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Joelf

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  1. Progressive reduction of serum complement levels: a risk factor for relapse in patients with hypocomplementemia in systemic lupus erythematosus (SLE). Simultaneous progressive reductions in complement levels and increases in anti-dsDNA antibody levels may indicate future relapse of serologically active clinically quiescent–SLE patients. PubMed, Lupus, 2018 Oct 11:961203318804892. (Also see Research on Systemic Lupus Erythematosus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  2. The International Scleroderma Network thanks Reata Pharmaceuticals for their support! Posted 11/08/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  3. Recent progress in systemic sclerosis–interstitial lung disease (SSc–ILD). The implications of much of this ongoing work is our ability to identify those patients at risk for progression, and to offer novel therapies that can limit the progression of inflammatory and fibrotic lung disease. PubMed, Curr Opin Rheumatol, 2018 Nov;30(6):570-575. (Also see Pulmonary Fibrosis) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  4. Hi Cathy, I'm sorry to hear that you're suffering with worrying chest pain. As Sweet has suggested, it could be any number of things, some more serious than others. The trouble with a disease such as scleroderma is that there is a tendency to blame every new symptom on it, whether they are due to it or not and it can blind one to any other unrelated problems. A rule of thumb is that if there are new worrying symptoms (especially if you have an underlying condition such as scleroderma) then it's always worth checking it out with your doctor/scleroderma expert, if only for peace of mind. Kind regards,
  5. Women told they aren't thin enough for eating disorder treatment, MPs told. Patients who fear they have eating disorders are being told by general practitioners they aren't "thin enough for treatment", according to a woman who was denied help. BBC Health News, 10/16/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  6. The International Scleroderma Network thanks Gilead for their sponsorship support. Posted 11/14/2018.
  7. Relationship between interstitial CD34 positive cells and active phase of lupus nephritis. A strong interstitial expression of CD34 was observed in lower activity indices and it could play a protective role in lupus nephritis and could reduce renal activity. PubMed, Eur J Rheumatol, 2018 Oct 10:1-4. (Also see Symptoms and Complications of Lupus) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  8. Prediction of therapeutic response before and during I.v. cyclophosphamide (IVCY) pulse therapy for interstitial lung disease in systemic sclerosis (SSc–ILD): A longitudinal observational study. ILD severity/activity before treatment and variability of serum Krebs von den Lungen-6, surfactant protein D levels during treatment may be useful to predict therapeutic effects of IVCY on SSc–ILD. PubMed, J Dermatol, 10/05/2018. (Also see Pulmonary Fibrosis Treatments) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  9. The International Scleroderma Network thanks Network for Good donors for their support! Posted 11/07/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  10. Restless legs syndrome triples the risk of suicidal thoughts, study finds. People with restless legs syndrome have a greater risk of suicidal thoughts, a study suggests. Mail Online, 10/16/2018. (Also see Sleep Disorders and Suicide Prevention) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  11. Case Report: Treatment of colon cancer in a patient with systemic lupus erythematosus. This report provides an effective way to diagnose colon cancer in patients with systemic lupus erythematous and illustrates a successful therapy strategy for this complex medical condition. PubMed, BMC Cancer. (Also see Symptoms and Complications of Lupus and Cancer) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  12. The International Scleroderma Network thanks Jack and Elizabeth Lewis for their monthly pledge support! Posted 11/06/2018. This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  13. Prevalence of auto–antibodies associated to pulmonary arterial hypertension in scleroderma – A review. The available evidence points in the direction of a strong association between auto–immune mechanisms and pulmonary hypertension in the setting of scleroderma. PubMed, Autoimmun Rev, 10/11/2018. (Also see Pulmonary Hypertension and Antibodies) This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
  14. Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 11/09/2018.
  15. Joelf

    Blood Results and Worried!

    Hi Phyllis, Welcome to these forums! I'm sorry to hear that you've had worrying blood test results and unexplained symptoms. Please understand that I have no medical training, apart from a now out of date first aid certificate, but I would reiterate the advice we always give about positive blood tests; although they help in the diagnostic process, they are by no means the be all and end all of a diagnosis, as scleroderma is extremely complex to diagnose and it is possible to have positive blood tests and yet never go on to develop the full blown disease and vice versa, as many of our members can testify. Far more important are the clinical signs and symptoms of the disease, such as Raynaud's, which does seem to affect the majority of scleroderma patients. We do have numerous threads on this subject. I can understand how worrying these test results appear to be, but the best person to explain the test results as they interpret them in your particular case is your doctor or rheumatologist. If scleroderma is a possibility, we do actually recommend that our members, if possible, consult a listed scleroderma expert, to ensure that this complicated disease is treated correctly, by someone with the correct knowledge and expertise. I've included a link to our medical page on Antibodies in Systemic Scleroderma, which I hope you'll find helpful and informative. Kind regards,
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