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Joelf

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  1. Cannabinoid derivatives acting as dual PPARγ/CB2 agonists as therapeutic agents for systemic sclerosis (SSc). Altogether the results indicate that dual PPARγ/CB2 agonists qualify as a novel therapeutic approach for the treatment of SSc and other fibrotic diseases. PubMed, Biochem Pharmacol, 2019 Feb 27;163:321-334. (Also see Endocannabinoid System) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. Hi Jacob, Thankfully, I don't have any skin involvement on my face, so can't advise you from my own experience. However, I understand from friends who have suffered with facial skin involvement, that the skin feels very tight and uncomfortable. I've included a link to our medical page on Scleroderma Skin Involvement, which I hope you'll find helpful and informative. However, I would suggest that if you're experiencing symptoms which are worrying you, you should contact your doctor, or preferably a listed scleroderma expert, in order to receive the correct advice and treatment. Kind regards,
  3. Hi Alex, Welcome to these forums! Please note I have no medical training, but I would be surprised if taking collagen protein for the last month would have triggered scleroderma. The symptoms you describe could relate to any number of health problems and scleroderma is a complex and very difficult disease to diagnose; it certainly can't be diagnosed by putting a few symptoms into a search engine and then hoping for the best. Of course, it's not beyond the realms of possibility that they could be caused by scleroderma, but I would say it was fairly unlikely. We do have a medical page on Collagen Injections, Face Lifts, and Scleroderma, which may be of interest to you. However, if you have health symptoms which are bothering you, then I would suggest you contact your doctor for professional advice and any further treatment which may be required. Kind regards,
  4. Older people feel more youthful when they also feel in control. Older adults may feel younger than their age on days when they feel most in control of their lives, a small study suggests. Reuters Health, 04/19/2019. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  5. Amplifying the concept of psoriatic arthritis: The role of autoimmunity in systemic psoriatic disease. The purpose of this review is to describe the new pathogenetic mechanisms and the different clinical pictures of Systemic Psoriatic Disease. PubMed, Autoimmun Rev, 04/05/2019. (Also see Psoriasis and Psoriatic Arthritis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. Hi Jacob, Welcome to these forums! I'm sorry to hear that you've had worrying symptoms and positive blood tests. Regarding this, please see our sticky thread here. As you will see from that thread, it is quite possible to have positive blood tests and yet never go on to develop full blown scleroderma. This is probably why your rheumatologist has suggested waiting to see if anything further comes to light, which could help with a more definite diagnosis. I've included a link to our medical page on CREST (aka limited scleroderma) to give you some more information. Kind regards,
  7. Phenotypes determined by cluster analysis and their survival in the prospective EUSTAR cohort of patients with systemic sclerosis (SSc). Our work suggests that restricting the subsets of SSc patients only to the cutaneous involvement may not capture the complete heterogeneity of the disease. PubMed, Arthritis Rheumatol, 04/10/2019. (Also see Cluster Studies) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 05/16/2019.
  9. Hi Julia, Welcome to these forums! I'm sorry to hear that you've been recently diagnosed with limited scleroderma and send my best wishes to you. Whereas I can understand your concern, there is really no need for immediate panic; as you can see from earlier posts on this thread, many of our members (myself included) have found that in a lot of cases this disease does stabilise and it is quite possible to live a relatively "normal" life, despite having scleroderma. Of course, without the benefit of second sight, it's not possible to tell you how your particular disease will pan out; however, I would emphasise that it is very important to be treated by a listed scleroderma expert, to ensure that you receive the best and most appropriate treatment. I've included a link to our medical page on Prognosis and Mortality; again everybody experiences different symptoms and severity, which is what makes this complex disease so difficult to diagnose correctly. As this thread is eleven years old, I think it's fairly unlikely that you'll receive a reply from any of the posters. However, I have been diagnosed with limited scleroderma for the last ten years and have no intention of dying in the foreseeable future (barring my being run over by a bus, or some such eventuality. ) The best thing you can do is equip yourself with as much knowledge of the disease as possible and adopt a positive attitude, which should stand you in good stead for any future developments. Kind regards,
  10. Why Does Exercise Guard Against Cancer? One of the most important benefits of exercise is in how it reduces our risk of developing a number of types of cancer – especially colorectal cancer. New York Times, 04/22/2019. (Also see Cancer) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. Case Report: Efficacy and Metabolic Effect on Serum Lipids of Apremilast in Psoriatic Arthritis (PsA). Our observations suggest that apremilast is effective in controlling mild skin and joint involvement and suggest a potentially advantageous metabolic effect in patients with PsA. PubMed, J Clin Med, 2019 Mar 22;8(3). (Also see Psoriasis and Psoriatic Arthritis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 05/14/2019.
  13. Hi Bluebell, Welcome to these forums! Regarding your blood test results, please see our sticky thread here. Kind regards,
  14. Use of red cell distribution width (RDW) in a population at high risk for pulmonary hypertension (PH). The ease of obtaining RDW as a biomarker may help detect incident PH at earlier stages among patients who are at high risk for development of PH. PubMed, Respir Med, 2019 Apr;150:131-135. (Also see Pulmonary Hypertension Diagnosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles. 
  15. Vitamins and Supplements Can't Replace a Balanced Diet, Study Says. New research published suggests that vitamins and supplements may not be enough to keep you healthy. Time Healthland, 04/08/2019. (Also see Supplement Guide) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles. 
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