very best rheumatologist you can find. Kind regards,
  10. Cantargia Selects CAN10 as Development Project in Systemic Sclerosis and Myocarditis. Cantargia develops antibody-based pharmaceuticals against the interleukin 1 receptor accessory protein (IL1RAP) and the project will focus on unmet medical need in systemic sclerosis and myocarditis. PR Newswire, 12/05/2019. (Also see Interleukins) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. The More Processed Foods You Eat, the Higher Your Diabetes Risk. Ultraprocessed foods were tied to a higher risk of Type 2 diabetes. New York Times, 12/18/2019. (Also see Prevention of Diabetes) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 01/14/2020.
  13. Effect of systemic lupus erythematosus (SLE) and rheumatoid arthritis (RA) on sudden sensorineural hearing loss (SSNHL). Comorbid SLE or RA may negatively affect the prognosis of SSNHL. PubMed, Laryngoscope, 12/04/2019. (Also see Symptoms and Complications of Lupus,Symptoms and Complications of Rheumatoid Arthritis and Autoimmune Ear Diseases) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  14. Hi Merve, Welcome to these forums! I'm sorry to hear that you have positive blood test results and are experiencing worrying symptoms. Regarding your blood tests, please see our sticky on the subject. Scleroderma is a very difficult disease to diagnose correctly and we have had other members who have received the same advice from their consultant - I.e. wait and see how the disease progresses. Of course, it is quite worrying for you, particularly as a medical student (a little knowledge can be a dangerous thing ) and whilst the symptoms you describe could relate to scleroderma, they could equally be due to some other health problem. Please note I have no medical training, but my suggestion to you would be the same as your rheumatologist - to try not to be too concerned at this stage. It's impossible to compare your symptoms with anyone else, as this disease affects everyone differently and therefore without the benefit of second sight, it's impossible to know the future prognosis. Kind regards,
  15. Hi CyberSamurai, I'm afraid we don't have a list of scleroderma experts in Wales; although having said that, I don't believe that there's any reason why your wife couldn't go to an English specialist. I would imagine she would need a referral from your Welsh general practitioner, though, which could possibly be problematic. The best thing (in my opinion) would be to approach him/her and see the reaction. Kind regards,
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